The ongoing battle to be well: Since I had Graves... - Thyroid UK

Thyroid UK

141,184 members166,426 posts

The ongoing battle to be well

Hurtlocker profile image
5 Replies

Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!! After years of being unwell.no energy.tired perpetually .wobbly on feet etc.. doctor prescribed increase in Levo to 100m per day and after six months I feel no better with same weary syptoms...been supplimenting D3K2 and B12 for same period..just had complete overhaul and blood panel as I kept having to sit down I felt so bad...all came back normal...hell no its not!! not for me its not...TSH. 0.08 (03 -4.5)

FT4. 21.8. (10.0- 22.0)

FT3. 4.2. (3.1- 6.8)

Think I am not a good converter and I am going to start takIng that T3 in 25mic doses for 6 weeks then increase bit by bit and the GP can go fly her kite ( which is about as useful as she has been)!!! Taking it into my own hands from now.on with the help of you all on the forum. Thank you all for your input and knowledge..starting tomorrow...hope my courage doesn't fail me!!..should I reduce Levo to 75mic from 100mic immediately or wait a week or so??

Written by
Hurtlocker profile image
Hurtlocker
To view profiles and participate in discussions please or .
Read more about...
5 Replies
J972 profile image
J972

The usual advice is to keep Levo the same so you can assess what effect T3 has. Especially since you’re not on an epic Levo dose.

Are you aware that you need to go low and slow with the T3? It’s powerful stuff.

Buddy195 profile image
Buddy195Administrator

25mcg of Lio is too high a dose to add in one go. I would reduce Levo by 25mcg as your FT4 is near the top of the range, then add 10mcg Liothyronine (perhaps 5mcg am and 5mcg pm). I would retest 6-8 weeks after being on a consistent dose.

Do look at advice given on a similar post todayhealthunlocked.com/thyroidu.....

Hurtlocker profile image
Hurtlocker in reply toBuddy195

Thanks for your comments...will start t3 low and slow for 6 weeks and see how I go...let you know!!

Batty1 profile image
Batty1

I feel your aggravation without a thyroid … If your numbers are in range your deemed “perfect” and Im getting sick and tired of dealing with my bouncing vision issues … never in my life have I had so many health issues until lost my thyroid … my health went nutz.

Hurtlocker profile image
Hurtlocker in reply toBatty1

Thank you for your comments!! I will take it low and slow I think in view of my past history with drugs of any kind..really regret removal of thyroid..loads of probs since!!

Not what you're looking for?

You may also like...

So tired of the battle with useless doctors.

Nowt new here I know but thank God for this place, if it wasn't for you guys I would feel like I'm...
Limbolass profile image

On going battle

Just had my thyroid blood results back TSH 4.71 range .27-4.2 T4 12 .5 range 10-21 Comment from...
Ragerty profile image

Drop in FT4/FT3 and TSH after levo increase

I'd be very grateful if anyone can help me understand why my results look worse after an increase...
Thalia56 profile image

Strange test results - advice please

Hi all, I've got some strange results I am trying to understand. Been on a bit of a journey since...
Wired123 profile image

What a day to be had on the NHS!

Well yesterday was quite a day, i turned to reach for my levo yesterday morning and my heartrate...
magsyh profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.