scared

[Angiequ]

i have DLE i was diagnosed 3 years ago but have had symptoms fot 10 years i would love someone to talk to who understands i feel so isolated

[jonesy1]

I used to feel very isolated as well but this is a great site with members who not only listen but understand when you are having a bad time.

Take care

Sue x

[janiceray]

You have people here that understand, but you could also contact a Member of Lupus Uk Contacts if you tell me what area you are in i might be able to help

if you want to speak on a 1 To 1

Janx

[Thaddeus]

Hello There

Not surprising that you are scared, this is a scary illness, but you will find that reading about others with similar symptoms will make you feel less isolated. you certainly are not alone with this thing.

On a practical level other members will have coping mechanisms which you will find helpful.

I have lived with this for 20 years. You will get your life back.

[Hidden]

Hi I DLE too,,oh it's just a skin rash i get,,ha ha,i was diagnosed in August after many many tests and many years,,i also have Fibromylgia,Livedo Reticularis(skin disease)Raynauds,,Mixed tissue connective disease!Ihate them all!Ilove this site it is so helpful but i also wanted more help so i set up my own group We are at Facebook,,we are Lupus is real!!! Join us! x