I really need your help. For the past four months, I’ve been experiencing rashes on my feet and fingertips that worsen in cold temperatures. My white blood cell count is slightly elevated but not alarmingly high. Overall, I don’t feel too bad.
I’ve been on MMF, prednisone (5mg), and hydroxychloroquine for the past five years. However, my rheumatologist thinks my lupus is not well controlled and has recommended cyclophosphamide infusions, five doses over six months.
I personally feel my lupus isn’t severe enough to require cyclophosphamide infusions. Are there any less harsh alternatives? If MMF isn’t working, could there be other treatment options instead of cyclophosphamide? I wasn’t given much information about the infusion, just an appointment letter.
My treatment starts in three weeks, and I’m extremely nervous about taking cyclophosphamide. If anyone has been in a similar situation, I would really appreciate any advice or shared experiences.
Thank you!
Iloprost infusions
Cyclophosphamide
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