Colonoscopy update and thanks: Well I survived! I... - LUPUS UK

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Colonoscopy update and thanks

lupime profile image
15 Replies

Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep - both the drinking of the foul tasting stuff and the effect it has - Blimey!!!!! Had to wait at bit longer in recovery as I was still unsteady ( I have inner ear dysfunction anyway) and felt travel sick on way home. Had some weird dreams which I think was the fentanyl I had as well as Midazolam.

Any way to cut a long story short - the out come was diverticular disease ( not diverticulitis - they are different). The management seems to be dietary. Well I can't get anymore fibre into my diet ( I am a vegetarian who eats loads of fruit veg nuts and pulses) so I think making sure I get enough liquid down in a day is the thing to do, I am not always good at that.

A big thank you to all who replied to my original post, it was so helpful. I do love this forum. My very best wishes to everyone.

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15 Replies
RosieA profile image
RosieA

I'm so glad that it went so well for you and thank you for letting us know. It's not as bad as we imagine- but the prep is another world. Were you suspecting the diagnosis? It seems like you have a plan so fingers crossed that it helps. I agree the forum is great, there are a lot of thoughtful and well informed people and it has helped me during difficult times. Have a relaxing weekend. x

lupime profile image
lupime in reply toRosieA

Thank you Rosie. Yes I had been wondering about diverticulosis. x

Spotty-ewe profile image
Spotty-ewe

Well done coming through it all, and a relief to know what the problem is. Thanks for letting us know how it went. Good luck with upping the fluid intake - I’m not so good at that myself because what goes in must come out which means hunting for a toilet if I’m out and about.🥴 Not easy. Take care. Xx

lupime profile image
lupime in reply toSpotty-ewe

I have put a 500ml water bottle in the living room to help me keep on track and I will just have to see how it goes.

Spotty-ewe profile image
Spotty-ewe in reply tolupime

🤞👍🏻👍🏻

MusicalFurbaby profile image
MusicalFurbaby

That is so great Lupime! I’m so glad everything went smoothly and that you now have a clear answer for what is going on. Hope you get a good treatment plan going forward, even if the main takeaway is drinking more water. 😊 Glad you got through the bowel prep too—not for the fainthearted, eh?!

lupime profile image
lupime in reply toMusicalFurbaby

The very thought of it now gives me the heeby jeebies!

MusicalFurbaby profile image
MusicalFurbaby in reply tolupime

Same! 🙋‍♀️😁

CecilyParsley profile image
CecilyParsley

so very pleased you got through it. So sorry that you have diverticular disease. I too am a vegetarian and drink litres of water yet constipation is a side effect of the opioids and steroids. I hope you find something that helps you xx

lupime profile image
lupime in reply toCecilyParsley

Thank you Cecily. xx

Haylz2109 profile image
Haylz2109

I'm so glad to hear it went well for you! Sorry to hear that you have diverticular disease but hopefully now they can treat it correctly for you ! Hope you have a nice weekend xx

lupime profile image
lupime in reply toHaylz2109

Thank you Haylz xx

Potatoheat profile image
Potatoheat

Glad to hear you survived and have definite diagnosis. Hope you find a suitable answer to the diet aspect.

lupime profile image
lupime in reply toPotatoheat

Thank you Potatoheat.

fabwheelie profile image
fabwheelie

Thanks for the update. With diet certain types of fibre always seem to make me worse, I have a theory that indigestible fibre sits in the diverticula pockets and triggers my lupus inflammatory reactions. Some things like seeds , apple skins, and sweetcorn are the worse culprits for me personally. I try having a few prunes each day as a really good natural fibre source ( 2 to 5 a day is about the right amount). If you get tinned prunes they keep very well in a plastic container in the fridge once opened

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