Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2022

low neutrophils

hi everyone Hope you are all having a good Saturday. A quick question. I have been having weekly methotrexate injections but recently my neutrophil count...

hi everyone Hope you are all having a good Saturday. A quick question. I have...

On10n

•2 years ago

2 Replies

calf and toes cramps

hi everyone, I have been taking steroid prednisolone for a lupus flare up which occurred after covid and now post covid. I have been getting the worst leg...

hi everyone, I have been taking steroid prednisolone for a lupus flare up which ...

Geeforce99

•2 years ago

21 Replies

Contraception methods used with Lupus

Hi all A rather personal question today but if I can't ask it here then I'm not sure where I can. I currently have m=Merina coil fitted that is coming up to...

Hi all A rather personal question today but if I can't ask it here then I'm not...

SunshineFarm

•2 years ago

5 Replies

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Visiting people in hospital

Does anyone know if those of us on immunosuppression drugs are allowed to visit poorly people in hospital? Thanks, Sarah

Does anyone know if those of us on immunosuppression drugs are allowed to visit...

SLS2103

•2 years ago

4 Replies

Attention!

Hello everyone, Hope your all feeling better now its cooler and i hope everyone whose had covid recently is better too. Just wanted to share this pic of...

Hello everyone, Hope your all feeling better now its cooler and i hope every...

misty14

•2 years ago

21 Replies

Does your child have lupus? Research to understand the usefulness of online peer support groups and forums

This research is being carried out by a postgraduate student studying for a Doctorate in Clinical Psychology at University College London. If you would like...

This research is being carried out by a postgraduate student studying for a Doct...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Share your experiences of COVID-19 and NHS treatment for the NICE appraisal

NICE is appraising COVID-19 treatments to evaluate whether the NHS should continue providing them for high-risk people in the longer-term. LUPUS UK will be...

NICE is appraising COVID-19 treatments to evaluate whether the NHS should contin...

Paul_Howard

Partner•2 years ago

9 Replies

Nominate lupus UK

Hi lovely people. I hope you are all as well as you can be and rejoicing in the slightly cooler weather and much needed rain. I had an email today from the...

Hi lovely people. I hope you are all as well as you can be and rejoicing in the ...

CecilyParsley

•2 years ago

12 Replies

Frustrated!

have recently been diagnosed with Lupus (April22) has anyone a solution to very painful fingers and toes…..cannot use fingers easily …PLUS mouth ulcers...

have recently been diagnosed with Lupus (April22) has anyone a solution to very ...

provence2022

•2 years ago

1 Reply

’not significant autoimmune involvement’? Help! NHS rheumatologist now wants to discharge me? Positive ANA

hi, I finally thought I’d get some answers & more importantly help! private rheumy was pretty sure it ‘all pointed towards lupus’ Could only afford initial...

hi, I finally thought I’d get some answers & more importantly help! private rhe...

Frenchfancy

•2 years ago

20 Replies

confused re blood results

please help! I have many classic lupus (or rheumatoid arthritis) symptoms inc joint pain, skin rashes esp after being in sun, tingling in fingers, fatigue and...

please help! I have many classic lupus (or rheumatoid arthritis) symptoms inc j...

JFN1

•2 years ago

12 Replies

Evusheld Update

Last week the Department for Health and Social Care said to the BBC that it would not be purchasing Evusheld for immunosuppressed people who do not have...

Last week the Department for Health and Social Care said to the BBC that it woul...

Paul_Howard

Partner•2 years ago

2 Replies

Good news? Is this Moderna SpikeVax? Think a better jab!?

https://www.bbc.co.uk/news/health-62548336 Hi all, I had the Moderna SpikeVax last month (5th jab) and certainly had some strong reactions (came off...

https://www.bbc.co.uk/news/health-62548336 Hi all, I had the Moderna SpikeVax l...

DJK99

•2 years ago

4 Replies

does anyone have TMJ?

I have been having chronic migraines for a year now - around the same time I started having a flare. My lupus indicators went from 100 - 350 and have stayed...

I have been having chronic migraines for a year now - around the same time I sta...

ElroyM

•2 years ago

13 Replies

When blood tests don't show the reality in lupus

im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me...

im sure there are so many of you who have blood test after blood test that does...

LottieLou96

•2 years ago

2 Replies

year long flare after vaccine

has anyone been affected by the vaccine? my lupus has been relatively under control for ten years. Following the second vaccine my lupus indicators went from...

has anyone been affected by the vaccine? my lupus has been relatively under con...

ElroyM

•2 years ago

6 Replies

58 Male, Hashimoto's and MCTD

Hello all, I'm new here, live in Florida and am a former athlete. At age 33, I was Diagnosed w/Hashi's after being hospitalized with Epstein Barr virus in 1997...

Hello all, I'm new here, live in Florida and am a former athlete. At age 33, I w...

Cujet

•2 years ago

13 Replies

Neutropenia and its effects.....

I was diagnosed with lupus by my rheumatologist in 2020. Since 2016 I have had low iron levels on numerous occasions, which was initially treated with oral...

I was diagnosed with lupus by my rheumatologist in 2020. Since 2016 I have had ...

Ophelia1

•2 years ago

6 Replies

connective tissues & lupus flare

Hi everyone, hope everyone is coping the heat is not good here in UK, I have recently and still am having issues with my left eye which is dry and painful, eye...

Hi everyone, hope everyone is coping the heat is not good here in UK, I have rec...

Geeforce99

•2 years ago

17 Replies

Oestriol and Lupus

I am 71 and have had recurrent UTIs. My GP has prescribed me Oestriol cream and told to use it daily, on my genitals, to help with the post-menopausal...

I am 71 and have had recurrent UTIs. My GP has prescribed me Oestriol cream ...

skylark15

•2 years ago

35 Replies

struggling with my eyes

hi all hope all are ok. I’ve been struggling with my eyes a lot this month, I don’t know if I have Söjgren (sorry I can’t seem to spell it ok) but I bought...

hi all hope all are ok. I’ve been struggling with my eyes a lot this month, I do...

EG74

•2 years ago

22 Replies

Survey for women in Wales - share what is important to you, your life, your health and your family

The Minister for Health and Social Services has requested the production of a Women’s Health Plan for Wales. The intention is that the Plan should help reduce...

The Minister for Health and Social Services has requested the production of a Wo...

Chanpreet_Walia

LUPUS UK•2 years ago

6 Replies

PIP - Petition for a review of how it's assessed

Hello everyone, I know many have posted on here detailing distress at how they are treated by the PIP assessment process. I did approach a member of...

Hello everyone, I know many have posted on here detailing distress at how they ...

sunrise

•2 years ago

4 Replies

lupus rash

this is from being outside 40mins today I have been suffering a few years now my doc mentioned lupus I'm not too sure I am waiting on my dermatologist app...

this is from being outside 40mins today I have been suffering a few years now m...

Sjj1810

•2 years ago

11 Replies

lupus rash

this is from being outside 40mins today I have been suffering a few years now my doc mentioned lupus I'm not too sure I am waiting on my dermatologist app...

this is from being outside 40mins today I have been suffering a few years now m...

Sjj1810

•2 years ago

3 Replies

La Roche sunscreen questions

Guys, I've heard a lot of good things on here about La Roche sunscreen. I have greasy skin without sunscreen so am really after one that doesn't make me look...

Guys, I've heard a lot of good things on here about La Roche sunscreen. I have g...

SurferGuy

•2 years ago

21 Replies

Is this Lupus or Rosacea? (Photo)

Hi, I have had my face cheeks permanently inflamed for two years now. No pain, no redness, no dryness.. just inflammation on each side of the nose like on the...

Hi, I have had my face cheeks permanently inflamed for two years now. No pain, ...

Rrr21

•2 years ago

8 Replies

SLE and Mental Health

Hi Everyone, I have been really struggling recently, and I think it’s a mix between my SLE and my mental health surrounding my illness. I am only 20 years...

Hi Everyone, I have been really struggling recently, and I think it’s a mix be...

Lioness12267

•2 years ago

15 Replies

Caffeine and medication interaction

Hi all. Hope you are all coping with the heat and sun! I learned a surprising fact yesterday which was to not take vitamins with caffeine because it...

Hi all. Hope you are all coping with the heat and sun! I learned a surprisin...

Treetop33

•2 years ago

9 Replies

update on horrendous flushes

Hi everyone. I recently asked on here about horrendous full body flushing when increasing my dose of azathioprine and got some helpful feedback. Basically I...

Hi everyone. I recently asked on here about horrendous full body flushing when i...

cakerbaker

•2 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2022

low neutrophils

calf and toes cramps

Contraception methods used with Lupus

Visiting people in hospital

Attention!

Does your child have lupus? Research to understand the usefulness of online peer support groups and forums

Share your experiences of COVID-19 and NHS treatment for the NICE appraisal

Nominate lupus UK

Frustrated!

’not significant autoimmune involvement’? Help! NHS rheumatologist now wants to discharge me? Positive ANA

confused re blood results

Evusheld Update

Good news? Is this Moderna SpikeVax? Think a better jab!?

does anyone have TMJ?

When blood tests don't show the reality in lupus

year long flare after vaccine

58 Male, Hashimoto's and MCTD

Neutropenia and its effects.....

connective tissues & lupus flare

Oestriol and Lupus

struggling with my eyes

Survey for women in Wales - share what is important to you, your life, your health and your family

PIP - Petition for a review of how it's assessed

lupus rash

lupus rash

La Roche sunscreen questions

Is this Lupus or Rosacea? (Photo)

SLE and Mental Health

Caffeine and medication interaction

update on horrendous flushes

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2022

low neutrophils

calf and toes cramps

Contraception methods used with Lupus

﻿Visiting people in hospital

﻿Attention!

Does your child have lupus? Research to understand the usefulness of online peer support groups and forums

Share your experiences of COVID-19 and NHS treatment for the NICE appraisal

Nominate lupus UK

Frustrated!

’not significant autoimmune involvement’? Help! NHS rheumatologist now wants to discharge me? Positive ANA

confused re blood results

Evusheld Update

Good news? Is this Moderna SpikeVax? Think a better jab!?

does anyone have TMJ?

﻿When blood tests don't show the reality in lupus

year long flare after vaccine

58 Male, Hashimoto's and MCTD

Neutropenia and its effects.....

connective tissues & lupus flare

﻿Oestriol and Lupus

struggling with my eyes

Survey for women in Wales - share what is important to you, your life, your health and your family

PIP - Petition for a review of how it's assessed

﻿lupus rash

﻿lupus rash

La Roche sunscreen questions

Is this Lupus or Rosacea? (Photo)

SLE and Mental Health

Caffeine and medication interaction

update on horrendous flushes

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Visiting people in hospital

Attention!

When blood tests don't show the reality in lupus

Oestriol and Lupus

lupus rash

lupus rash