Feal free to giggle : I think this is my first post... - LUPUS UK

LUPUS UK

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Feal free to giggle

Ianrussell69 profile image
•14 Replies

I think this is my first post since leaving hospital but if I'm wrong it was the pain Meds 🤠🤠I was taken in with kidney stones had scans told yes u have stones But we have found a fistula in my bum lovely I said hats to be one a course of antibiotics no surgery tomorrow 😫I was not prepared for that woke up after surgery with two bum holes literally and a seton drain well sefe to say I've lost all my dignity could not wipe my bum myself for 2days my wife has been trained up to chainge dressings as they need doing every day and have just found out it could be 4to 12 months to heal going back to work tomorrow been off a month! Rumi have also took me off methatrexate for a min of 12 months to aid healing

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Ianrussell69 profile image
Ianrussell69
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14 Replies
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PMRpro profile image
PMRpro

No - honestly don't think that is a laughing matter! Hope it heals in record time.

nigelsmum profile image
nigelsmum• in reply toPMRpro

poor you, hope you get better soon. Keep smiling !

Ianrussell69 profile image
Ianrussell69• in reply toPMRpro

I have to laugh the first 3/4 days really messed with my head as the hospital told me nothing in respect of what to expect but I am lucky my wife and the nurse are like a double act when changing my dressing and repacking and have managed to give me my dignity back

Crusee profile image
Crusee

How unpleasantly unexpected. Hope you feel better soon and make a speedy recovery.

Take care.

Crusee

XX

whisperit profile image
whisperit

Ouch. I sometimes think life is a kind of cosmic joke played on us all."Think you've been through enough already? Try *this*!"

Hope you are able to find plenty of things to help you through x

Ianrussell69 profile image
Ianrussell69• in reply towhisperit

Thanks

Dibage profile image
Dibage• in reply toIanrussell69

Wishing you speedy recovery

Lupiknits profile image
Lupiknits

Ow, that's not fun. Gold star to your wife and it sounds like you are very good partners.

Ianrussell69 profile image
Ianrussell69

Yes she's a diamond

mrleroyjacksonjr profile image
mrleroyjacksonjr

Praying for your healing.

Kidney stone pain is bad enough, but a fistula is adding insult to injury. Hoping things improve from now on.

Ianrussell69 profile image
Ianrussell69• in reply to

Yes I don't do things by half 100% every time 🤕

Wendy39 profile image
Wendy39

Bless you! Sounds terrible. I hope you make a very quick recovery. How do you think you will fair without your immune suppressant medication? Seems a long time to be without it. Best wishes.

Ianrussell69 profile image
Ianrussell69

Thanks ,I've been off methatrexate for 4 weeks and already the fatigue is creeping back I still take hydroxy.the methatrexate really made a big improvement with the fatigue and jelly legs but this is the second time in hospital prob due to methatrexate can you believe exactly 12 months and a day between hospital stays first time was with sepcis and the doctors did not come out and say the methatrexate was to blame but sertanly made the recovery longer ? I will post if being optimistic when I get simptoms back

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