Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2019

Post surgery

For some reason I could not log in? Just got the Issue resolved. Anyway 5 weeks out of surgery and I am doing great! I would definitely recommend robotic...

For some reason I could not log in? Just got the Issue resolved. Anyway 5 weeks ...

Tiras

•5 years ago

17 Replies

Thrush

Hi there does anyone suffer from really bad thrush? I seem to be so sore inside all the time tht I can't let my husband near me as it feels like my insides...

Hi there does anyone suffer from really bad thrush? I seem to be so sore inside...

Tre123

•5 years ago

5 Replies

Thank you

I just wanted to thank everybody here who gave advice and expressed concern about my large dose of Hydroxychloroquine. I checked out the Amsler grid and to my...

I just wanted to thank everybody here who gave advice and expressed concern abou...

CecilyParsley

•5 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Hydroxychloroquine- No more from Zentiva..help!

Hi, I have taken Hydroxychloroquine for a number of years and only experienced problems when I was prescribed Quirinic. Apparently the coating of the tablet...

Hi, I have taken Hydroxychloroquine for a number of years and only experienced p...

Kaiser10

•5 years ago

21 Replies

Rheumatology appointment update

So my appointment at Chapel Allerton clinic was yesterday. Saw another different consultant and gave my usual list of symptoms, medication etc. After calling...

So my appointment at Chapel Allerton clinic was yesterday. Saw another different...

Happy43

•5 years ago

25 Replies

warning Weird rash picture

Does anyone get rashes like this? One can argue this its sunburn and the jury is still out on that. I got this after working outside on an overcast day with...

Does anyone get rashes like this? One can argue this its sunburn and the jury is...

JennaShi

•5 years ago

6 Replies

Just injected MTX for the first time

I was nervous to self inject so my hubby helped... I got this weird bad taste in my mouth but so far so good... hoping this helps get rid of some of the bad...

I was nervous to self inject so my hubby helped... I got this weird bad taste in...

OneLove2019

•5 years ago

5 Replies

Dermatologist needed

Hi, someone can refer me a good dermatologist in Peterborough please?

Mariana26

•5 years ago

1 Reply

Esa

Hi just a quick update from my last about nervous and anxious going for ESA. That date had to be cancelled, as I wanted it to be recorded. However, I have...

Hi just a quick update from my last about nervous and anxious going for ESA. Tha...

Cal66

•5 years ago

5 Replies

Possible Autoimmun or not? Should I be worried?

Greetings from Norway! Found this great forum and thought I’ll give it a go :) I’m really angry now, I had written this loooong post for you (a rant) and...

Greetings from Norway! Found this great forum and thought I’ll give it a go :) ...

Mirell

•5 years ago

5 Replies

Incredibly sore throat won't go away!

I seem to constantly have a sore throat. It's making me miserable as I don't even want to talk some days it hurts that much. I say it's my throat and I...

I seem to constantly have a sore throat. It's making me miserable as I don't eve...

cathylou

•5 years ago

31 Replies

Can MTX or steriods shrink inflammation in the breast?

I briefly mentioned this in another post as well, but I recently had a mammogram where I had no cysts whatsoever -- I mean, not one. This was odd seeing as I...

I briefly mentioned this in another post as well, but I recently had a mammogram...

OneLove2019

•5 years ago

6 Replies

Has anyone had a doctor treat their Auitommune Disease like a mental disorder?

I went to go get a scheduled mammogram and learned that my old doctor had retired (he was well into his 80s). Under Dr. Isreal, I always felt as if I was...

I went to go get a scheduled mammogram and learned that my old doctor had retire...

OneLove2019

•5 years ago

8 Replies

LUPUS ISSUES

Hi all I was diagnosed with subacute lupus erythematosus {scle} is there anybody out there know if you get any pain in joints, I also get a lot of pain on my...

Hi all I was diagnosed with subacute lupus erythematosus {scle} is there anybody...

Cjgj

•5 years ago

13 Replies

LUPUS EUROPE SURVEY

Lupus Europe is looking to collect general information about lupus patients to help with the formation of their Living with Lupus 2020 survey scheduled for...

Lupus Europe is looking to collect general information about lupus patients to h...

Chanpreet_Walia

LUPUS UK•5 years ago

3 Replies

I'm not being impatient I'm just sick of sitting under the letter box waiting for the brown envelope📪📨📝

I'm awaiting my PIP tribunal I have been told this will probably be held at Chesterfield Derbyshire does anyone in my area have any idea on waiting time ???...

I'm awaiting my PIP tribunal I have been told this will probably be held at Ches...

Hidden

•5 years ago

2 Replies

Can insect bites cause bad reaction?

Hi all, I’m just wondering if anyone else has suffered a reaction to insect bites? I seem to have got about 7 or 8 bites on my legs which I can only liken to...

Hi all, I’m just wondering if anyone else has suffered a reaction to insect bite...

Jo1974manchester

•5 years ago

14 Replies

Wish i could tag two groups.. hopeful after a couple calls and weird suggestions regarding platelets from PA

Today I am hopeful. Was disheartened last post but thankful for your support in this group, it can be hard to get anywhere with doctors as we all know,...

Today I am hopeful. Was disheartened last post but thankful for your support in ...

JennaShi

•5 years ago

Be the first to reply

How long until this awful moon face goes away??

I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve...

I don’t have lupus, but other autoimmune disorders. But this is the most active ...

Goldyukr

•5 years ago

14 Replies

Hands/nails

Morning everyone I have Lupus & Sjogren’s so not sure if to do with either. Last few weeks my hands have been flaking badly. Saw recommendation on here for...

Morning everyone I have Lupus & Sjogren’s so not sure if to do with either. Las...

Hollydebs

•5 years ago

13 Replies

Skin lesions

This is my forearm . Does anyone know what the reddish flat plaques might be , I have SLE and sjowgrens

This is my forearm . Does anyone know what the reddish flat plaques might be , ...

Willow1414

•5 years ago

10 Replies

Awful teeth

Hi I was wondering does anyone have teeth issues?.. I have had Lupus for 22 years and after having healthy, reasonable teeth, now they are not so much. The...

Hi I was wondering does anyone have teeth issues?.. I have had Lupus for 22 year...

butterfly1964

•5 years ago

80 Replies

Second Opinion Update

Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current...

Before I would go to the rheumatologist, I visited another primary doctor for a ...

GhostfaceMcGee

•5 years ago

2 Replies

Pericarditis

Hello. My lupus has been in remission for about 4 years so I’ve not been on here for a while. I was diagnosed with Lupus in 2010 with joint pain (never had any...

Hello. My lupus has been in remission for about 4 years so I’ve not been on here...

Maya23

•5 years ago

22 Replies

Please can you share your helpful diet vitamin tips please. What can I do to help myself?

Your advice would be much appreciated. I need to make changes. If anything has worked for you wether it be vitamins, diet, exercise (minimum I’m capable of...

Your advice would be much appreciated. I need to make changes. If anything has...

Lisalou19

•5 years ago

79 Replies

coping with depression from having lupus

Hi all, I thought I would join this forum as I am struggling at the moment. I have had lupus nearly 20 years being diagnosed after 10 years. I have coped with...

Hi all, I thought I would join this forum as I am struggling at the moment. I h...

sammy289

•5 years ago

19 Replies

Recovery

It’s about a month ago now since I had the experience of A&E. I ended up signed off work for 3 weeks of top of the visit. I returned back to work last week...

It’s about a month ago now since I had the experience of A&E. I ended up signed ...

LouLamb

•5 years ago

34 Replies

The sun and me don’t see eye to eye. I stay in doors but the increase in heat is causing pain and stiffness in hands and feet!

The photo totally resembles my better days , bad days look 😂 If I said I’m tired of trying to find a balance that’s an understatement. Literally feel like I...

The photo totally resembles my better days , bad days look 😂 If I said I’m tir...

Lisalou19

•5 years ago

17 Replies

Facial rash

This is the rash I’ve been getting in last 3 months, only when I’ve been in the sun (not my best look I know 🙄, I was feeling pretty awful too). It becomes...

This is the rash I’ve been getting in last 3 months, only when I’ve been in the ...

cathART

•5 years ago

15 Replies

Skin Rash ???

So ive mentioned alot of natural things i highly recommend usimg onion on your scalp if your having a problem with it growing trust me i have dont so and yes 2...

So ive mentioned alot of natural things i highly recommend usimg onion on your s...

Lilrosie1

•5 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2019

Post surgery

Thrush

Thank you

Hydroxychloroquine- No more from Zentiva..help!

Rheumatology appointment update

warning Weird rash picture

Just injected MTX for the first time

Dermatologist needed

Esa

Possible Autoimmun or not? Should I be worried?

Incredibly sore throat won't go away!

Can MTX or steriods shrink inflammation in the breast?

Has anyone had a doctor treat their Auitommune Disease like a mental disorder?

LUPUS ISSUES

LUPUS EUROPE SURVEY

I'm not being impatient I'm just sick of sitting under the letter box waiting for the brown envelope📪📨📝

Can insect bites cause bad reaction?

Wish i could tag two groups.. hopeful after a couple calls and weird suggestions regarding platelets from PA

How long until this awful moon face goes away??

Hands/nails

Skin lesions

Awful teeth

Second Opinion Update

Pericarditis

Please can you share your helpful diet vitamin tips please. What can I do to help myself?

coping with depression from having lupus

Recovery

The sun and me don’t see eye to eye. I stay in doors but the increase in heat is causing pain and stiffness in hands and feet!

Facial rash

Skin Rash ???

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2019

Post surgery

Thrush

Thank you

Hydroxychloroquine- No more from Zentiva..help!

Rheumatology appointment update

*warning* Weird rash picture

Just injected MTX for the first time

Dermatologist needed

Esa

Possible Autoimmun or not? Should I be worried?

Incredibly sore throat won't go away!

Can MTX or steriods shrink inflammation in the breast?

Has anyone had a doctor treat their Auitommune Disease like a mental disorder?

LUPUS ISSUES

LUPUS EUROPE SURVEY

I'm not being impatient I'm just sick of sitting under the letter box waiting for the brown envelope📪📨📝

Can insect bites cause bad reaction?

Wish i could tag two groups.. hopeful after a couple calls and weird suggestions regarding platelets from PA

How long until this awful moon face goes away??

Hands/nails

Skin lesions

Awful teeth

Second Opinion Update

Pericarditis

Please can you share your helpful diet vitamin tips please. What can I do to help myself?

coping with depression from having lupus

Recovery

The sun and me don’t see eye to eye. I stay in doors but the increase in heat is causing pain and stiffness in hands and feet!

Facial rash

Skin Rash ???

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

warning Weird rash picture