Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for November 2019

For all the crafty people out there....

Hi everyone 🤗 It's drab n dreary here which is the kind of weather that suits me 😹 I've been having real problems getting dressings for my hands n...

Hi everyone 🤗 It's drab n dreary here which is the kind of weather that suits m...

Krazykat26

•5 years ago

14 Replies

amlodipine side effects

has anyone had an irregular heartbeat since starting amlodipine and/or an increase in blood pressure? will the heartbeat go back to normal or is it permanent?...

has anyone had an irregular heartbeat since starting amlodipine and/or an increa...

suzannah16

•5 years ago

7 Replies

Bad fall

Hi all, I had a really bad fall 3 weeks ago. I have had really bad whiplash since then. I didn't go to AE because didn't want to be stuck there for hours...

Hi all, I had a really bad fall 3 weeks ago. I have had really bad whiplash si...

babssara

•5 years ago

26 Replies

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Sunflower Lanyard

I know that has been discussions about getting hold of a lanyard. I went to Sainsbury’s today and they had signs about the lanyards on the tills. I was sent...

I know that has been discussions about getting hold of a lanyard. I went to Sai...

Hamptons

•5 years ago

2 Replies

newby

Hi All, As a 53 yr old male just been diagnosed with lupas a few weeks back after being back and forth to the doctors for over 4 yrs with many ailment, extreme...

Hi All, As a 53 yr old male just been diagnosed with lupas a few weeks back afte...

Sloppy1

•5 years ago

3 Replies

Leeds rheumatologists

Hi, After another bad few days, I'mjust wondering if anyone does have any recommendations for private rheumatologists in Leeds at all? Thanks

Hi, After another bad few days, I'mjust wondering if anyone does have any recomm...

lg2019

•5 years ago

8 Replies

Share Your Lupus Experience, Make your Voice Heard

The Lupus Foundation of America has requested our help in sharing a message about their new global survey for people with lupus. The survey is part of the...

The Lupus Foundation of America has requested our help in sharing a message abou...

Paul_Howard

Partner•5 years ago

5 Replies

Greetings

Hey. I’m newly diagnosed with lupus. I’m looking for some others who understand. Feels lonely.

Hey. I’m newly diagnosed with lupus. I’m looking for some others who understand...

Gingerbread1

•5 years ago

4 Replies

Don’t patronise me 🤦🏼‍♀️😂🤪

Imagine when a doctor started to question my mental health I can see you had postnatal depression ( 11 years ago) I can see you have had anti depressants...

Imagine when a doctor started to question my mental health I can see you had p...

Buckley123

•5 years ago

6 Replies

Alzheimer’s medication???

Was just told by my neurologist that my cognitive memory test was not good and he wants me to start Alzheimer’s meds. Has this happened to anyone else? I’m 51...

Was just told by my neurologist that my cognitive memory test was not good and h...

Loopydroopy

•5 years ago

7 Replies

Brain farts:):):) & memory problems

Evening to all, Above is my better half, he is "thestorm". I know we work on time differences here, and I keep forgetting to apologize for my seemingly delayed...

Evening to all, Above is my better half, he is "thestorm". I know we work on tim...

thestorm

•5 years ago

15 Replies

Applications open: Spring 2020 Peer Leadership Academy

The Personalised Care Group is inviting applications from people with lived experience of personalised approaches to health and social care to participate in a...

The Personalised Care Group is inviting applications from people with lived expe...

Chanpreet_Walia

LUPUS UK•5 years ago

Be the first to reply

Does the winter give u rashes etc?

Hi all, I don’t know if you get rashes in the winter as I’ve not been diagnosed with the full blown skin Lupus until this summer although they thought I had...

Hi all, I don’t know if you get rashes in the winter as I’ve not been diagnosed ...

Teanna

•5 years ago

18 Replies

Malar Rash

Hi, This is my 1st time here, I haven’t yet got a diagnosis but my GP is certain I have SLE. My Malar rash appears almost everyday I seem to get to around...

Hi, This is my 1st time here, I haven’t yet got a diagnosis but my GP is certai...

Decoupage19

•5 years ago

7 Replies

Anyone who has SLE, and lung issues?

Hi guys, Me again.... I’m literally going insane tonight. My left upper back is throbbing which is always does near my lung... Does anyone have any...

Hi guys, Me again.... I’m literally going insane tonight. My left upper back...

Staceylouise90

•5 years ago

15 Replies

Cardiff Lupus Group Meeting Reminder - Sat 16th November 2019

Hi everyone, I just wanted to post a quick reminder that the next meeting of the Cardiff Lupus Support Group will take place on Saturday 16th November...

Hi everyone, I just wanted to post a quick reminder that the next meeting of th...

Paul_Howard

Partner•5 years ago

Be the first to reply

Is it MS as now having Strange new symptoms and am just wondering if anyone could pinpoint what it could possibly be.

What is wrong with me and how do I find out which illness I have when numerous drs and health care professionals clearly don’t have a clue. Am I ever going to...

What is wrong with me and how do I find out which illness I have when numerous ...

Hidden

•5 years ago

35 Replies

Mycophenolate

Hello everyone. I havent posted in a while. My baby girl is now nearly 2. How quick do time fly. I havent been well at all lately and working 3 days a week,...

Hello everyone. I havent posted in a while. My baby girl is now nearly 2. How q...

blondie22

•5 years ago

16 Replies

Fatigue is killing me

Please please any advice on addressing extreme fatigue . I’m sleeping for about 16 hrs a day and I’m still don’t feel rested . Please help I need to get past...

Please please any advice on addressing extreme fatigue . I’m sleeping for about ...

Harry19

•5 years ago

14 Replies

Is it safe to have a tattoo done?

Hi all. Can anyone tell me if it's advisable to have a tattoo (a discrete one I should add) if you have Lupus? I already have one on my ankle which I had done...

Hi all. Can anyone tell me if it's advisable to have a tattoo (a discrete one I ...

Lizziequink

•5 years ago

19 Replies

Job role downgrade

Hi everyone. I am thinking of requesting a regrade of my current job role because I am finding it too stressful and difficult to manage with my lupus (my main...

Hi everyone. I am thinking of requesting a regrade of my current job role becau...

MarkJT

•5 years ago

16 Replies

propranolol

Hi I've reached the 100mg in amitriptyline. The doc as given me the propranolol taken 3 times a day after day 2 I started getting weird sweats struggling to...

Hi I've reached the 100mg in amitriptyline. The doc as given me the propranolol ...

Hidden

•5 years ago

2 Replies

Low C4 - possible lupus/vasculitis?

Hi, I'm just wondering if anyone has any similar experiences as I'm going out of my mind with worry at the moment. About six weeks ago I developed a severe...

Hi, I'm just wondering if anyone has any similar experiences as I'm going out of...

lg2019

•5 years ago

32 Replies

What can trigger a flare?

I started with a cold about a week ago and it has got worse and worse. It just occurred to me today that it has triggered a lupus flare and that’s why I can’t...

I started with a cold about a week ago and it has got worse and worse. It just o...

Marley

•5 years ago

8 Replies

Jolting limbs

Trying to sleep but my jolting limb movements that had settled are now back? Anyone else ? Xx

Trying to sleep but my jolting limb movements that had settled are now back? An...

Buckley123

•5 years ago

43 Replies

Influenza A

Influenza A. This has become a problem all year round and is worse in Winter. I had the privilege of working with a Director of The World Health Organisation...

Influenza A. This has become a problem all year round and is worse in Winter. I ...

Melbourne-Girl

•5 years ago

4 Replies

Invisible diesease

I’m 46 got 3 children living with partner woke up one morning thinking I had a splinter in my index finger after several visits to walk in centres aswell as...

I’m 46 got 3 children living with partner woke up one morning thinking I had a s...

leighlfc

•5 years ago

7 Replies

Private consultations

Hi everyone . I posted a few months back after my gp told me they felt I had lupus , ana positive very elevated dsdna and lots of associated symptoms . I was...

Hi everyone . I posted a few months back after my gp told me they felt I had lup...

Harry19

•5 years ago

17 Replies

Raising A Little More Lupus Awareness

Hubby and I decided to have a few days in Keswick to relax after a strange week. I don’t know if I am suffering with Lupus fog, hearing problems or just...

Hubby and I decided to have a few days in Keswick to relax after a strange week....

Spotty-ewe

•5 years ago

16 Replies

Something I’ve seen and get a lot

My mother in laws said today don’t talk to me about your aches and pains today I have a cold 🤧 runny nose that is blocked after I told her my legs are weak !...

My mother in laws said today don’t talk to me about your aches and pains today I...

Buckley123

•5 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2019

For all the crafty people out there....

amlodipine side effects

Bad fall

Sunflower Lanyard

newby

Leeds rheumatologists

Share Your Lupus Experience, Make your Voice Heard

Greetings

Don’t patronise me 🤦🏼‍♀️😂🤪

Alzheimer’s medication???

Brain farts:):):) & memory problems

Applications open: Spring 2020 Peer Leadership Academy

Does the winter give u rashes etc?

Malar Rash

Anyone who has SLE, and lung issues?

Cardiff Lupus Group Meeting Reminder - Sat 16th November 2019

Is it MS as now having Strange new symptoms and am just wondering if anyone could pinpoint what it could possibly be.

Mycophenolate

Fatigue is killing me

Is it safe to have a tattoo done?

Job role downgrade

propranolol

Low C4 - possible lupus/vasculitis?

What can trigger a flare?

Jolting limbs

Influenza A

Invisible diesease

Private consultations

Raising A Little More Lupus Awareness

Something I’ve seen and get a lot

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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