Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for October 2020

Recent blood test advice please

Hi and sorry I know this has been asked but I can’t find the pathology links - I’ve just had private blood test results. ANA positive, was in January when had...

Hi and sorry I know this has been asked but I can’t find the pathology links - I...

Hidden

•4 years ago

5 Replies

Pausing of Sheilding - Renal Letter

Hey all Hope everyone is coping in mad times. Just thought I'd ask if anyone has received a letter regarding the pausing of Sheilding? I have come home from...

Hey all Hope everyone is coping in mad times. Just thought I'd ask if anyone has...

MOOG144

•4 years ago

2 Replies

Lupus & Coronavirus (COVID-19) - UPDATED 15/10/2020

We've just published an update to our information and guidance about lupus and COVID-19 to account for the new measures announced this week....

We've just published an update to our information and guidance about lupus and C...

Paul_Howard

Partner•4 years ago

3 Replies

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Cuteness with a chuckle.

Hello everyone My pic this week hopefully will give you at least a smile. Thought we all could do with it as our lives become more challenging again. Keep...

Hello everyone My pic this week hopefully will give you at least a smile. Thoug...

misty14

•4 years ago

22 Replies

Pip cut benefit by 50%. Lied in report

I had a PIP assessment 4 months early, which seemed strange. I had 4 operations last year, including the removal of a kidney for stage 4 cancer and a reversed...

I had a PIP assessment 4 months early, which seemed strange. I had 4 operations...

Iona467

•4 years ago

13 Replies

A little update on my previous post and many thanks to those who responded.

Slightly more awake/ able today so phoned GP surgery after a very long wait finally got through to a very tired and stressed receptionist. In between saying...

Slightly more awake/ able today so phoned GP surgery after a very long wait fina...

Boudica1

•4 years ago

5 Replies

Advice for appointment next week

Evening all, I hope you are well, I’m having a little anxiety about my appointment next week this post is probably going to be a long one so apologies in...

Evening all, I hope you are well, I’m having a little anxiety about my appointme...

Leenie0811

•4 years ago

13 Replies

Broken glasses

Hi all, I am going crazy. Yesterday got my reading glasses out of case, but as I did so I noticed that they were snapped in 2. I couldn't take them in to get...

Hi all, I am going crazy. Yesterday got my reading glasses out of case, but as I...

Cal66

•4 years ago

7 Replies

In the process of being diagnosed. Advice appreciated on symptoms

Hi everyone, I’m currently in the system and had some initial tests - due back at consultants on Friday. This all started over lockdown with painful swellings...

Hi everyone, I’m currently in the system and had some initial tests - due back a...

Daisyyellow

•4 years ago

1 Reply

New Rhuematologist

Hi Everyone! Thanks so much for your replies on the last post, i have been busy and so i just saw them and i appreciate all the advice! so i had my...

Hi Everyone! Thanks so much for your replies on the last post, i have been busy...

aimenkhattak27

•4 years ago

Be the first to reply

Updated government guidance for extremely vulnerable group

The governments website has been updated to give specific advice to the vulnerable....

The governments website has been updated to give specific advice to the vulnerab...

Jumper99

•4 years ago

1 Reply

Hydroxycholorquine and vitamin D3

Hi all, I want to know if it is safe to take hydroxycholorquine and vitamin D3 supplements? I am on 300mg of hydroxycholorquine per day and the vitamin D3...

Hi all, I want to know if it is safe to take hydroxycholorquine and vitamin D3 s...

AnnaVal

•4 years ago

8 Replies

2-3 Black women (aged 25-45) needed for an interview with Women's Health magazine ASAP

Women's Health magazine are looking to share a feature on lupus around Lupus Awareness Month. They are looking to interview two to three Black women (aged...

Women's Health magazine are looking to share a feature on lupus around Lupus Awa...

Chanpreet_Walia

LUPUS UK•4 years ago

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Please use AmazonSmile on Prime Day Deals (13/14th Oct)

If you shop Amazon Prime Day deals today and tomorrow, 13th & 14 October, you can make a difference! Simply shop via the link smile.amazon.co.uk/ch/1051610-0...

If you shop Amazon Prime Day deals today and tomorrow, 13th & 14 October, you ca...

Chanpreet_Walia

LUPUS UK•4 years ago

8 Replies

Do I need to shield once again?

Good morning all I hope that you are all well. I live in Liverpool and am unsure if I need to shield once again after yesterday's announcement. I work from...

Good morning all I hope that you are all well. I live in Liverpool and am unsure...

Mala23

•4 years ago

12 Replies

Heart problems

I’m just wondering whether anybody has had heart problems which could be caused by lupus I regurgitation which is becoming worse

I’m just wondering whether anybody has had heart problems which could be caused ...

kingsnorth

•4 years ago

16 Replies

Gastro problem

Good morning. Has any heard of Gastrointestinal lupus please? The consultant thinks I may have this. I’ve been having Gastro problems for over a year now....

Good morning. Has any heard of Gastrointestinal lupus please? The consultant thi...

djsema

•4 years ago

32 Replies

Gastric

Good morning. Has any heard of Gastrointestinal lupus please? I’ve having gastric problems for over a year now. I’m so scared of eating.

Good morning. Has any heard of Gastrointestinal lupus please? I’ve having gastr...

djsema

•4 years ago

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I give up with the hospital.

Totally had enough of hospital doctors. I understand that this Covid19 🏐🏉🏈🏐🏈🏀🏐🏉🏈s and put up with the totally inadequate phone consultations where I...

Totally had enough of hospital doctors. I understand that this Covid19 🏐🏉🏈🏐�...

Boudica1

•4 years ago

29 Replies

supermarket substitutes

One of the things covid has introduced me to is supermarket shopping. And while some give you the opportunity not to have substitutes others do not. I am...

One of the things covid has introduced me to is supermarket shopping. And while ...

suzannah16

•4 years ago

47 Replies

It’s Mira Monday 🐶🐶

Good morning everybody hope all had a good weekend- Mira has been to the groomers and had a proper Schnauzer cut, she looks so grown up but still my little fur...

Good morning everybody hope all had a good weekend- Mira has been to the groomer...

svfarmer

•4 years ago

29 Replies

Mood swings & hydroxychloroquine

I slammed the door as hard as I could and that’s just not me, losing my temper is not something I do, or not before HCQ. I feel so trapped - if I don’t take...

I slammed the door as hard as I could and that’s just not me, losing my temper i...

Divine_Frank

•4 years ago

33 Replies

An Otter Mum keeping her pup dry 😍

To make you all smile xx

CecilyParsley

•4 years ago

16 Replies

Lupus rash

Hello, I’m new here and I would like to ask about lupus rash. After a year of different diagnosis my GP and rheumatologist think I might have a lupus. I’m...

Hello, I’m new here and I would like to ask about lupus rash. After a year of di...

Lulka

•4 years ago

6 Replies

Azothiaprine and recurrent neutropenia MCTD

Hi all, I was diagnosed with MCTD this Feb. I have severe raynauds, pain and swelling in all of my joints and fatigue. Initially I received IM steroid and...

Hi all, I was diagnosed with MCTD this Feb. I have severe raynauds, pain and swe...

katiehopeful81

•4 years ago

11 Replies

From ana positive in past to ana negative??

I have always been ana positive in the past and my recent one was negative which puzzled the rheumatologist, as I have been suffering from increased...

I have always been ana positive in the past and my recent one was negative which...

Caramia1964

•4 years ago

2 Replies

Worried about prednisolone and azathioprine

Well had a face to face with rheumatology yesterday after feeling dreadful for most of this year. Had bloods , urine and stool specimens put away prior to...

Well had a face to face with rheumatology yesterday after feeling dreadful for m...

Caramia1964

•4 years ago

4 Replies

Struggling in new workplace

Hi all, I haven’t been on here for a while since I’ve been back to work. As I work in healthcare sector, I’ve been redeployed to another ward(previous ward has...

Hi all, I haven’t been on here for a while since I’ve been back to work. As I wo...

Sezvic

•4 years ago

9 Replies

Blood thinner and infection

Hi there, Has anyone found being on blood thinners makes having viruses and bacterial infections worse? I usually cope well enough with my lupus colds, flus...

Hi there, Has anyone found being on blood thinners makes having viruses and bact...

LilyMistri2

•4 years ago

4 Replies

Does this look like a lupus rash?

Hello, I hope everyone is doing great! I've never had any symptoms (no hair loss, joint pains, fever, fatigue etc.) and I only showed positive ANA after a...

Hello, I hope everyone is doing great! I've never had any symptoms (no hair loss...

FF96

•4 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2020

Recent blood test advice please

Pausing of Sheilding - Renal Letter

Lupus & Coronavirus (COVID-19) - UPDATED 15/10/2020

Cuteness with a chuckle.

Pip cut benefit by 50%. Lied in report

A little update on my previous post and many thanks to those who responded.

Advice for appointment next week

Broken glasses

In the process of being diagnosed. Advice appreciated on symptoms

New Rhuematologist

Updated government guidance for extremely vulnerable group

Hydroxycholorquine and vitamin D3

2-3 Black women (aged 25-45) needed for an interview with Women's Health magazine ASAP

Please use AmazonSmile on Prime Day Deals (13/14th Oct)

Do I need to shield once again?

Heart problems

Gastro problem

Gastric

I give up with the hospital.

supermarket substitutes

It’s Mira Monday 🐶🐶

Mood swings & hydroxychloroquine

An Otter Mum keeping her pup dry 😍

Lupus rash

Azothiaprine and recurrent neutropenia MCTD

From ana positive in past to ana negative??

Worried about prednisolone and azathioprine

Struggling in new workplace

Blood thinner and infection

Does this look like a lupus rash?

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