Hi Everyone,
I have been really struggling recently, and I think it’s a mix between my SLE and my mental health surrounding my illness.
I am only 20 years old and I feel as though my life consists of different pills and keeping an eye on my health constantly and I’m struggling with it.
I was diagnosed in December last year and ever since I feel like it’s all been down hill, I feel Unwell all the time and I have had lots of different medications such as methotrexate which helped for a while until I had to stop due to my blood platelets being to low to then restarting them but I was so ill whilst taking them so now I need to take hydrochloquine (not sure if that’s spelt correctly) which did not agree with me at all when I took it before.
I had an appointment with my specialist last week and to be honest I felt as though they just dismissed everything I was saying, I’ve had so many issues regarding my lupus and I feel like I’m getting no support.
I used to be a care assistant and I had to leave my job because I just wasn’t well enough for it, and now I’m just stuck in the house all the time and it’s actually quite depressing. Everybody thinks I’m living a great life not working and getting to stay home with my daughter but it’s not great, my house has just been put to the side completely, I have a huge build of washing to do and I think it’s cause I’m struggling both emotionally and physically.
to be perfectly honest because I’m not working I’m relying on benefits and I struggle to do the whole day out kinda things because I simply cant afford to do it, as stupid as it sounds, I can barely afford petrol for my car to drive to simple places.
I’m sorry for the long post, but I just wondered if anyone else really struggled mentally whilst having an illness like this? Or If I was just over exaggerating