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[Sloppy1]

Hi All, As a 53 yr old male just been diagnosed with lupas a few weeks back after being back and forth to the doctors for over 4 yrs with many ailment, extreme fatige being the greatest one, then the aching muscles, joints etc, lots of blood tests etc to be told there is nothing wrong with me, all in the mind, told it was anxiety etc, changed doctors then I had severe unexplained bruising both sided of my rib cage, they tested my blood for clotting, came back with ?? , a sharp eyed doctor that tested the blood put a ? against the results as the blood did not clot as is it should and asked my GP to have me tested for lupus, the blood had to be tested within 1 hour of giving the blood so this had to be done at the hospital, but took almost 3 weeks for the results to come back, as positive for lupas, now I am on anti imflamitaries for this meantime then have to go back in 12 weeks to be re tested, my GP says there are typically 3 stages, they are guessing by my past history I am in the middle somewhere, is this normal for lupas patients, also apart from the emotional side of things which is hard to accept, and still fresh what else lies in store for me?

[baba]

Sound like you may have had a positive results for "lupus anticoagulant", which is a test for "sticky blood"/Hughes syndrome rather than for Systemic Lupus Erythematous (SLE)/Lupus. The test is normally repeated in 12 week to exclude false positives.

For further information please see the following:

ghic.world/

healthunlocked.com/hughes-s...

This is from ghic.world website

"Currently, there are 3 blood tests used to diagnose Hughes Syndrome. As is so often the case in medicine, one test alone is insufficient. Unusually, in some cases patients with classical Hughes Syndrome, all 3 tests turn out negative. Many research groups are searching for newer tests or - the "Holy Grail" – a single test that replaces all 3!

1. Anticardiolipin antibody (aCL)• This relatively simple blood test is now performed worldwide and is the main diagnostic test for Hughes Syndrome.

2. "Lupus Anticoagulant" (LA)• This confusingly named blood test (it is not a test for lupus), like aCL, is useful, but also negative in 30% of cases of Hughes Syndrome.

3. Anti-Beta2-glycoprotein-1 (anti-B2GP1)• This is a newer test, now also becoming routine. 'beta 2-GP1' is a protein known to be important in clotting."

[Kevin53]

Hi Sloppy1. Ask Lupus UK for our free information pack. Best wishes Kevin

[Lizziequink]

Your experience sound all too familiar Sloppy. All the best with things. Lizzie