Hi all
Advice and comment needed please.
I’m a PE teacher with mild Lupus.
As the summer approaches, I’m spending more time in the sun but I’ve found that even an hour or two exposure (I wear SPF 50) by about 7.30pm I am completely wiped out and need an hours sleep.
this happens regularly and always the same outcome.
I was just wondering if anyone else suffers the same thing?
Thanks
Oh yes mani. If I go out without any protection within an hr I get a migraine and feel wiped out and it then takes 2 or 3 days indoors to recover. I have to cover up completely with factor 50,hat,sunglasses and clothes. If I sit outside at home it has to be under my gazebo but I don't seem to enjoy sitting out now like I used too. Kind regards SML x
I can't even do 20 mins and I'm wiped out for the rest of the day and more. This sunny week reminded me of that.Can you teach a 2nd subject?
Is it worth thinking of asking to split yr lessons between the 2 subject?
I had very active lupus and eventually had to give it up my teaching career.
There's sun blocking clothes you can wear as well as a hat?
Hope you can sort it
All the best, Sarah
Are there still activities indoors during the Summer. I used to teach Science but taught PE too, timetabling allowed this to be taking swimming at a local indoor pool. Otherwise, is there any way you can shelter from the sun?
I'm always looking for where there is shade, big trees etc. I get a lot of the sports clothing that offers full UV protection. I'm glad there is more on the market now.
It is not a easy situation to deal with. Now retired I hoped to go on walking holidays ( once wanted to lead them) play tennis and golf...but I'm limited now, so am forced to gym and swim and focus hard on new things when it is sunny like at the moment.
Hope things come together for you
Hi there - yes I am afraid this does happen - when we have a heatwave I cannot go out of the house as it affects me so badly - what the sun rays do to the Lupus body is cause inflammation via the kidneys/puts a strain on the adrenal glands - I cover up in the sun so the rays don't go on my skin and keep out of the sun if I can - but you are a PE teacher so might be difficult if you are teaching outdoors in the Summer. Are you on any drugs for your Lupus because some vitamins might help with this issue.
Hydroxy 200.
Also Vit D, B12 and a probiotic tab.
Also magnesium oil
Not sure what Hydroxy 200 is - a drug or a supplement - I couldn't take drugs for my Lupus as allergic to everything - how much D are you taking and what make. Depending on what Hydroxy is you might be helped with some Vitamin B complex.
Link to post on Hydroxychloroquine (hydroxy)🙂
healthunlocked.com/lupusuk/...
Agh yes I know what it is now I tried it and one dose and was very very ill - but it works for others I believe - its an anti malarial drug I believe as well.
Hydroxy is hydroxiqloriquine (spelling) or
Plaquenil which is an anti malarial drug used off label for lupus. Not a supplement.
First medication most rheumatologists advise. Most people are photosensitive. I am also heat sensitive. Living in a semi tropical environment I’m about to spend 5 months in the house. If your lupus is still mild it’s possible that UV clothing and hats will help you a lot. Unfortunately it means a lot of experimenting. Best, MM
Exposure to the sun is tough for me. After 20 minutes of exposure, I am wiped out. I think of it like a light switch being turned off. My energy is zapped. Recovery takes as little as an hour, but sometimes lasts more than a full day.
Oh yes. There is not a lot you can do except stay out of the sun from now till September/October between 10 and 4 really. Not easy in your line of work. If you don't you will suffer more than usual with fatigue and other fun symptoms. I would strongly advise to avoid getting worse symptoms, a change of job to an inside one may be a good idea soon if not now. It would almost certainly be that as you age your lupus will get worse and sun exposure just adds more issues to the mix and not just sun, UV light of any sort, even in the shade outside I often come indoors after 30 mins as I start to feel rough like flu. Anyway it's your decision I guess but there are no quick fixes, covering up and factor 50 help but they don't block everything, not for long anyway and certainly not all day. I feel sorry for you with your job as it is but honestly there is little you can do except stay indoors when the sun is high. I have learnt this the hard way and obviously you are learning this as you have symptoms after sun exposure and its only spring!
I get the same thing. Even if I am not in direct sunlight, the heat feels exhausting. I wonder if it is also the intensity of the indirect sunlight. I try to reapply 50+ SPF often, but it feels like it doesn't help. I also wonder if the sunscreen cream does not agree well with my skin. When I spoke to my doctor about it, he said that it is not usual that you feel tired without getting a rash. But it is comforting to hear that other people are having the same symptoms as me.
Sun exposure
Is your cognitive behaviour affected during the fatigue stage ?
Sun cream 
Fatigue 
