Posts - My Ovacome | HealthUnlocked

My Ovacome

18,206 members•20,349 posts

All posts for May 2019

Got the cancer diagnosis

Hello everyone, Last week I had my second laparoscopy, the endometriosis professor agreed to do it. She took many biopsy’s, including intestines. As a...

Hello everyone, Last week I had my second laparoscopy, the endometriosis profess...

Aleksa1121

•5 years ago

5 Replies

Steroids

Diagnosed 11 years ago 2b. Had 7 lines of chemo.including 3 trials. Now been told it has spread to brain. On steroids to reduce swelling. Slight chance of more...

Diagnosed 11 years ago 2b. Had 7 lines of chemo.including 3 trials. Now been tol...

govanhill

•5 years ago

13 Replies

Duphaston is good or bad for long time

I took duphaston for 3 days two pills per day after 5 days I must get the periods as I had PCOS but one day in the cycle of pills I got one day period like...

I took duphaston for 3 days two pills per day after 5 days I must get the period...

CRDRBJV

•5 years ago

2 Replies

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Swollen node in breast

Just had scan as I had suspected blood clot in lung, but instead found a node in my left breast swollen to 13mm, anyone else had this and what was the...

Just had scan as I had suspected blood clot in lung, but instead found a node in...

Elfed

•5 years ago

1 Reply

Cancer granulation - belly button

Hi My mum has granulation coming through her belly button due to her peritoneal cancer. Is there anything we can ask the drs to do?

Hi My mum has granulation coming through her belly button due to her peritoneal ...

Inarticulate

•5 years ago

1 Reply

Relapse Post radical debulking and first line chemo treatment

Hi all, Apologies if this has been covered in previous posts, however, i couldn't find any information from what I've read thus far. Is there a specific type...

Hi all, Apologies if this has been covered in previous posts, however, i couldn'...

RomanZ

•5 years ago

9 Replies

Obstruction / blocked bowel - no surgery. Any advice - PLEASE

Hello - please does anyone have any advice at all. My mum had surgery yesterday for an obstruction but they couldn’t operate and said the cancer had spread too...

Hello - please does anyone have any advice at all. My mum had surgery yesterday ...

eh11g11

•5 years ago

15 Replies

Blood Results

Hi Quick update. Just received blood test results from GP. All within usual range except CA125 which has gone from 35 to 43. Seeing consultant later today, but...

Hi Quick update. Just received blood test results from GP. All within usual rang...

Hidden

•5 years ago

12 Replies

CT Results in. Not what we wanted

My mom has just finished her 6 infusions of carbo/taxol and was optimally debulked for advanced ovarian cancer. Today we were certain that she would get an NED...

My mom has just finished her 6 infusions of carbo/taxol and was optimally debulk...

Lind58

•5 years ago

18 Replies

First stages what to expect

First few steps. We have been told without a biopsy that my Mother most probably has ovarian cancer. Everything seems to be taking forever. Appointments have...

First few steps. We have been told without a biopsy that my Mother most probably...

LittleMissMerit

•5 years ago

18 Replies

Seuna's Quest

Hi everyone - I have joined this forum in commemoration of my wife who passed away exactly 18 months ago today. She was active on the forum under an assumed...

Hi everyone - I have joined this forum in commemoration of my wife who passed aw...

Seunasquest

•5 years ago

10 Replies

No question...bereavement

I just wanted to let you know GrannyGrumps passed away on 12 April 2019. She had refused treatment from May 2017. Good luck & best wishes Husband Alan

I just wanted to let you know GrannyGrumps passed away on 12 April 2019. She had...

grannygrumps

•5 years ago

15 Replies

urinary symptoms

hi. Has anyone had cystitis like symptoms as a sign of recurrence? I was diagnosed in 2011 with stage 1c. Had surgery and chemo and all has been well since...

hi. Has anyone had cystitis like symptoms as a sign of recurrence? I was diagn...

katefernhill

•5 years ago

7 Replies

Ovacome Members Day 18 May 2019

Dear All This is a reminder that our next Members Day is taking place on 18 May at St Luke's Community Centre, 90 Central Street, London, EC1V 8AJ,...

Dear All This is a reminder that our next Members Day is taking place on 18 May ...

OvacomeSupport

Partner•5 years ago

3 Replies

Ovarian cyst

Hi all I just wanted to see if anyone one else is going through the same thing as me and if you had a diagnosis well it started in July 2017 my periods just...

Hi all I just wanted to see if anyone one else is going through the same thing a...

Lotty75

•6 years ago

4 Replies

Roller Coaster

I finished Avastin at end of October 2018 which kept the beast at bay. I was due to start Carboplatin and Caelyx in March but before that hospitalised for...

I finished Avastin at end of October 2018 which kept the beast at bay. I was due...

janmark43

•6 years ago

15 Replies

Itchy skin

I have just developed a really itchy skin especially around my middle. When I scratch it there it feels all the nerve endings are alive, which is painful....

I have just developed a really itchy skin especially around my middle. When I sc...

Carpag

•6 years ago

14 Replies

Trial Results

Hi all, just to let you know I've had some feedback on the ICON8 trial. This trial was to see if weekly chemo had better or worse results than 3 weekly chemo....

Hi all, just to let you know I've had some feedback on the ICON8 trial. This tri...

ZenaJ

•6 years ago

17 Replies

Recommendation, not totally irrelevant to us!

We've just been to see Mark Thomas in 'Check up: the NHS at 70'. He has done deep research, including shadowing Doctors in A&E, talking to Health Secretaries...

We've just been to see Mark Thomas in 'Check up: the NHS at 70'. He has done de...

Rachael47

•6 years ago

7 Replies

Pelvic abdominal pain, discomfort

Does pelvic or abdominal pain associated with OC increase over time or does it remain intermittent

Does pelvic or abdominal pain associated with OC increase over time or does it r...

bcjaynes

•6 years ago

3 Replies

Niraparib/Zejula: 10 Days in and So Far So Good

Hi everyone, Hope you are all feeling well and enjoying what you can of this Spring weather. So, I began my PARP last Wednesday, 24 of April, 2019. I was...

Hi everyone, Hope you are all feeling well and enjoying what you can of this Spr...

Lindaura

•6 years ago

29 Replies

Symptoms and fears

Had minor and intermittent andominal/pelvic pain and very frequnt urination. Had lots of tests - CA 125, ultrasound, ct scan, mri, X-ray and also cystoscopy...

Had minor and intermittent andominal/pelvic pain and very frequnt urination. Had...

bcjaynes

•6 years ago

3 Replies

Anxious again

Thank you for your replies , unfortunately I only managed 2 replies to you for your kind responses and something went amiss with the technology and I was...

Thank you for your replies , unfortunately I only managed 2 replies to you for y...

Amerthist

•6 years ago

5 Replies

Anxiety again

Hi everyone. I have been following the wise words of everyone for some time and have benefited from your knowledge and experience this has been very helpful. I...

Hi everyone. I have been following the wise words of everyone for some time and ...

Amerthist

•6 years ago

12 Replies

Granular breast tissue

Hi everyone, So I went to see my doctor today because I've been experiencing a deep ache at the top of my right breast and into my armpit. I keep wondering if...

Hi everyone, So I went to see my doctor today because I've been experiencing a d...

Humbug12

•6 years ago

6 Replies

Not so good news today

So I have been on Olaparib since August, ca125 increased from 30 to 32 in Feb no major panic I was told, as I had been stressing last year whilst on chemo...

So I have been on Olaparib since August, ca125 increased from 30 to 32 in Feb no...

Lorent

•6 years ago

31 Replies

Ova to You..Leicester 29 May 2019

Dear All This is to invite you to join us for an afternoon of information and support in Leicester, around living with ovarian cancer. It will be taking...

Dear All This is to invite you to join us for an afternoon of information and su...

OvacomeSupport

Partner•6 years ago

Be the first to reply

Thanks heaps

Thank you to everyone who signed our petition, and for your very kind comments. We are so grateful for your support. Kind Regards Therese

Thank you to everyone who signed our petition, and for your very kind comments. ...

TarbonNZ

•6 years ago

1 Reply

Update - another twist in the tale

Hello all It’s been a while since posting but I seem to have been in hospital having so many tests being poked and prodded - finally have been accepted onto...

Hello all It’s been a while since posting but I seem to have been in hospital ha...

Hopefulgal1

•6 years ago

50 Replies

Bowel issue update

Following my previous post about having difficulty eating and wondering whether it was ascites. Saw my doctor this morning and following an abdominal...

Following my previous post about having difficulty eating and wondering whether ...

Scotty6

•6 years ago

11 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2019

Got the cancer diagnosis

Steroids

Duphaston is good or bad for long time

Swollen node in breast

Cancer granulation - belly button

Relapse Post radical debulking and first line chemo treatment

Obstruction / blocked bowel - no surgery. Any advice - PLEASE

Blood Results

CT Results in. Not what we wanted

First stages what to expect

Seuna's Quest

No question...bereavement

urinary symptoms

Ovacome Members Day 18 May 2019

Ovarian cyst

Roller Coaster

Itchy skin

Trial Results

Recommendation, not totally irrelevant to us!

Pelvic abdominal pain, discomfort

Niraparib/Zejula: 10 Days in and So Far So Good

Symptoms and fears

Anxious again

Anxiety again

Granular breast tissue

Not so good news today

Ova to You..Leicester 29 May 2019

Thanks heaps

Update - another twist in the tale

Bowel issue update

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