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Graves’ - coming off carbimazole - symptoms

Hi, I have Graves and responded very quickly on carbimazole and my graves has been under control for 15 months and recently been on 5 mg every second day ....

Hi, I have Graves and responded very quickly on carbimazole and my graves has b...

Cris104

•14 days ago

10 Replies

Carbimazole mild neutropenia

Dear all, I had a relapse of Graves a week ago. My endocrinologist prescribed 40 mg of Carbimazol daily and Propanolol. I started the prescribed treatment....

Dear all, I had a relapse of Graves a week ago. My endocrinologist prescribed 4...

Belgianwaffle

•1 month ago

7 Replies

Struggling with Graves & Afib

Hi there What a wonderful site this is. I have learned more in the past 2 hours scrolling here than I have in the past 6 months. My story in brief. I had...

Hi there What a wonderful site this is. I have learned more in the past 2 hour...

ToniMac

•3 months ago

7 Replies

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Glycans

Hi everyone. Just wondered if anyone has done any research on Glycans? Im just delving into this subject and found an interesting papers which seem to make...

Hi everyone. Just wondered if anyone has done any research on Glycans? Im ju...

KittyKat234

•3 months ago

5 Replies

I received two different opinions from doctors regarding the progression of Graves' disease.

Hello everyone, I’m seeking professional advice or insights from those who have experienced Graves' disease and recognize the symptoms. Background: I have...

Hello everyone, I’m seeking professional advice or insights from those who have ...

Jane00123

•4 months ago

13 Replies

Graves Disease and terrible care

This is probably a pointless post but I’m feeling down and frustrated. I relapsed with Graves in November 2023. Urgent referral to same consultant. Blood test...

This is probably a pointless post but I’m feeling down and frustrated. I relaps...

Portabella

•5 months ago

9 Replies

RAI 5 years ago - new tightness

hi there - I had radioactive iodine to treat Graves over 5 years ago. At that time I would regularly experience tightness in my neck with mild pain ie...

hi there - I had radioactive iodine to treat Graves over 5 years ago. At that ti...

Hidden

•6 months ago

2 Replies

New to PTU

Hi I’ve been on PTU for 11 days not feeling any better just wondered how long it takes to kick in? Says 6-8 weeks online 😔 Also is it worth pushing for an...

Hi I’ve been on PTU for 11 days not feeling any better just wondered how long it...

Kiki_76

•9 months ago

3 Replies

Stopping PTU During Pregnancy (Graves Disease)

Hi all, I got diagnosed with graves disease in 2019 and after an initial high dose have been on a low one ever since. Got switched to PTU last July as we were...

Hi all, I got diagnosed with graves disease in 2019 and after an initial high d...

TrashPanda31

•9 months ago

1 Reply

Surgery or not.

Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was...

Hi everyone.Had my one year appointment with consultant yesterday in hospital wh...

JoMax

•10 months ago

9 Replies

carbimazole and hives

Hi Folks, I have autoimmune hyperthyroidism, awaiting diagnosis from a consultation with NHS endo but it’s likely Graves given my blood markers. GP...

Hi Folks, I have autoimmune hyperthyroidism, awaiting diagnosis from a consulta...

Hungryallthetimes

•11 months ago

15 Replies

Update after Endo

Good morning, I'm just writing this as an update to anyone who may be interested in my seemingly-odd case... My Endo appointment went well. (Or so I thought...

Good morning, I'm just writing this as an update to anyone who may be interested...

Opposite

•11 months ago

63 Replies

Low t3 with high t4, graves.

I'm not sure what's happening. I've had one episode of toxic nodule hyperthyroidism back in 2015, hemithyroidectomy in 2018. Then I got graves (unrelated...

I'm not sure what's happening. I've had one episode of toxic nodule hyperthyroid...

happyp

•11 months ago

12 Replies

The ongoing battle to be well

Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for...

Since I had Graves diagnosed years ago have struggled with levothyroxine alone....

Hurtlocker

•1 year ago

5 Replies

Graves, low TSH low hormones

Hi all, I was hyperthyroid in 2003 treated with thiamazole, Hashimoto's hypothyroid in 2015, in 2018 TSI antibodies went up again, but I was left untreated...

Hi all, I was hyperthyroid in 2003 treated with thiamazole, Hashimoto's hypothy...

INOW

•1 year ago

5 Replies

Carbimazole causing very short period cycles (+ rapid drop in t4 on low dose)

Hello I was diagnosed with Graves Disease in July 2020 after reporting feeling uneasy, shaky, urinating frequently and having some hair loss. My T4 returned...

Hello I was diagnosed with Graves Disease in July 2020 after reporting feeling ...

kscourt

•1 year ago

10 Replies

vitamin interaction

I recently have been told I have an overactive thyroid and Graves’ disease. What vitamins interact with either of them? Thank you

I recently have been told I have an overactive thyroid and Graves’ disease. Wha...

notsureaboutanyofit

•1 year ago

3 Replies

Recently diagnosed with Graves

I’ve been recently diagnosed with Graves’ disease by an endocrinologist. He says my levels are low to mild. I’ve been prescribed Neomercazole which is the...

I’ve been recently diagnosed with Graves’ disease by an endocrinologist. He says...

lisaglow

•1 year ago

7 Replies

Are positive TSI Antibodies always indicative of Graves?

I currently have positive TSI antibodies (0.66 range <0.55) and positive TgAB (6.3 range <4.5). I was hyperthyroid: TSH <0.01 (0.40-4.00) FT3 11.3......

I currently have positive TSI antibodies (0.66 range <0.55) and positive TgAB (6...

Curious123

•2 years ago

16 Replies

we can finally see the wood through the tree's... My ongoing Thyroid Problem.

I had my appointment with this new endo on the 4th July. She was a happy cheapie type of person and explained my problem to the liking of a damaged car. Which...

I had my appointment with this new endo on the 4th July. She was a happy cheapie...

Billyboy2u

•2 years ago

1 Reply

T4 over 100

I have Graves which has been fairly well controlled until about 3 weeks ago. Blood test 8 weeks ago- all good on 5mg carb. Blood test last week and everything...

I have Graves which has been fairly well controlled until about 3 weeks ago. Blo...

Fruit3579

•2 years ago

2 Replies

Graves disease symptoms?

Hi there, I'm newly diagnosed (by UK GP) with Graves disease, and am waiting to see an endocrinologist who is supposed to prescribe me carbimazole. I have a...

Hi there, I'm newly diagnosed (by UK GP) with Graves disease, and am waiting to ...

Cooper75

•2 years ago

25 Replies

any help and advice appreciated😉

originally diagnosed with hypothyroidism, now confirmed I have Graves, just had my carbimazole reduced from since originally starting in January which was 20...

originally diagnosed with hypothyroidism, now confirmed I have Graves, just had...

Forumjunkie

•2 years ago

22 Replies

PMS & Graves/Overactive Thyroid Query

Hello, I’m currently going through testing for an overactive thyroid, possibly Graves’ disease and have recently been put on Carbimazole 5mg. I have been...

Hello, I’m currently going through testing for an overactive thyroid, possibly G...

Hidden

•2 years ago

22 Replies

Advice for block and replace please

Hello everyone, I am looking for some advice having recently been put on block and replace treatment for Graves' disease by my endocrinologist. A bit of...

Hello everyone, I am looking for some advice having recently been put on block ...

Liv8523

•2 years ago

10 Replies

Berberine godsend

I struggled to get all my "T" levels and TSH normalized. No matter what we did my medicine wasn't helping. I read someplace that taking Berberdine and...

I struggled to get all my "T" levels and TSH normalized. No matter what we did ...

sweetczz

•2 years ago

4 Replies

Please can anyone DM me recommendations for holistic endocrinologist in West Sussex area or online.

I have Graves disase with TED from 2015, two years after my pregnancy. I have been advised surgery in the past but my numbers aren't too bad and ideally I...

I have Graves disase with TED from 2015, two years after my pregnancy. I have be...

S_cruz

•2 years ago

1 Reply

Graves and exercise

Hi everyone, Hoping to see if anyone can share their story on their experiences with exercise, whilst treating Graves. I play basketball on a regular...

Hi everyone, Hoping to see if anyone can share their story on their experience...

Liiila

•2 years ago

6 Replies

Graves, on carbimazole for 10 months

Not sure if you can actually see this, it's very small. I was diagnosed with Graves (Trab +ve) in April last year and have been treated with Carbimazole. It...

Not sure if you can actually see this, it's very small. I was diagnosed with Gra...

Pasionaria

•2 years ago

20 Replies

What is the impact of stress during first Grave’s medication-free trial?

Reaching out for a bit of information 😊 I’m four months into my first medication free trial to see if my Grave’s disease is in remission. However, I’ve been...

Reaching out for a bit of information 😊 I’m four months into my first medicatio...

EiruMeadbh

•2 years ago

3 Replies

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Posts - Thyroid UK | HealthUnlocked

Thyroid UK

Graves posts

Graves’ - coming off carbimazole - symptoms

Carbimazole mild neutropenia

Struggling with Graves & Afib

Glycans

I received two different opinions from doctors regarding the progression of Graves' disease.

Graves Disease and terrible care

RAI 5 years ago - new tightness

New to PTU

Stopping PTU During Pregnancy (Graves Disease)

Surgery or not.

carbimazole and hives

Update after Endo

Low t3 with high t4, graves.

The ongoing battle to be well

Graves, low TSH low hormones

Carbimazole causing very short period cycles (+ rapid drop in t4 on low dose)

vitamin interaction

Recently diagnosed with Graves

Are positive TSI Antibodies always indicative of Graves?

we can finally see the wood through the tree's... My ongoing Thyroid Problem.

T4 over 100

Graves disease symptoms?

any help and advice appreciated😉

PMS & Graves/Overactive Thyroid Query

Advice for block and replace please

Berberine godsend

Please can anyone DM me recommendations for holistic endocrinologist in West Sussex area or online.

Graves and exercise

Graves, on carbimazole for 10 months

What is the impact of stress during first Grave’s medication-free trial?

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