My wife and son both suffer from a condition that looks exactly like sjogrens but still waiting formal diagnosis. In the course of seeing a dozen or so consultants in respiratory, heart, neurology and general they have all concluded there is nothing wrong and its all in their heads. Yet my son barely get out of bed and string words together and my wife struggles to breath, has extreme fatigue and her mental ability is impaired + loads of other stuff.
I thought it was just us that has problems with NHS doctors until I read to my horror the many postings of patients suffering the same if not worse. This is a bit comforting (to know if we are mad we are good company) but really troubling that it is so systemmatic and has such a profound impact on people's lives.
I am a great supporter of the NHS and I am sure that Doctors are doing their best but something isnt working.
How do we make this better for all now and those to follow ?