Is it just me or does anyone else get up and just seem to be waiting for it to be bedtime again! It just seems like u are wasting ur life by just being fatigued all the time. Even when u do sleep for hrs u feel no better for it and feel like u could just sleep for a wk.
Sorry, sound so miserable ha!! I'm only 38 but have 2 young children and struggle thru the day at the mo and just wait for dad to get home so I can go to bed! At 7 when the kids go!
Same here ! How I manage to get through the day I never know. Everyday is the same. I have no children & still find life hard. I'm in need of iron now as well which doesn't help. I feel as though I haven't the energy to dress & the thought of going out horrifies me. I long to be in bed ! It's no life really such a horrible feeling. So ur not alone 😊
I totally identify with you, Sara_A. I wake up in a warm fuzz that lasts about 2 minutes before the shaky feeling sets in. Getting up takes a huge effort, and from there on, the day is one long endurance test. I watch the clock and will it to go round that little bit faster, counting off the hours until I can earn the treat of getting into bed again.
And so it goes, day after day, month after month.
Honestly, if my daughter was still school age, I would be in bits. All credit to you! x
Well my little boy has just started school in sept and my daughter is 19 months!! So I only have her most of the day but she's pretty demanding bless her! It's very hard but I wouldn't change having my babies they are my world but I just wish I didn't feel like this every single day! I wish just one day I could get up and feel 'just ok!'
It could be worse so shouldn't moan I suppose! X
Well, you won't find any argument from me about the joys of parenthood! But I can't imagine being able to look after a couple of little ones like you do. Nothing stays the same forever, so there's a good chance that you will feel like your "normal" self sometime - and maybe soon? In the meantime, feel free to come and have a moan here whenever you need to. x
I realise it may be difficult but is there anyway you can schedule a half hour rest through the day? a friend, relation or neighbour? That way you know that you can shut your eyes for a short while. Might help a bit. Heather
If my 19month old looks like she might sleep for a couple of hrs which she sometimes does then I will actually go to bed then too. But it's not abdaily thing tho.
I'd really struggle to wake up if I fell asleep for half an hr and would feel absolutely awful and be unable to function, so if I only had a short time I would just try at least sit down x
You have my sympathy Sara, together with huge amount of admiration for caring for your little ones with such love. Recently I've had the same watching the clock for bedtime need. I no longer have to look after my boys and only have the dog to think about. Fortunately he's a couch potato most of the time. I do hope you get better from the exhaustion. It's exhausting enough to look after your children without being ill as well x
I always end up trying to convince myself that my alarm clock is lying!! No it doesn't work. I'm the same absolutely knackered all the time. I think I just need to accept that a social life is out of the question an the moment. Just going to work is bad enough, it must doubly awful with a young family to look after. x
I do try my best and my kids are very happy but I do wonder sometimes if they are missing out because of me!? As I can't always be here there and everywhere taking them places. I've recently applied for a blue badge( i had one several yrs back) as just taking them out getting them both out the car is like running a marathon most days so this would just help me so much on those days that are particularly difficult.
Social life?!! What's that! As u say everyday things like washing up, shopping etc does me in and I have to get my shopping delivered nowadays!
The feeling of waking up each morning feeling like uve not even been asleep yet is just the worst!!!! I often wonder how it feels for 'normal' people (without fatigue that is!)
Ps does anyone know who the got medical evidence from for blue badge application? Was it gp or consultant?
Hi, Sara. I know what you mean. I have all boys. Older, but still they have their issues. At 18,15, and 13, you would think that is the life. One of them is always in need, as in needing me for something, or wrestling in the house.
Not easy. Heather makes an interesting point. I’ve probably got OCD !! , definitely worth looking at any tweaks that you can make to the day. Fatigue is a huge issue, fresh air and a little walk can help. Best wishes Kevin
New to group, I'm currently awaiting my blood results but of all the things I've been tested for this seems to be the most relatable.
Waiting to be seen.
Can't seem to quite get my Lupus under control. 
