update on horrendous flushes: Hi everyone. I... - LUPUS UK

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update on horrendous flushes

cakerbaker profile image
8 Replies

Hi everyone. I recently asked on here about horrendous full body flushing when increasing my dose of azathioprine and got some helpful feedback. Basically I was started on 25mg and only upped to 50mg but felt like I was on fire. I had to have 3-4 showers a day and it was horrendous!. I tried my rheumatology nurse who was useless and quite rude actually, I then got to talk to my consultant who said he hadn’t heard of this before. He advised that I needed to up my dose and that if it got worse it was the meds.....

Well I am on holiday and so will up my dose when I am back BUT the flushes have all but stopped. AMAZING! What’s changed? I got another prescription and these ones are a different brand and white, the problem ones were orange. That is the only difference I can find. So if anyone develops something similar,it might be worth looking at changes as subtle as this.

Thank you all for your support. I am struggling a bit but knowing I can ask anything here is so helpful x

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8 Replies
PMRpro profile image
PMRpro

The question could well be - what is in the orange bit????

cakerbaker profile image
cakerbaker in reply to PMRpro

I know and that's what I aim to discover. 👍

LalSD profile image
LalSD

Great to hear the side effect has been sorted. Who are the both suppliers? Orange and white ones? I also have a similar reaction to two other supply of medicines, and one supplier makes all the difference. Have a lovely day…

cakerbaker profile image
cakerbaker in reply to LalSD

Thank you for you reply and I am sorry that you have the same problem. I am definitely keeping that supplier on my no go to list. Have a lovely day too ☺️

Life_of_Riley profile image
Life_of_Riley

I take azathioprine and found that I had 2-3 weeks of very unpleasant side effects with every dose increase. Now I've reached my "final" dose all has settled and side effects are tolerable. However I have recently been given a different brand and I now have unpleasant side affects again. I hope you're able to find a brand that works for you and can then specify to you doctor/pharmacy what brand you need.

cakerbaker profile image
cakerbaker in reply to Life_of_Riley

Hey. Thank you for your reply. I am sorry to hear about the side effects that you experienced with every dose that must have been awful. That's why I have chosen to delay mine until I return from holiday. Nice to know it settles though. Interesting the local rheum nurse has never heard of it though.

I hope you are now as well as possible. Have a good week ☀️

CecilyParsley profile image
CecilyParsley

Amazing. I am so pleased that you are feeling better and able to enjoy your holiday. Different brands of drugs can make a huge difference. You should let your GP/ pharmacy know that you have an allergy to that particular brand so that you don’t get prescribed it again. Enjoy the rest of your holiday xx

cakerbaker profile image
cakerbaker

Thank you

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