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LUPUS UK
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can my GP show me my x-ray?

I have just had a very dismissive letter from my rheumy after having an x-ray, she told me to take some codeine. If she had bothered to read my notes she would know codeine makes me sick. If I ask my GP can he show me my x-ray so I can see it myself? My GP had put in my notes I needed physio but couldn't authorize it because of rheumy. grrrrrrrrrrrrrrrrrr

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oldestnewest

Hi Suzannah,

the chances are that your GP will not have access to the images, but will have access to the report issued on your images by the Radiology Department. This will have been done by a Consultant Radiologist or appropriately trained Radiographer, who will have much more experience at interpreting images than your GP.

Hope that helps xx

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thanks, after feeling like I've been dismissed as a nuisance by my rheumy I feel I need to see them myself and my next rheumy appointment isn't until june. Think I will check at GP's and ask for access.

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I agree with cliffhopper.

This can be so frustrating...in my experience NHS hospital medics don’t all share our info the same way:

-SOME NHS consultants automatically send my GP imaging reports, some don’t. I have a good relationship with my GP, who gives me report copies when i ask...i wouldn’t be surprised if GPs who don’t know me or are not sympatico types (GRRRR) would refuse such a request

- SOME NHS consultants never send my GP imaging reports, so i phone their secretaries & ask for a copy to be sent to my GP...which usually works IF the sec. is a kind person

- I ALWAYS am ready to go to my hospital’s websites and find the protocol for applying to access my records: ALL hospitals are obliged by law to give us access. There is always a form to complete with evidence of ID. getting what i’ve ordered takes up to 30 days. I’m waiting for a recent application to be fulfilled right now (historic records re 3 previous surgeries at my local NHS hospital...so i can share with my pain consultant & the nuerosurgeon performing my spine surgery - we especially need to know which anesthesia suits me...cause i’ve a history of doing awkward stuff that spooks anesthetists...when i told my GP i’d applied for these records she said: let me know if you don’t get every detail you need first time, cause i’ll go direct to the anesthetists and get those details - i find they are always cooperative about sharing this sort of info! I replied: AHA, OK! THANKS!)

Hope something in there is useful...good luck!

XOXO Coco

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thanks coco, it is just so tiring having to chase everybody for everything and hoping I don't forget before getting what I need. Going to make that GP appointment right now before I forget that too.

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GO FOR IT!

Let us know what happens ?

I have a love/hate relationships with my ‘to do’ lists (UGH) .... they are constantly sitting there looking BORING...always needing updating etc etc...ALWAYS full of stuff to do with ILLNESS....

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I have a couple of books to write everything down in but keep forgetting to either write in them or take them with me. may go back to writing on my hand like kids do [did]

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Exactly...do whatever works for you...i tried notebooks: NO GOOD for same reasons as you. Badger collects scraps of blank paper for notes..l revise my to/dos onto one of these every week - the list sits next to my spot at our kitchen table glaring at me....works for me, but OMG are they a mess by each week’s end.....

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Unless you are trained in understanding 21 st Century Xrays, I would go along & discuss the report your GP has received, from the Radiographer, & explain why you feel you have been dismissed.

My rheumatologist often shows me my Xrays & even as an ex nurse I struggle to see what he is pointing out.

You could also ask your GP to advise on an alternative to Codeine,& if you pay for your prescriptions...if what is advised is available OTC,it will probably be cheaper to buy it without a prescription.

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GRRRRR, as Barnclown says, asking for a copy from the hospital through the the Data Protection Act procedure can take forever and a day - for one A4 sheet, I was sent a half inch pile of paper of guidance with a seven-page form to fill out, and my request arrived eight weeks later - so Coco's suggestion of phoning the secretary asking a copy to be sent to GP is probably best bet (GPs in Scotland don't have the imaging software to view them I think, so it's be a PDF?)

Oh, ScotGov's vision of everyone with rare diseases having a personal care plan......and things like drug intolerances on the front page 🐷 🐷 🐷 ✈️ ✈️ ✈️ xxx

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how do you do those piggies :) all I can do is smile and grumpy :(

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⚠️ :) is wonderful but :( 〽️ is well-justified given all the 💩 you have to put up with 👿 😠 🤛 🤝 💪

You can cut and paste stickers here! 🙌 🐶 🐱 🐭 🐹 🐰 🦊 🐻 🐼 🐨 🐯 🦁 🐮 🐷 xxx

getemoji.com/

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I'm no good at cut and paste :(

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I'm no good at coping with chronic illness 🐵 HEY HO we all have our strengths to share 🦁

Just select the image(s) you want eg an octopus 🐙, then hit Ctrl C simultaneously, (it won't turn into a lobster 🦐 🤗 ) then flick to HU and select the point to insert and hit Ctrl V simultaneously (no......it's not intuitive, C for copy is understandable, V for paste is ???.....but it's not so very long since you had to click the 'Start' menu to shut down Windows WTF?)

If only overcoming lifelong illness was so straightforward..how do you do it? 👀 xxx

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🐶 🐱 🐭 🐹 🐰 🦊 🦝 🐻 🐼 🦘 🦡 🐨 🐯 🦁 🐮 🐷 🐽 🐸 🐵 🙈 🙉 🙊 🐒 🐔 🐧 🐦 🐤 🐣 🐥 🦆 🦢 🦅 🦉 🦚 🦜 🦇 🐺 🐗 🐴 🦄 🐝 🐛 🦋 🐌 🐚 🐞 🐜 🦗 🕷 🕸 🦂 🦟 🦠 🐢 🐍 🦎 🦖 🦕 🐙 🦑 🦐 🦀 🐡 🐠 🐟 🐬 🐳 🐋 🦈 🐊 🐅 🐆 🦓 🦍 🐘 🦏 🦛 🐪 🐫 🦙 🦒 🐃 🐂 🐄 🐎 🐖 🐏 🐑 🐐 🦌 🐕 🐩 🐈 🐓 🦃 🕊 🐇 🐁 🐀 🐿 🦔 🐾 🐉 🐲 🌵 🎄 🌲 🌳 🌴 🌱 🌿 ☘️ 🍀 🎍 🎋 🍃 🍂 🍁 🍄 🌾 💐 🌷 🌹 🥀 🌺 🌸 🌼 🌻 🌞 🌝 🌛 🌜 🌚 🌕 🌖 🌗 🌘 🌑 🌒 🌓 🌔 🌙 🌎 🌍 🌏 💫 ⭐️ 🌟 ✨ ⚡️ ☄️ 💥 🔥 🌪 🌈 ☀️ 🌤 ⛅️ 🌥 ☁️ 🌦 🌧 ⛈ 🌩 🌨 ❄️ ☃️ ⛄️ 🌬 💨 💧 💦 ☔️ ☂️ 🌊 🌫

🐶 🐱 🐭 🐹 🐰 🦊 🦝 🐻 🐼 🦘 🦡 🐨 🐯 🦁 🐮 🐷 🐽 🐸 🐵 🙈 🙉 🙊 🐒 🐔 🐧 🐦 🐤 🐣 🐥 🦆 🦢 🦅 🦉 🦚 🦜 🦇 🐺 🐗 🐴 🦄 🐝 🐛 🦋 🐌 🐚 🐞 🐜 🦗 🕷 🕸 🦂 🦟 🦠 🐢 🐍 🦎 🦖 🦕 🐙 🦑 🦐 🦀 🐡 🐠 🐟 🐬 🐳 🐋 🦈 🐊 🐅 🐆 🦓 🦍 🐘 🦏 🦛 🐪 🐫 🦙 🦒 🐃 🐂 🐄 🐎 🐖 🐏 🐑 🐐 🦌 🐕 🐩 🐈 🐓 🦃 🕊 🐇 🐁 🐀 🐿 🦔 🐾 🐉 🐲 🌵 🎄 🌲 🌳 🌴 🌱 🌿 ☘️ 🍀 🎍 🎋 🍃 🍂 🍁 🍄 🌾 💐 🌷 🌹 🥀 🌺 🌸 🌼 🌻 🌞 🌝 🌛 🌜 🌚 🌕 🌖 🌗 🌘 🌑 🌒 🌓 🌔 🌙 🌎 🌍 🌏 💫 ⭐️ 🌟 ✨ ⚡️ ☄️ 💥 🔥 🌪 🌈 ☀️ 🌤 ⛅️ 🌥 ☁️ 🌦 🌧 ⛈ 🌩 🌨 ❄️ ☃️ ⛄️ 🌬 💨 💧 💦 ☔️ ☂️ 🌊 🌫

🐶 🐱 🐭 🐹 🐰 🦊 🦝 🐻 🐼 🦘 🦡 🐨 🐯 🦁 🐮 🐷 🐽 🐸 🐵 🙈 🙉 🙊 🐒 🐔 🐧 🐦 🐤 🐣 🐥 🦆 🦢 🦅 🦉 🦚 🦜 🦇 🐺 🐗 🐴 🦄 🐝 🐛 🦋 🐌 🐚 🐞 🐜 🦗 🕷 🕸 🦂 🦟 🦠 🐢 🐍 🦎 🦖 🦕 🐙 🦑 🦐 🦀 🐡 🐠 🐟 🐬 🐳 🐋 🦈 🐊 🐅 🐆 🦓 🦍 🐘 🦏 🦛 🐪 🐫 🦙 🦒 🐃 🐂 🐄 🐎 🐖 🐏 🐑 🐐 🦌 🐕 🐩 🐈 🐓 🦃 🕊 🐇 🐁 🐀 🐿 🦔 🐾 🐉 🐲 🌵 🎄 🌲 🌳 🌴 🌱 🌿 ☘️ 🍀 🎍 🎋 🍃 🍂 🍁 🍄 🌾 💐 🌷 🌹 🥀 🌺 🌸 🌼 🌻 🌞 🌝 🌛 🌜 🌚 🌕 🌖 🌗 🌘 🌑 🌒 🌓 🌔 🌙 🌎 🌍 🌏 💫 ⭐️ 🌟 ✨ ⚡️ ☄️ 💥 🔥 🌪 🌈 ☀️ 🌤 ⛅️ 🌥 ☁️ 🌦 🌧 ⛈ 🌩 🌨 ❄️ ☃️ ⛄️ 🌬 💨 💧 💦 ☔️ ☂️ 🌊 🌫

oops

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v

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So what's your secret to dealing with chronic illness???? XXXXXxXX

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🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣

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don't laugh I just have never been able to do cut and paste, I blame my brain fog, it affects my fingers

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Laughing with you Suzanna...'cause I have the same problem...fog and dodgy fingers too. 🤷‍♀️

What with that and the HU predictive text which makes sense of a lot of what I write...and I never 'see' it...what chance 🤦‍♀️.

Hope you weren’t offended cause you truly made me laugh (a laugh of companionship 😉😀).

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Made my day! FFS I can't manage to get the old laptop up 'n' runnign some foggy days! xxx

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And most foggy days I can't get Foggyme up and running 😢🤣🤣🤣🤣

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😂 you have all made me laugh and cheered me up! X

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Oh that’s good news Melba1 😉😀😀

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not offended just embarrassed you all know what a technological numpty I am [blushing emoji if I could do one]

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No need to be embarrassed suzannah16...sharing is good...and making others laugh in companionship is a true skill.

We're all numpties in our own peculiar and special ways so hurrah for you 😀

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😂

😳

😵

They are small and hard to select 🙄 xxx

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they were big enough that I don't need glasses to see them, can't figure out how clicking on one pic transferred the whole lot.

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Oh no...I found a big one...but it won't copy and paste...so I'm a numpty too 🤣🤣🤣🤣

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There is an App to get larger emojis...but I can't seem to upload it...but it's there along with all the Apps I use.....as if I have loaded it?

Go figure😳

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What's an App ? 😳 xxx

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It's short for application-I use it on an iPad ...I don't know if you can do it on a laptop or a PC.

Think I found it on Google.

As you see I don't know what I'm doing either....I have somehow drifted over from NRAS .....so I'm really confused this morning.

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Oh i-Thingies... a bridge too far! 😂 xxx

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☺️😊😟blushing emojis I think xx

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YAAAAAAAAAAY!

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You guys are a ⭐️⭐️⭐️⭐️⭐️ HOOT

😹😹😹😹😹😹😹😹😹😹😹😹😹

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😂 at your emojis. 🙁 at your difficulties getting results. So frustrating when we’re trying to manage (and forget!) everything! I like your idea of writing it on your hand - it’s the only thing that works when my brain is very bad. I currently have the name of the ward I’m in in hospital written by a nurse on my hand because I got lost (although brain had improved a lot since then!).

Not nice getting a dismissive letter from rheumy 😡 lots of things won’t show on scans/ tests with lupus (in fact that’s often how they can differentiate lupus arthralgis from RA) but that doesn’t mean it’s not causing significant pain or problems and needs sorting. I have a great quote from top lupus rheumy on this which I must share when my brain fully returns. I will wrote that on my hand...

X

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Hope the ward is the nice quiet rheumatology one Melba! XOX

Writing on hands is quite normal, isn't it ?!?....remembering where the reading glasses are to read what's written is the tricky bit! 🤣 🤣 🤣 xxx

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Yes thank goodness Eekt! Ha ha I think you have a few years on me but yes I’m just at the needing glasses stage! We are under the care of a terrible rheumy registrar, a combination of not listening, thinking we should all present as textbook cases of our diseases, speaking to the extremely experienced and expert (yet quite elderly and not always able to advocate for themselves) patients as if they are 5 and getting everything wrong from canulas to drugs. The nurses say they’re always raising it and patients are always complaining about her 😬 I have handled her in a very grown up professional manner so far - pretending to be asleep when she tries to talk at me 😂

X

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😍 Good attitude!! 🤛 💪 👌 No time-wasters for medics ! 🤗 🤩 Wishing you a very speedy recovery and return to your kind rheumy! 😗 XOX

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love your nurses for writing your ward on your hand, when I was in hospital last time I had a junior DR ask me questions to check my marbles were intact [I was only in for surgery] they asked did I know what ward I was on, which I didn't because I had been moved from one ward to that ward but nobody told me where I was. LOL

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Yes quite understandable to not know in that case of moving ward! I got asked the date but again as I’ve been in and out of hospital for a month with no structure to days/ dates (except for remembering weds is sticky toffee pudding day 🐷😂) I failed the question and am being sent for an MRI - all the ladies on my ward said that they didn’t know either. I suppose it is the dementia ward though...

(Not really, I’m on the lovely rheumy ward now - need to update it on my hand in case I get asked like you did 😂)

X

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Do some mini mental test revision too, to be sure sure they don't keep you any longer than needed...now count backwards from 100 in 7's...and who's the president of the US? I routinely ask neighbours that (I live in a demented town) and most will answer 'that black man'...🤗 🤩 🤣 As for the time of year...if it's sunny, it's summer! 🤪 😂 😵

Be well xxx

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Oh yes, I have been revising 😂 fortunately the steroids seem to have allowed me to progress beyond saying it’s sticky toffee pudding Wednesday of course whenever I’m asked (regardless of the actual day apparently 🙄.

Oh funny 😂 except in Scotland maybe where sun may not be such a good indicator...

x

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Just ever the optimist perhaps? :) Ah, if every day was sticky toffee pudding day, mmm xxx

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they asked the date too which was awkward. there were 2 clocks on the wall, one behind my head which had the wrong date and one with the right date across from me. the doctor was looking at the wrong clock :)

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🤣 🤣 🤣 My mouthful of tea has just shot across the room! Crikey, reckon that doc needs a mini mental! 🤗 🤩 😍 You should do stand-up at The Fringe! 😂 xxx

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🙄😂 did you correct him or is that on your notes now?!

X

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I did point out the other clock, hope it's not in my notes

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You’ll have to ask to find out and fill in 10 pages of request forms 😬! I had a little disagreement with a nurse last night who woke me up at 130 to say they hadn’t filled in my ‘poo chart’ and how many poos and what (from a list of pictures 🙄) they’d looked like?! I said a) it’s 130 in the flipping morning b) I can’t remember and I don’t check c) I didn’t come in for poo problems but ask me in the morning! I then checked my notes this morning to check they’d got my rituximab infusion rate correct (they hadn’t) and she’d written ‘patient non compliant and refused to respond to questions’ I wish we could then respond on our notes ourselves to explain the reality so our drs don’t think we’re just being awkward! I solved the problem by discretely removing the poo chart and non compliant comment into the bin 😱😂 X

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Bin it! YAAY! I found that really effective for my mum's discharge sheet when she had HR 120, urea+++ and a re-surging chest infection 😂😂😂 xxx

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oh yes definitely a section for patient comments. I had to do the poo chart too but having colitis at the time I said mine didn't conform to any of the diagrams. we had a notice on the wall that said "food provided met all our nutritional needs" I felt like adding " so do wichity grubs but I don't want to eat those either"

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didn't get anything as good as sticky toffee pudding:( :( I had to take in my own bread,butter and peanut butter with me for all the days the menu had bad food.

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Oh no, you often hear of that at some hospitals but I love this hospital’s food. My husband pointed out that it might just be better than my cooking 🙄 so maybe it’s just comparitive and you’re a better cook than me. Or I suppose yours was post op when appetite may be poor and mine is post IV steroids so I could literally eat the old lady opposite me with steroid hunger 😱😂

OK that sounds weird but you know what I mean 🙃😆 x

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So wish I could come and visit! 🤗 🤩 😗 xxx

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Me too! 😊 It’s standing room only around my bed at the moment though as my moon face is currently taking up most of the space with the remainder being the snacks around me to keep feeding it up!! 🤡😂 Xx

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...and they say pregnancy is the only excuse for indulgence....enjoy it!!! XOX

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no food here was bad yet some people raved over it [puke emoji] they had stovies one day which is a sort of Scottish version of shepherds pie but usually with more gravy than meat and stirred. what they served up looked like bright orange dry mash, apparently it had corned beef in and no gravy, no idea why it was orange. I was supposed to be on a light diet but they only provide one menu with no light options other than sandwiches with over processed grey meat.

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🤢🤮 x

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exactly the emojis I would have chosen.

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🤩😍👋👋👋👋 can’t get this loada paperwork they dumped on you off my mind eekt...😱...here in england over the past 12 months for the first time EVER i’ve had to apply to access copies of my records at each of the 2 hospitals i’ve attended most over the years...each time i expected a loada paperwork and instead was sent very simple 2 page forms - i say simple, but of course i had to force my 🤤 lupus brain to find the details re the exact stuff i wanted (date, medic, clinic etc + the right ID stuff). even so i just KNEW i was getting off lightly paperwork-wise and that there hadda be hospitals that bamboozle patients the way you’re describing....

😾 MEGA GRRRRRRRR

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That hospital's procedure is based on the European legislation - it's not been updated to take account of the new UK law, the Data Protection Act 2018, which says letter or phone call suffices to request personal data, and if something can just be printed off, then that's what should be done....but all requests are passed to the legal department at that Trust (presumably if they suspect legal action is pending)xxx

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😟 OMG 😝😘

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What is the issue you are having? GPs don’t need a consultants authorisation to refer you to physio so I would seriously question why they’ve said that to you. You are legally entitled to view any of your medical records but the report would be more helpful to view as unless you know how to read xrays or it is a very obvious problem then you won’t see much

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Have made GP appointment but not for 3 weeks, luckily I got a quick appointment this time can sometimes wait a lot longer

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Without wanting to sound dismissive of GP's unless it was a very obvious arthropathy I doubt they would recognise on an X-ray and again without being rude I doubt you would either. Your GP should be able to ring up the radiology department and ask for a copy of the written report which will have been done by a radiologist or specialist radiographer who are the experts in imaging. You wouldn't ask an ENT specialist to remove gallstones, they probably could but why would you want anyone but the person who had all the specialist training ?

Changes on X-ray can be very subtle and quite difficult to see so your best bet really is the report and as I said most radiology departments will send a copy to the GP if asked because otherwise they would be inundated with repeat requests for imaging which they then have to return because you will already have had it done and they have a legal duty to keep doses to patients low. In some places in the UK they have already started rolling out the electronic patient record to GP's and they can see your hospital records on their computer but there aren't many places yet

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Hi

Sorry about your health ,if the Rheumotogly department has taken your xrays they can show u your X-rays not sure about the gp but u can request it and make sure they explain what u have or what u can do so relief pain etc always ask questions

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thank you.

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You can ask to have an appointment with the radiologist to talk through the x-ray results Point out any problems that they may be.

When there are issues I think we should be done but far too often isn't

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I didn't know you could make an appointment to speak to the radiologist, that is something for me to bear in mind. I find it annoying when I have a test or scan done and someone recommends something to which ever Dr ordered it but the Dr never follows through. going over my notes [which I only recently got] this has happened several times.

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Yes that’s very bad and happens a lot. I think we all have to insist on getting every report to make sure the correct follow up actions happen - but tough when you’re sick, brain not working, exhausted and just want it to all be done efficiently! 🙄 x

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very true, sometimes I think they use our illnesses against us. they know we are tired, easily stressed and foggy brained but they won't volunteer info unless we ask the right questions. or explain why suggestions aren't being followed up. what is the point of sending us for tests and getting experts to suggest treatment if they don't plan to do anything?

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I expect good intentions to follow through are there, it just usually just gets lost in the admin etc?! Or no one taking responsibility? I wouldn’t be in hospital now if my GPs had the admin set up to have informed me I had a kidney infection 🙄 rather than waiting until I went back 2 weeks later seriously ill.

It’s frightening when you get your notes and look back at all the missed suggestions etc.

I keep asking for all my blood etc results from rheumy but there seems to be no system except asking/ begging each time and then feeling like he’s feeling I’m annoying and don’t trust him (which I do but I also like to see all my results because sometimes we’ll see links with OUR bodies that they, however good, can’t know exactly what’s going on in the same way we can.

One day... x

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I suspect in my area it's all down to money as the NHS trust here is in dire financial straits. I am beginning to feel that it is only patients that make a nuisance of themselves that get the required treatment. If you take it laying down they will tread on you. I have left it for a long time and just suffered ]partly down to fatigue and partly because I just didn't care for a while] but now i'm trying to get the control back and demand what I should have had years ago. [feeling frustrated emo and wonderwoman emo] I've given up on emojis I will just "insert here" instead. hope you are feeling ok

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Go for it. I think taking some control is essential in this disease. We’re all here to support each other too 🙂

X

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