Was wondering if anyone had experience with taking turmeric supplements.... been reading a lot about it’s effects on reducing pain and inflammation so have ordered some online. Would love to hear any positive/negative reviews! Thanks xxx
Turmeric? : Was wondering if anyone had experience... - LUPUS UK
Turmeric?
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Jmcb123
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Hi Jmcb,
I have recently added turmeric with bioperine to my regime. I have Celiac, SLE, APS, Raynaud's and Pots. I am on blood thinners (clexane, aspirin) so treading very carefully taking just twice a week.
I have noticed less joint pain and I have had days without headaches for the first time since I had meningitis (over two years ago).
Are you photosensitive?
I have also just started taking marigold supplements (called eye defence) because I am light sensitive and I read it helps filter blue light. Anyway, I feel like that has helped too. I also bought a hat with a ridiculously large brim and wear it outdoors and into shops with fluorescent lighting.
I'll be interested to hear how you go with the turmeric.
Lulu.
Thank you so much, yes, I think I may be light sensitive as eyes really bothering me just now.... if I go outside I want to wear sunglasses as I’m getting terrible dark floaters affecting my vision,...marigold sounds super, I’m already taking aloe Vera drinking gel, apple cider vinegar and waiting on turmeric to arrive.... do you think you can take too many of these things or is it ok as they’re all “natural” I wonder? Sorry you have so many different health issues.... excuse my ignorance, what is APS?
I have lupus and Raynauds x
Hi Jmcb,
Yes, you can definitely take too high a dose! But variety I think is fine. I take quite a few supplements and have been doing very well with that and staying indoors until the evening (to avoid the sun as it is my main issue I think.)
Have you come across Terry Wahls? She has some interesting things to say about diet and health and mitochondrial repair for auto immune conditions.
APS is antiphospholipid antibody syndrome, also known as Hughes syndrome. It's an autoimmune blood clotting disorder. It can cause confusion, memory loss, fatigue, sight issues in some people, headache, pulmonary embolism and dvt and recurrent miscarriage.
Hope the turmeric works well for you!
Lulu.
What I have found is that a lot of these natural remedies do work. But they work in a different way to taking regular pharma meds..
With pharma meds if you have a pain you can take a pain med and it will invariably either take away the pain or reduce the pain level.
With turmeric I find it does work but but it tends to work as part of a package. It is absorbed better with piperine, that's black pepper, and it tends to rely on you cleaning up the diet somewhat and removing or reducing foodstuffs that may be helping to cause the inflammation. In this way it works more at the root of the problem.
Ps... my fella who is on blood thinners atm, said he believes it may have an additional effect on blood thinning, so watch out for that.
It's not a problem for me as although I was on blood thinners for years I have recently had them stopped so I do take foods that have a thinning effect without taking meds in order that I stay clot free and also safe away from extra anti coag drugs.
Thank you for your reply, don’t take any blood thinners x
I (& several others I know) find it really useful and there is a huge amount of research behind it now. The quality of turmeric & turmeric supplements is very variable so you need to get really good quality. I find nutriadvanced a really good brand, Now Foods is good too. It’s definitely something you need to take consistently and longer term & agree with below, you do need a be cautious with anticoagulants as can potentially increase their effect
Hi.
Try Doctor Greger nutrition facts
nutritionfacts.org/topics/t...
He has loads of info and vids.
I take it in supplement form but also when cooking with some black pepper.
It looks like it work best when heated up via cooking.
Best of luck with it, Sarah x
Hi Jmcb
I tried the turmeric route for about a year but I did not feel any significant improvement. I stuck to powdered turmeric you can buy in the supermarket rather than supplements.
I am a food scientist and had read a lot of research pointing to the positive benefits of turmeric and how there is still a tonne of research going on. I spoke to my consultant before going ahead as I wanted to make sure it was not clashing with my other meds and he suggested no more than 1/4tsp a day as that is the average safe consumption and typically of what is eaten in an Indian diet (so a tonne of data there re safety).
I had it with hot whole milk as the fat in the milk releases the curcumin.
I still take turmeric when I feel a chesty cough coming as this had worked for the Indians and Chinese for a couple of thousand years. And it certainly works for that.
Hope the turmeric works for you.
Joy
I read a study which said not to take Turmeric if you have SLE, as it can have the opposite effect if already on anti inflamatries x
I only take hydroxychloroquine, was prescribed naproxen but it irritated my stomach so trying to look for more natural alternatives x
Do you happen to have a link to that study? Although that are many herbs that need to be used with caution with medication & medical conditions due to potential adverse affects, a lot of the contraindications from studies are based on unrealistic examples such as mice being given doses that you would never use with a person or a specific compound from a plant rather than a whole plant so it’s always worth looking at the original data before applying those statements.
I am always a bit suspicious of studies these days that encourage people not to eat natural foodstuffs.
I am not saying that they are necessarily wrong but always wonder who has funded them.
I take turmeric with my food. I only use what my body tells me from muscle testing because I wouldn't have any idea how much or little and when/how often to take it. Homeopathy works for me, so very little seems more effective than larger quantities.
We are all different, but I say why go for supplements when you could take the real thing, but that is up to you, of course, and we are all different with different problems anyway.
Hi. As others have said, be very careful if you are taking warfarin. I tried turmeric a couple of years back, without first checking whether it interracts with warfarin (which I take for Hughes/APS). At my next INR test (measurement of my blood clotting time) I got a shock! That isn't to say that a warfarin patient can't try turmeric but it should be done in liaison with their warfarin clinic. In my own case turmeric didn't affect my blood clotting in a regular pattern - even taking the same amount daily led to wide variations in my blood clotting times; which suddenly went up, down and all over the place - so I had to stop taking it.
I have been taking Turmeric daily for two years and my pain has lowered to bearable levels. Look on Turmeric for Health website - making a paste with it and adding black pepper and sweetener if you wish - I put some in my milk and pour over cereal - my sister drinks hers in milk. Excellent!
I agree but it most stores and it’s a lot cheaper I drink it with warm water and honey
Otherwise I put some on milk and boil it and add saffron and nutmeg specially at bed times
Plus I use turmeric in cooking every day
Ps m Indian lol
Thank you so much,,really appreciate everyone taking the time to reply, I’m definitely going to give it a go x
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