Raising A Little More Lupus Awareness

[Spotty-ewe]

Hubby and I decided to have a few days in Keswick to relax after a strange week. I don’t know if I am suffering with Lupus fog, hearing problems or just getting senile. But a few weird things happened last week. In a Yoga class we were doing a ‘down dog’ when the instructor suddenly said, “and now we go in Tesco’s”. What? I looked up and found everybody else in Intense Pose, not in Tesco’s! Then after a shower I couldn’t get my locker open so another lady had to go to reception to get somebody to help me. In the changing cubicle I couldn’t find my trousers and assumed I’d left them at home, but no I couldn’t have, I’d worn them over my leggings to Bannatynes that morning. I searched high and low and couldn't find them anywhere. So I had to put on my leggings again and went to reception to ask if the trousers had been handed in. No they hadn’t. Finally when I was searching for a hanky, there they were at the bottom of my bag!!🤦‍♀️ I felt so stupid and had to go and tell the girls at reception I’d found them. How embarrassing! To calm down I decided to have a cuppa with hubby who’d come to collect me before we went home. I put my handbag on the table and looked inside for my purse. Where was it? I asked hubby who didn’t have a clue. 🤷🏻‍♂️ Eventually when I lifted my handbag to put it on the empty seat next to me there it was underneath the bag! I must have lifted it out whilst talking to hubby and then put the bag on top of it! So you can see why I needed a relaxing weekend.

We had intended to attempt Catbells today but it was raining off and on all day (mainly on!) so we only walked to the base of the hill. I was wearing my Lupus UK T-shirt to raise some Lupus awareness but of course being hidden under my waterproof it was only visible in the 2 cafes where we stopped for a rest - Lingholm where Beatrix Potter stayed on holidays with her family and a cafe in Portinscale. I didn’t know if anybody really noticed until one lady approached me in the second cafe and asked about Lupus UK. Her daughter who lives in the States has Lupus and often feels quite alone with the disease as nobody really understands what she goes through. I told her about members of our forum being in USA and Australia as well as UK and her face lit up. I thought she was going to hug me when she thanked me and said she’d tell her daughter about it straight away. 😁 So hopefully we’ll be getting a new member soon. Thank goodness something went right at the end of this week!👍🏻

Wishing you all a good week! 🤗😘 Spotty💕

[Kevin53]

You too. Thanks for a magic update. Keep smiling. Best wishes Kevin

[Spotty-ewe in reply to Kevin53]

Thanks so much Kevin! 🤗

[Wendy39]

Ah, bless you! Your day of lost items could be so many of us I’m sure!!! So frustrating! I often tell my children, “I used to be clever!” Last week, I found my evening bag in the freezer. I’d used a couple of weeks before for a charity event but gave no idea how it ended up in the freezer! Lupus brain fog at its best / worst?!?!! At least I gave others a laugh, especially my family! x

[Spotty-ewe in reply to Wendy39]

Reassuring to know I’m not alone doing daft things. You must have had such a good time at the Charity event you were trying to ‘preserve’ the memory?? 🤣 I love your saying “I used to be clever!” Must remember that one. 😂Lovely hearing from you Wendy. Take care. 🤗😘

[Wendy39 in reply to Spotty-ewe]

You too!

I can't even blame alcohol, as I haven't had a drink in 2 1/2 years!!!!!

[Spotty-ewe in reply to Wendy39]

Haha! I’m the same and because of ow it makes me feel I can’t say I miss it either. Hugs 🤗😘

[thestorm]

Cheers to you Spott for reaching for bottoms, up.... Momentary laps of reason, pink-floyd. Thats what makes us all part of the club. Happy To hear that you are able to spread the news, and opened the door to this special place. The good Lord, but you in the right place, at the right time. So everything you did, and had happen to you was for a purpose, not in vein. Keep spreading the awareness, and I will keep praying for us all.. The effect you have on those you meet is wonderful. sending you my peace and blessings thestormxxx🤗

[Spotty-ewe in reply to thestorm]

Thanks Storm for your kind words and encouragement. We’ll definitely try Catbells another day and will keep trying to spread the word about this fabulous forum and awareness of Lupus so that hopefully we won’t have anybody else asking us if Lupus is our dog!!😂🤣 Thanks four your kind wishes Storm and I wish you all the best too. 🤗🙏🏻😘💕

[thestorm in reply to Spotty-ewe]

Ruff-Ruff, cat bells, dogs, with all of that, we need to keep spreading the word. Its good to laugh. Blessings and peace for all! thestormxx😎

[Spotty-ewe in reply to thestorm]

Many thanks Storm. 🤗😘💕

[Krazykat26]

The Lupusuk ninja strikes again!!! 😷😉

Wierd things happen when we've done the changing the clocks thing!!

Glad u got out in the open though with hubby n did some walking...it helps to get outdoors in order to ground oneself!!

U look good in your t-shirt Spotty..u couldn't be sitting in a cafe wearing a bill board..that would be very uncomfortable!! 😹😹

N the ol'..where's my purse thing?? Yeah nice one..did hubby get the bill?? 😉

Hope your ok 🤗xx

[Spotty-ewe]

Oh thanks Kat - of course the changing the clocks is the reason for all the weird things happening! 😂 Nice one - I like it! 👍🏻

I forgot to say we both forgot to take our walking poles to Keswick so had to buy new ones!!🤦‍♀️ But we’ve decided to leave these new ones in the car permanently so that can’t happen again. It was just as well we bought them because with the rain the paths/tracks were quite slippery in places and hubby slipped coming down a steep slope and if it wasn’t for the poles would have fallen flat. 😲

Haha, yes I suppose the T shirt was a bit like wearing a bill-board but certainly more comfortable as you say. But the lady who approached me really made my day because up until then I wasn’t sure anybody had noticed. 🙄🤪

And no, hubby didn’t get the bill for the cuppas. He had a sudden attack of hearing loss when I was panicking over my ‘lost’ purse.🤔 He wasn’t falling for that one! 😂

We are okay today thanks Kat. We walked about 6 miles but without the steroids I feel a bit stiff and tired today and slept most of the journey home.😴💤

Hoping you are okay Kat. Take care 🤗😘

[stiff19]

Hi lovely spotty hope you feeling better pics are good are you looking at cow or cakes 😂😂😂💐

[Spotty-ewe in reply to stiff19]

Hi Stiff,

Lovely to hear from you. I think the photo taken in Portinscale’s cafe was a case of one cow looking at another! 😂🤣

I’m over the walk I think thanks Stiff, but feeling a bit lousy (headache, nausea and fatigue) and down the last 2 days.🥺 Not sure if it is a flare or a virus but taking it easy either way.

Hoping you are still ‘felting’! Take care dear Stiff. 🤗😘🙏🏻

[stiff19 in reply to Spotty-ewe]

Oh spotty lovely you still have sense of humour when feeling down 🙏😂😂 glad you’re taking it easy.

Yes still felting, not so easy with one eye closing but at least my hands are not tooo painful at mo, it’s helped keep mind off things and got a reindeer and fox 🦊 done and he’s lovely and now doing a hare. I did a yoda for my son to hang on xmas tree at his request and he loved it 😂😂😂 now his partner wants Shaun the sheep to hang 😂😂

My daughter came up with the idea that we should each make something for each other for xmas so that should be fun 👍 I don’t overly enjoy xmas but I guess you can’t avoid it as it’s here every year 😩

Well done with your walk 🙌🏻 Rest well spotty , thinking of you x🙏💐🤗

[Spotty-ewe in reply to stiff19]

You’re a real warrior Stiff not letting your debilitating ailments stop you from your wonderful felting work. 👍🏻 A reindeer, fox and Yoda - sounds like you’ve been very busy. I bet Shaun will look great too - I’d love to see him when you finish.

Without children we don’t look forward to Christmas either but make the most of it with widowed and childless friends. Games of Brit Quiz after a hearty meal are good fun, but a bit ‘samey’ as the years roll by. 😜 Never mind at least we are still here to moan about it.😂

Thanks for your kind words and yes, I’ll take your advice and rest well. 😴💤 Take care Stiff 🤗🙏🏻😘