Newly diagnosed with LUPUS

[Dibage]

Hi my name is Dibarge i have been recently diagnosed with SLE.I'm now severely fatigued most of the time.I'm not unable to perfome chores around the house.I'm now put on Medical Disability since i also underwent several heart ops.I was working in ICU.

[Kevin53]

Please contact Lupus UK if you would like to speak to one of our contacts. Best wishes Kevin

[Chanpreet_Walia LUPUS UK]

Hi Dibage,

Welcome to the LUPUS UK HealthUnlocked Community!

We offer a free information pack that contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. To download or request our information pack, please click here: lupusuk.org.uk/request-info...

Is there anyone who is able to help you around the house?

Around 90% of people with lupus report experiencing fatigue making it one of the most common symptoms of lupus. We published an article on our blog about managing fatigue which you can read here: lupusuk.org.uk/managing-fat...

We also published a factsheet on ‘LUPUS: The Heart and Lungs’ which I hope you will find helpful: lupusuk.org.uk/wp-content/u...

Please keep us updated, wishing you all the best.

[Wendy39]

Hello and welcome to our lovely support group, I'm so glad you found us. I have been here since my diagnosis in 2013. It has provided me with so much information and support and continues to do so. I would recommend checking out the Lupus UK website. So many helpful leaflets etc. If you become a member you also get a quarterly magazine with well written articles etc. On this site, there is a search facility too. Should be top right hand corner of your screen. You can look for drugs or symptoms etc and all of the relevant posts pop up. It's a great way to learn about your illness and symptoms from other sufferers. I hope you have wonderful doctors looking after you and that your medication will improve things for you. Best wishes, Wendy

[Dibage]

Thanx for the info guys I will definitely follow-up the link.I'm staying alone my only son staying far away frm me.Now of late I have blackouts as if I'm going to pass out.I constantly contact my physician and he says the symptoms will be a little better in3months time.He started me on anti epileptic medication.

[Dibage]

Hi everyone I have been feeling much better for past week. Fatigue much better bt now of late my elbows and lower extremeties started to be itchy non stop. I tried applying topical creams from the pharmacy with no improvement at all. No my scalp also is itchy and feels dry most of the time. I have been having severe lower back ache worse when I'm seated and when I stand up from a seating position. I'm still talking my meds as prescribe.