Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for December 2011

Unwell

I have not been blogging for a while as I don't feel well.I now have small ulcers on the inside of my lip's on top of the paranoia and full body aches.I tried...

I have not been blogging for a while as I don't feel well.I now have small ulcer...

Binkey

•13 years ago

11 Replies

Achievement !

Achievement, that's my word of the day ! Why? Well, because I managed to get through a whirlwind of a week and I am still standing. I was re united with my...

Achievement, that's my word of the day ! Why? Well, because I managed to get t...

Hidden

•13 years ago

5 Replies

Lupus groups in South-East Wales

Is there anybody in South-East Wales that knows of a support group close by for sufferers of auto-immune diseases? If there is nobody that knows of one, I was...

Is there anybody in South-East Wales that knows of a support group close by for ...

karlyt

•13 years ago

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Lupus, diet and lifestyle

Hello, I just wanted to let you know that the Cambridgeshire Lupus Group newsletter was just sent out. In the newsletter is an article I submitted...

Hello, I just wanted to let you know that the Cambridgeshire Lupus Group...

Ani-

•13 years ago

5 Replies

What a difference a year makes

This all started a year ago with a really painful knee and finger joints and then a surprise positive ANA. The fatigue and other symptoms had always been...

This all started a year ago with a really painful knee and finger joints and the...

jonesy1

•13 years ago

5 Replies

fundraising

hiya all, big apology to everyone i,m having to put my fundraising on hold for the moment but i will get back to it as soon as possible. cath x

hiya all, big apology to everyone i,m having to put my fundraising on hold for ...

catb18

•13 years ago

3 Replies

Anyone on dialysis in need of support

I was diagnosed with SLE in 1997 age 15 and now have end stage renal failure and I have finally met the criteria for going on the transplant waiting list....

I was diagnosed with SLE in 1997 age 15 and now have end stage renal failure and...

charm81

•13 years ago

2 Replies

Painful joints

i know some days are better than others i have this painful knee for about 6 weeks and now it has swollen up and my boys seen the pain i am in so my eldest...

i know some days are better than others i have this painful knee for about 6 wee...

Bal121

•13 years ago

4 Replies

Candis magazine are looking for lupus patients to interview APPLICATIONS NOW CLOSED

***Please note that applications are now closed. Thank you to everybody that expressed an interest in taking part*** We’ve just been approached...

***Please note that applications are now closed. Thank you to everybody that exp...

Paul_Howard

Partner•13 years ago

7 Replies

OL7

Does anyone know of any groups in my area. I live in Ashton Under Lyne. x

Hidden

•13 years ago

3 Replies

lupus...............full of surprises

For last 3 days feel so uncomfortable walking. Feel like my hip is now affected and its scary. When I am driving and pressing clutch its painful. When I sit at...

For last 3 days feel so uncomfortable walking. Feel like my hip is now affected ...

Hidden

•13 years ago

7 Replies

Another frustrating day!

Life for me lately has been full of symptoms and stress and as all of you already know those seem to be a vicious cycle that is difficult to break. Yesterday...

Life for me lately has been full of symptoms and stress and as all of you alread...

amy35

•13 years ago

7 Replies

Plaqunil?Hydroxy

I have experienced that the skin on the inside of my lips sometimes peels off,,this never happened before taking Plaquenil..i also itch quite alot most days.I...

I have experienced that the skin on the inside of my lips sometimes peels off,,t...

Hidden

•13 years ago

6 Replies

Herts and Beds Lupus Group - news

Rheumatologist, Dr Binder and his team of four specialist nurses at Lister Hospital have pledged their support to a new Lupus Patient Group. I am still...

Rheumatologist, Dr Binder and his team of four specialist nurses at Lister Hospi...

Hidden

•13 years ago

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Rash

Has any one got any tips on how to stop this rash coming up all the time. I have steroid creams off my GP for when it flares up, but is there any thing I can...

Has any one got any tips on how to stop this rash coming up all the time. I have...

janeway24

•13 years ago

8 Replies

Mepacrine

Would be interested to hear of anyones experiences with Mepacrine. I was diagnosed with DLE 4 months ago and my head, face neck and chest has been covered in...

Would be interested to hear of anyones experiences with Mepacrine. I was diagnos...

maffwad

•13 years ago

3 Replies

Raw chocolate

Hello everyone. I have previously seen a few people here write about their love of chocolate so I wanted to post a link to an article I have just...

Hello everyone. I have previously seen a few people here write about thei...

Ani-

•13 years ago

4 Replies

are there any other people out there that are nervous about trying new meds?

At the moment i keep playing my symptoms down to my rhuemy because i am terrified about trying new medication. A year ago i was on methotrexate which at first...

At the moment i keep playing my symptoms down to my rhuemy because i am terrifie...

kerri_jharper

•13 years ago

3 Replies

Hair loss :O(

Hello everyone! I want to be positive and help those of you who have lost hair. I have been devastated by my own hair loss and it has caused me so...

Hello everyone! I want to be positive and help those of you who have lost ha...

lupylupus

•13 years ago

8 Replies

Lupus and Plaquenil

My wife was put onto Plaquenil 2 weeks ago and has just come out in what we believe is an allergic reaction to it Having researched online it seems her rash...

My wife was put onto Plaquenil 2 weeks ago and has just come out in what we beli...

livingthedream

•13 years ago

10 Replies

Coming out of remission.

I'm getting very down as I seem to be coming out of my steroids induced remission much more rapidly than before. I had 2 Kenalog injections, 1 last October and...

I'm getting very down as I seem to be coming out of my steroids induced remissio...

helenfirebird

•13 years ago

1 Reply

I still dont understand lupus

Hi im new to this site , i was diagnoed two years just. I hate having this , i have the rash very bad and the tiredness is just so dramatic , its hard. Ive...

Hi im new to this site , i was diagnoed two years just. I hate having this , i...

Sammylove44

•13 years ago

14 Replies

scared

i have DLE i was diagnosed 3 years ago but have had symptoms fot 10 years i would love someone to talk to who understands i feel so isolated

i have DLE i was diagnosed 3 years ago but have had symptoms fot 10 years i woul...

Angiequ

•13 years ago

4 Replies

Frightened

Lately I have been feeling very frightened about what the next step in treatment will be. My GP recommended a new rhuemy because the one I have been seeing has...

Lately I have been feeling very frightened about what the next step in treatment...

amy35

•13 years ago

2 Replies

Anti-depressant enquiry

Hi, from reading through blogs, questions, and replies, I can see that a lot of us are (understandably!) on various anti-depressant treatments. I have been on...

Hi, from reading through blogs, questions, and replies, I can see that a lot of ...

Hidden

•13 years ago

11 Replies

newly diagnosed now started anti rejection any advice all new. moved into my head etc frightened me more.trying to learn more.

chanel

•13 years ago

6 Replies

Raise money for LUPUS UK just by doing your Christmas shopping online!

If you sign up to easyfundraising then whenever you do your shopping online, the retailers will donate a percentage of your spending to LUPUS UK. It doesn’t...

If you sign up to easyfundraising then whenever you do your shopping online, the...

Paul_Howard

Partner•13 years ago

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Concerns about medication after reading everyone's blogs and questions :{

I have not been formally diagnosed with Lupus yet, my gp thinks it is this and I have to agree after reading some information, yes I finally think I sit here....

I have not been formally diagnosed with Lupus yet, my gp thinks it is this and I...

pollyanna

•13 years ago

9 Replies

Gutted!!

Morning all, I just thought I'd share my dissapointing news with you. Back in July, I had to have my Mitral Valve (Heart) replaced due to Lupus. On...

Morning all, I just thought I'd share my dissapointing news with you. Back...

Trace

•13 years ago

12 Replies

Painfull hands and feet

My hands and feet are getting more painful and swollen and getting me down. The pain in my hands woke me again just because I was trying to pull the duvet...

My hands and feet are getting more painful and swollen and getting me down. The...

jonesy1

•13 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2011

Unwell

Achievement !

Lupus groups in South-East Wales

Lupus, diet and lifestyle

What a difference a year makes

fundraising

Anyone on dialysis in need of support

Painful joints

Candis magazine are looking for lupus patients to interview APPLICATIONS NOW CLOSED

OL7

lupus...............full of surprises

Another frustrating day!

Plaqunil?Hydroxy

Herts and Beds Lupus Group - news

Rash

Mepacrine

Raw chocolate

are there any other people out there that are nervous about trying new meds?

Hair loss :O(

Lupus and Plaquenil

Coming out of remission.

I still dont understand lupus

scared

Frightened

Anti-depressant enquiry

newly diagnosed now started anti rejection any advice all new. moved into my head etc frightened me more.trying to learn more.

Raise money for LUPUS UK just by doing your Christmas shopping online!

Concerns about medication after reading everyone's blogs and questions :{

Gutted!!

Painfull hands and feet

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2011

Unwell

Achievement !

Lupus groups in South-East Wales

Lupus, diet and lifestyle

What a difference a year makes

fundraising

Anyone on dialysis in need of support

Painful joints

Candis magazine are looking for lupus patients to interview ***APPLICATIONS NOW CLOSED***

OL7

lupus...............full of surprises

Another frustrating day!

Plaqunil?Hydroxy

Herts and Beds Lupus Group - news

Rash

Mepacrine

Raw chocolate

are there any other people out there that are nervous about trying new meds?

Hair loss :O(

Lupus and Plaquenil

Coming out of remission.

I still dont understand lupus

scared

Frightened

Anti-depressant enquiry

newly diagnosed now started anti rejection any advice all new. moved into my head etc frightened me more.trying to learn more.

Raise money for LUPUS UK just by doing your Christmas shopping online!

Concerns about medication after reading everyone's blogs and questions :{

Gutted!!

Painfull hands and feet

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Candis magazine are looking for lupus patients to interview APPLICATIONS NOW CLOSED