Hi all !

[JL1w]

Just wanted to say Hi to everyone again I am back ,Iv been offline for a long time mainly to learn to live with all the illness’s and get my head in a better place ! I am plodding on day by day some days better than others, fatigue is a major problem and joint pain ans weakness but I’m still here and still smiling through it all . I eventually came off cyclosporine the inmuno suppressant as it did not suit me and made me feel much worse . Be good to catch up with everyone again and I hope you are all well ... xx

[Chanpreet_Walia LUPUS UK]

Hi JL1w,

Welcome back to the LUPUS UK community forum!

Have you spoken to your GP/rheumatologist about the pain you are experiencing? We published a blog article on ‘pain management’ which you can read here if you haven’t already: lupusuk.org.uk/pain-managem...

Fatigue affects around 90% of lupus patients. We published an article on our blog about 'managing fatigue' which contains helpful tips and information which you can read here lupusuk.org.uk/managing-fat...

If you would like someone to speak to, I can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at [e-mail] with your name and address.

Please keep us updated, wishing you all the best.

[Carcrashgal]

Welcome back!