Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2017

Another pass

Yesterday I had to do my speaking and listening the last part to pass my English level 2 . I had to talk about a topic I chose to 3 people and then we had to...

Yesterday I had to do my speaking and listening the last part to pass my English...

LouLamb

•7 years ago

18 Replies

When to go to the GP with suspected Lupus?

I have many symptoms which falls under Lupus or another auto-immune disease. These include fatigue, achey joints, shortness of breath, anxiety, facial rashes...

I have many symptoms which falls under Lupus or another auto-immune disease. The...

jessdobson

•7 years ago

19 Replies

Is The Incidence Of Lupus, Disproportionately High Amongst Healthcare Professionals?

I've just had a couple of very rough days and rough, long nights, due to a nasty flare. I laid in bed thinking, which is what I always seem to end up doing at...

I've just had a couple of very rough days and rough, long nights, due to a nasty...

Tonk

•7 years ago

27 Replies

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Lupus

Hello everyone I've just been diagnosed with Lupus I don't know a lot about it Havant been given any information from the hospital all I know is I feel so...

Hello everyone I've just been diagnosed with Lupus I don't know a lot about it H...

Bensoncody1960

•7 years ago

7 Replies

Heavy eyes

Does anyone suffer with really heavy eyes?

Mandypandy1969

•7 years ago

7 Replies

No choice but to claim ESA but doctor refuses to backdate medical cert?

Does anyone know where I stand as I'm entitled to 3 months backdated ESA but my GP yesterday refused saying it's not the practices policy to backdate as they...

Does anyone know where I stand as I'm entitled to 3 months backdated ESA but my ...

MissFG

•7 years ago

13 Replies

Rituximab vs abatacept-- any thoughts?

I end my rheumatologist suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this...

I end my rheumatologist suspect that Enbrel has stopped working for me. She sugg...

shareasmile

•7 years ago

1 Reply

Your first appointment at the hospital

Hi, I'm currently counting down the days until my first appointment at the hospital since being referred by my GP with suspected Lupus. I went to one of the...

Hi, I'm currently counting down the days until my first appointment at the hospi...

Shaddix29

•7 years ago

13 Replies

Early trials of prednisolone showed alarming side effects

Some of which persist to this day...

whisperit

•7 years ago

8 Replies

Pain management tips

Hi everyone. I don't see my neurologist until 27th and have everything crossed that I may have a diagnosis at that point (or not, if what I have read here is...

Hi everyone. I don't see my neurologist until 27th and have everything crossed t...

MoyaP

•7 years ago

4 Replies

Anyone had these on both feet

Just suddenly appeared

Queencara78

•7 years ago

1 Reply

Radiofrequency denervation info, please

Hi everyone. I'm hoping to locate someone who has had a radiofrequency denervation procedure to the spine. Was it successful in relieving pain and what effects...

Hi everyone. I'm hoping to locate someone who has had a radiofrequency denervati...

LupieLady1

•7 years ago

6 Replies

Red fingers and redness inside palms

Hi all I'm wondering could this be connected to lupus ?I am awaiting a first appointment with rheumatologist after anti s DNA test showed that I have tested...

Hi all I'm wondering could this be connected to lupus ?I am awaiting a first app...

Ryanmac84

•7 years ago

Be the first to reply

September's Topic of the Month - Getting Diagnosed (We want to hear your tips and experiences)

Our topic for discussion in September is 'Getting Diagnosed'. Getting a diagnosis of lupus or one of its associated conditions can potentially be a long and...

Our topic for discussion in September is 'Getting Diagnosed'. Getting a diagnos...

Paul_Howard

Partner•7 years ago

34 Replies

Bruise

Yesterday I did a bit of one knee kneeling to get things done . This was for short times through out the day . I got a bruise straight away on my left knee...

Yesterday I did a bit of one knee kneeling to get things done . This was for sho...

LouLamb

•7 years ago

19 Replies

Unstable temperature

Hi. I seem to always be boiling hot but not sweating or flushed, boiling hot sweating and flushed or freezing cold , teeth chattering. I have no vit D detected...

Hi. I seem to always be boiling hot but not sweating or flushed, boiling hot swe...

BBmb

•7 years ago

4 Replies

Itching all over

Hi I'm diagnosed one year ago on hydroxychloroquine 400mg a day my main problem to date has been an itch all over my body I have tried anti-histamine and...

Hi I'm diagnosed one year ago on hydroxychloroquine 400mg a day my main problem ...

bridhendo

•7 years ago

3 Replies

Hydroxychloroquine

Hi everyone just wondered if anyone can give advice I have been on hydroxychloroquine 400mg daily now for 8months my symptoms have improved slightly but still...

Hi everyone just wondered if anyone can give advice I have been on hydroxychloro...

Yozzer

•7 years ago

8 Replies

DRUG INTERACTIONS?

Hi. Steff here. I'm a 68 year old female who has been fairly healthy all my life apart from problems with depression. I now have a range of awful symptoms...

Hi. Steff here. I'm a 68 year old female who has been fairly healthy all my life...

Orchard1

•7 years ago

6 Replies

Looking for help

Hi, I'm talking to my doctor next week and will be asking them to test for Lupus. Can anyone advise me of what I should ask for. I have what might be the malar...

Hi, I'm talking to my doctor next week and will be asking them to test for Lupus...

Damien1975

•7 years ago

10 Replies

Newly diagnosed

Hi I've just had a raised blood test for lupus. I've been suffering now for nearly 2 years and nothing has been done. My arms are a mess with the rash and face...

Hi I've just had a raised blood test for lupus. I've been suffering now for near...

Jingleton

•7 years ago

1 Reply

One more sleep 💉

Good morning world 💛 I'm booked in tomorrow at 9am, having a private ODG under General Anaesthetic. Yay! Have Any of you had this procedure under GA if so...

Good morning world 💛 I'm booked in tomorrow at 9am, having a private ODG under...

LauraMk30

•7 years ago

9 Replies

NHS doctors refusal to diagnose immune disorders - conspiracy or lack of understanding ?

My wife and son both suffer from a condition that looks exactly like sjogrens but still waiting formal diagnosis. In the course of seeing a dozen or so...

My wife and son both suffer from a condition that looks exactly like sjogrens bu...

jimbo1605

•7 years ago

18 Replies

Working with lupus and worried about bills

Hi I have raynauds and am waiting to see a rheumatologist for suspected lupus. I feel exhausted and in pain most days. My question is does anyone manage to...

Hi I have raynauds and am waiting to see a rheumatologist for suspected lupus. ...

Bee1011

•7 years ago

5 Replies

My symptoms ( just to name a few)

I just wanted to ask a couple of questions. Do any of you with lupus have a big loss of appetite. Also yesterday, my three middle fingers stiffened up and got...

I just wanted to ask a couple of questions. Do any of you with lupus have a big ...

Mandypandy1969

•7 years ago

7 Replies

Leflunomide

Hi, This is my first post and having read with interest your posts wondered if any one could help me. Can anyone tell me the effectivness of Leflunomide?...

Hi, This is my first post and having read with interest your posts wondered if a...

dieselmillard

•7 years ago

2 Replies

The how of a/i?????

Someone posted this on the PMRGCA site and I thought you might be interested:...

Someone posted this on the PMRGCA site and I thought you might be interested:.....

PMRpro

•7 years ago

1 Reply

Shredding & rash

Hi can anyone advise how to prevent the inside of my mouth shredding? It's driving me nuts. Also today is quite cool so I put a jacket on and then my elbows...

Hi can anyone advise how to prevent the inside of my mouth shredding? It's drivi...

Tinkerjack1912

•7 years ago

8 Replies

Lupus

Hey all...I have had Lupus (SLE) for 20 years... I have just been told about a needle you can have once a month. Does anyone know anything about it.

Hey all...I have had Lupus (SLE) for 20 years... I have just been told about a n...

Elise3457

•7 years ago

2 Replies

Lupus

Hi. I was diagnosed with suspected lupus in April. Being confirmed this coming Wednesday. My eyes feel tired all the time. I don't have any get up and go....

Hi. I was diagnosed with suspected lupus in April. Being confirmed this coming W...

Mandypandy1969

•7 years ago

53 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2017

Another pass

When to go to the GP with suspected Lupus?

Is The Incidence Of Lupus, Disproportionately High Amongst Healthcare Professionals?

Lupus

Heavy eyes

No choice but to claim ESA but doctor refuses to backdate medical cert?

Rituximab vs abatacept-- any thoughts?

Your first appointment at the hospital

Early trials of prednisolone showed alarming side effects

Pain management tips

Anyone had these on both feet

Radiofrequency denervation info, please

Red fingers and redness inside palms

September's Topic of the Month - Getting Diagnosed (We want to hear your tips and experiences)

Bruise

Unstable temperature

Itching all over

Hydroxychloroquine

DRUG INTERACTIONS?

Looking for help

Newly diagnosed

One more sleep 💉

NHS doctors refusal to diagnose immune disorders - conspiracy or lack of understanding ?

Working with lupus and worried about bills

My symptoms ( just to name a few)

Leflunomide

The how of a/i?????

Shredding & rash

Lupus

Lupus

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