I just thought I'd share my dissapointing news with you.
Back in July, I had to have my Mitral Valve (Heart) replaced due to Lupus.
On Nov 22nd, I had an Echocardiogram & last Wednesday had an appointment with my Cardiac Nurse who showed me the results.
My new valve is only working at 35% of it's capacity, it should be around 80-85% by now, my heart is also still enlarged & my Tricuspid Valve is leaking slightly too.
All in all not good.
I hate Lupus & what its done to me.
Hope I haven't moaned too much
Trace
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Trace
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Had a blood test yesterday, see Cardiac nurse on Monday, if kidneys are ok & everything else is, they'll my Heart tablet & hoping this will work because if it dosen't it means more surgery & not sure I can go thru that again.
I'm finding it hard to deal with, having open heart surgery is scary & I just want something to go right for a change.
So sorry to hear your news, do hope things pick up for you soon. Its bad enough having Lupus without all what goes with it, I hate Lupus too, but keep positive if you can , not easy l know. We are all here for you. X X
Thank you all so much for your kind wishes, just glad Ive got this site to talk about my problems, I've had SLE for 6 & a half years & I felt so alone until I found you all.
This is just awful for you, having Lupus is bad enough with aches, pains and fatigue etc etc, but your heart valve, i had an operation on my knee stopped as in my notes they found i had a Mitral Valve problem, but when i went for more tests i was fine and my valve was ok, operation went ahead and all ok.
I know how i felt then i was horrified and scared
I hope your medication works for you, stay strong and thinking of you.
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