blackouts: I have Lupus and APS it’s all under... - LUPUS UK

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blackouts

Jolevans profile image
10 Replies

I have Lupus and APS it’s all under control with steroids and warfarin. I’m trying to lose weight so am going to aqua fit more often. I quite often get giddy when I overdo it but recently my eyesight has gone as though I have bright lights shining in my eyes. I was wondering if anyone else has this issue?

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Jolevans profile image
Jolevans
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10 Replies
soul22 profile image
soul22

Nice meet you.i experience same sytpoms on moving after standing up or bending down.

Low blood pressure so far is found

Jolevans profile image
Jolevans in reply to soul22

Hi thanks for your response the GP and optician can’t find anything wrong so I just have to put it down to something else I have to contend with.

soul22 profile image
soul22 in reply to Jolevans

Bless you yes sometimes happens sorry hear this

Simplehonesty72 profile image
Simplehonesty72

I have the same symptoms, too. Moving quickly, in direct sunlight, or changing positions aggravates my eyes. I have my eyes checked every six months because of the meds and lupus.

Jolevans profile image
Jolevans in reply to Simplehonesty72

Hi thanks for your response the GP and optician can’t find anything wrong so I just have to put it down to something else I have to contend with.

Krazykat26 profile image
Krazykat26

Are you photosensitive? I am and indoor lighting as well as sunlight causes these symptoms. I have to wear a wide brimmed hat and sunglasses whenever I have to venture into brightly lit places. I recently looked at our local swimming pool and all the lights were glaring even from the device I was using! You say your lupus is under control so you don't feel like you're flaring as such so I would say try wearing a wide brimmed hat whilst you're in the pool..maybe sunglasses too. 🤠😎💜🌈🦋

Jolevans profile image
Jolevans in reply to Krazykat26

Hi, I’m not photosensitive. I will have a look at the lighting next time thanks, but don’t think glasses and a hat will be feasible whilst doing aquafit! 😆

soul22 profile image
soul22

Hi could it be diabetes insipudus have they tested you for that it's not type or two and causes what u and I described ik going get tested to another member mentioned it.

Here's link

niddk.nih.gov/health-inform....

Jolevans profile image
Jolevans in reply to soul22

Thank you for the information. I am on medication for an over active bladder. So may be they have Mia diagnosed me. I will look into it.

soul22 profile image
soul22 in reply to Jolevans

Your welcome but you could possibly be both I definitely am I leak due to huge hernia damaged muscle strength.Bless u all best

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