Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for August 2022

Is anyone on this clinical trial ACTOv

Hello lovely ladies. I hope you are all as well as you can be. I would be interested to know if anyone is on this trial and how they are getting on.I...

Hello lovely ladies. I hope you are all as well as you can be. I would be ...

Caleda4

•2 years ago

1 Reply

caelyx

Whilst I was on 1st line chemo I was on Taxol and was told not to drive. I am starting 2nd line next week and will be having Caelyx. I have had conflicting...

Whilst I was on 1st line chemo I was on Taxol and was told not to drive. I am ...

NewtonEmma1900

•2 years ago

19 Replies

Mom's CA is rising sharply

Looking for some advice here. Mom went through chemo , surgery and HIPEC in 2019 and 2020, was short of remission for last two years with Olaparib but since...

Looking for some advice here. Mom went through chemo , surgery and HIPEC in 20...

msuspartan

•2 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Prehab

Hi, I was just wondering if anyone else is doing ‘prehab’ in the run up to their surgery? I’m really enjoying it.

Hi, I was just wondering if anyone else is doing ‘prehab’ in the run up to their...

Rosado22

•2 years ago

19 Replies

mesh repair? [Thread contains photographs]

Am wondering if anyone has had this repair for parastomal hernia and outomes? Am considering getting this done. Saw colorectal surgeon- didn’t fill me with...

Am wondering if anyone has had this repair for parastomal hernia and outomes? A...

Laz66

•2 years ago

3 Replies

Good Morning 🌄 good news to start but need advice again lol 🥰🤣

OK so had my th 4th chemo yesterday and was told my CA125 is down to 24!!🥳🥳🥳 Great news considering I haven't had my debunking yet! So as I said in my last...

OK so had my th 4th chemo yesterday and was told my CA125 is down to 24!!🥳🥳🥳...

Newbery3

•2 years ago

15 Replies

Good Morning 🌄 good news to start but need advice again lol 🥰🤣

OK so had my th 4th chemo yesterday and was told my CA125 is down to 24!!🥳🥳🥳 Great news considering I haven't had my debunking yet! So as I said in my last...

OK so had my th 4th chemo yesterday and was told my CA125 is down to 24!!🥳🥳🥳...

Newbery3

•2 years ago

Be the first to reply

Allergic to chemo - starting rucaparib

It’s a while since I’ve been here but this feels like the time to come back. My first recurrence happened earlier this year, so I started chemo with carbo &...

It’s a while since I’ve been here but this feels like the time to come back. My ...

RainbowC

•2 years ago

4 Replies

I didn't think I would be back so soon.

Welp. Didn't think I would find myself back on the ovacome forum for a while. Brief recap - Mom got diagnosed with stage 3c HGSC OC back in December 2016....

Welp. Didn't think I would find myself back on the ovacome forum for a while. ...

kristinaapril

•2 years ago

10 Replies

appendix removal for BOTs

has anyone else had a complete radical hysterectomy after a 20cm MBOT and no mention of removal of appendix? It just occurred to me when doing some research...

has anyone else had a complete radical hysterectomy after a 20cm MBOT and no me...

Sabby81

•2 years ago

16 Replies

Hysterectomy following Mucinous Borderline OC

Hi all I am 3days po after having hysterectomy and peritoneal washings biopsy of my omentum,I had a 20cm BOT in 2019 believed to be benign therefore taken...

Hi all I am 3days po after having hysterectomy and peritoneal washings biopsy o...

Sabby81

•2 years ago

5 Replies

any tips?

I'm returning to self employed work after a year's absence after my diagnosis of primary peritoneal cancer (all ned now thankfully and just beginning to feel...

I'm returning to self employed work after a year's absence after my diagnosis of...

Jayniiee

•2 years ago

6 Replies

Thank you!

Hi all, I just wanted to say thank you for all your help and advice to my last post. I’m off to see my oncologist tomorrow, I’m going to suggest that she...

Hi all, I just wanted to say thank you for all your help and advice to my last...

Tay100

•2 years ago

6 Replies

Older women with stage 3c ovarian cancer

Hi my gorgeous Mum is 82 and she has had her first dose of chemotherapy 2 weeks ago. Stage 3c. She has been having difficulty eating and also significant...

Hi my gorgeous Mum is 82 and she has had her first dose of chemotherapy 2 weeks ...

Maisienz

•2 years ago

5 Replies

post 1st chemo

I had my first chemo session on Thursday. Today I am experiencing shooting pains in lower abdomen and legs . Has anybody had the same experience ?

I had my first chemo session on Thursday. Today I am experiencing shooting pains...

Hota

•2 years ago

14 Replies

Losing my resolve and feeling defeated.

I have always tried to be positive and strong but I fear this last diagnosis 3 reoccurrence in less than 3 years, has really kicked me in the gut. I have had...

I have always tried to be positive and strong but I fear this last diagnosis 3 r...

Summergold2

•2 years ago

30 Replies

Nausea

I’ve had 2 kidney stents inserted and they seem to be working. Been home from hospital for 2 day and can’t stop being sick. Anyone else had this?

I’ve had 2 kidney stents inserted and they seem to be working. Been home from ho...

Lockygill

•2 years ago

8 Replies

Sore Areas

I an having weekly Taxel,and all is much as I expected,however in the last week or so I have developed a sore, aching hip and upper thigh on the right...

I an having weekly Taxel,and all is much as I expected,however in the last we...

27-359

•2 years ago

2 Replies

New insights into malignant gynaecological cancers and ferroptosis

Hello all I came across this review about potential new treatments for ovarian cancer. Ferroptosis is now quite well known as an upcoming way of dealing with...

Hello all I came across this review about potential new treatments for ovarian c...

Rosebud4004

•2 years ago

25 Replies

CA125

Hello Teal Sisters, I finished my last treatment 10/2021 CA125 at diagnosis 4300 has been in 6-7 range post treatment on my recent draw it was 13 should I be...

Hello Teal Sisters, I finished my last treatment 10/2021 CA125 at diagnosis 430...

Saintgermain

•2 years ago

27 Replies

Info. please, 4th Spring Booster Covid vaccine) And, starting NIRAPARIB drug too, soon?

Hello Ladies, I hope you are all keeping as well as possible. Please can...

Hello Ladies, I hope you are all keeping as well as possible. ...

Doughnut21

•2 years ago

18 Replies

Finally got my appointment for tomorrow

Hello lovely ladies A few weeks ago I posted that I was worried about symptoms and a partial bowl obstruction and you all reached out to me and were so...

Hello lovely ladies A few weeks ago I posted that I was worried about symptoms...

Sorrysarah

•2 years ago

2 Replies

Ovacome Information Booklets 📖 📚 📗

Good morning everyone This post is to let you all know that Ovacome has 30 clinical information booklets covering a wide range of topics including symptoms...

Good morning everyone This post is to let you all know that Ovacome has 30 clin...

TheOvacomeTeam

Partner•2 years ago

Be the first to reply

waiting on scan results and been told I have to wait for mdt meeting on 25 August!

morning all 🥰 had a real down day yesterday as I'd had a scan Monday and oncology over the phone yesterday but with registrar who told me my scan results...

morning all 🥰 had a real down day yesterday as I'd had a scan Monday and oncol...

Newbery3

•2 years ago

10 Replies

mirvetuximab soravtansine

Hi my friends, I’m on my third recurrence and my Dr. is trying to get me approved for mirvetuximab soravtansine treatment. It is a drug that has not been...

Hi my friends, I’m on my third recurrence and my Dr. is trying to get me approv...

Louise62

•2 years ago

16 Replies

Different chemo side effects after surgery

I was diagnosed in March and had 3 cycles of carboplatin/paclitaxel chemo every 3 weeks. I had surgery in June - a hysterectomy and removal of my omentum and...

I was diagnosed in March and had 3 cycles of carboplatin/paclitaxel chemo every ...

Hattiem

•2 years ago

11 Replies

Tough day yesterday

Yesterday was a tough day, you know the deals you make with god, give me till and then I’ll go quietly. Well yesterday was my big day, my youngest son was 13...

Yesterday was a tough day, you know the deals you make with god, give me till an...

Maldive

•2 years ago

24 Replies

would like some reassurance please!

so a little about me ~ I had dermoid cyst removal which resulted in a tube being removed in 2006. In 2013 I was diagnosed with hormone negative,...

so a little about me ~ I had dermoid cyst removal which resulted in a tube be...

Kelb123

•2 years ago

15 Replies

PROMPT TRIAL

Hello Ladies Has anyone had any experience of, or knowledge of, the PROMPT immunotherapy trial currently being carried out in 4 hospitals in London...

Hello Ladies Has anyone had any experience of, or knowledge of, the PROMPT imm...

Bluemoon3

•2 years ago

30 Replies

Alternative/Additional treatment

Hello, adies. I just want to ask if anyone has tried alternative/additional treatment, like special diet, nutrition therapy? Has anyone of you visited a...

Hello, adies. I just want to ask if anyone has tried alternative/additional ...

Vilinew

•2 years ago

12 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2022

Is anyone on this clinical trial ACTOv

caelyx

Mom's CA is rising sharply

Prehab

mesh repair? [Thread contains photographs]

Good Morning 🌄 good news to start but need advice again lol 🥰🤣

Good Morning 🌄 good news to start but need advice again lol 🥰🤣

Allergic to chemo - starting rucaparib

I didn't think I would be back so soon.

appendix removal for BOTs

Hysterectomy following Mucinous Borderline OC

any tips?

Thank you!

Older women with stage 3c ovarian cancer

post 1st chemo

Losing my resolve and feeling defeated.

Nausea

Sore Areas

New insights into malignant gynaecological cancers and ferroptosis

CA125

Info. please, 4th Spring Booster Covid vaccine) And, starting NIRAPARIB drug too, soon?

Finally got my appointment for tomorrow

Ovacome Information Booklets 📖 📚 📗

waiting on scan results and been told I have to wait for mdt meeting on 25 August!

mirvetuximab soravtansine

Different chemo side effects after surgery

Tough day yesterday

would like some reassurance please!

PROMPT TRIAL

Alternative/Additional treatment

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2022

﻿Is anyone on this clinical trial ACTOv

caelyx

﻿Mom's CA is rising sharply

Prehab

mesh repair? [Thread contains photographs]

﻿Good Morning 🌄 good news to start but need advice again lol 🥰🤣

﻿Good Morning 🌄 good news to start but need advice again lol 🥰🤣

Allergic to chemo - starting rucaparib

I didn't think I would be back so soon.

﻿appendix removal for BOTs

Hysterectomy following ﻿Mucinous Borderline OC

﻿any tips?

Thank you!

Older women with stage 3c ovarian cancer

post 1st chemo

Losing my resolve and feeling defeated.

Nausea

﻿ Sore Areas

New insights into malignant gynaecological cancers and ferroptosis

CA125

Info. please, 4th Spring Booster Covid vaccine) And, starting NIRAPARIB drug too, soon?

Finally got my appointment for tomorrow

Ovacome Information Booklets 📖 📚 📗

﻿waiting on scan results and been told I have to wait for mdt meeting on 25 August!

mirvetuximab soravtansine

﻿Different chemo side effects after surgery

Tough day yesterday

﻿would like some reassurance please!

PROMPT TRIAL

﻿Alternative/Additional treatment

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Is anyone on this clinical trial ACTOv

Mom's CA is rising sharply

Good Morning 🌄 good news to start but need advice again lol 🥰🤣

Good Morning 🌄 good news to start but need advice again lol 🥰🤣

appendix removal for BOTs

Hysterectomy following Mucinous Borderline OC

any tips?

Sore Areas

waiting on scan results and been told I have to wait for mdt meeting on 25 August!

Different chemo side effects after surgery

would like some reassurance please!

Alternative/Additional treatment