The ongoing battle to be well: Since I had Graves... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

The ongoing battle to be well

Hurtlocker profile image
5 Replies

Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!! After years of being unwell.no energy.tired perpetually .wobbly on feet etc.. doctor prescribed increase in Levo to 100m per day and after six months I feel no better with same weary syptoms...been supplimenting D3K2 and B12 for same period..just had complete overhaul and blood panel as I kept having to sit down I felt so bad...all came back normal...hell no its not!! not for me its not...TSH. 0.08 (03 -4.5)

FT4. 21.8. (10.0- 22.0)

FT3. 4.2. (3.1- 6.8)

Think I am not a good converter and I am going to start takIng that T3 in 25mic doses for 6 weeks then increase bit by bit and the GP can go fly her kite ( which is about as useful as she has been)!!! Taking it into my own hands from now.on with the help of you all on the forum. Thank you all for your input and knowledge..starting tomorrow...hope my courage doesn't fail me!!..should I reduce Levo to 75mic from 100mic immediately or wait a week or so??

Written by
Hurtlocker profile image
Hurtlocker
To view profiles and participate in discussions please or .
Read more about...
5 Replies
J972 profile image
J972

The usual advice is to keep Levo the same so you can assess what effect T3 has. Especially since you’re not on an epic Levo dose.

Are you aware that you need to go low and slow with the T3? It’s powerful stuff.

Buddy195 profile image
Buddy195Administrator

25mcg of Lio is too high a dose to add in one go. I would reduce Levo by 25mcg as your FT4 is near the top of the range, then add 10mcg Liothyronine (perhaps 5mcg am and 5mcg pm). I would retest 6-8 weeks after being on a consistent dose.

Do look at advice given on a similar post todayhealthunlocked.com/thyroidu.....

Hurtlocker profile image
Hurtlocker in reply to Buddy195

Thanks for your comments...will start t3 low and slow for 6 weeks and see how I go...let you know!!

Batty1 profile image
Batty1

I feel your aggravation without a thyroid … If your numbers are in range your deemed “perfect” and Im getting sick and tired of dealing with my bouncing vision issues … never in my life have I had so many health issues until lost my thyroid … my health went nutz.

Hurtlocker profile image
Hurtlocker in reply to Batty1

Thank you for your comments!! I will take it low and slow I think in view of my past history with drugs of any kind..really regret removal of thyroid..loads of probs since!!

You may also like...

Ongoing T4/T3 battle - latest results

agreed I should take T3. My GP won't pay for it so I have to buy it abroad. I am taking 100mcg T4...

Obsessive thoughts and ongoing battle with recovery after total TT

eat or drink for at least two hours after taking meds don't take any other meds for two hours. My...

Battling with the Doc!

Battling with The Medics

having too much medication and (reluctantly) increasing the dose when I was ‘dragging’ myself around

Is Metavive working too well?

struggling with constipation for years and increasing Levo from 125 to 150 didn’t help though FT3...