Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,837 members • 28,177 posts

All posts for September 2017

Aralen

My doctor recently prescribed aralen to me since she said I can't crush or break plequnil in half and with this medicine you can crush it . Is or has anyone...

My doctor recently prescribed aralen to me since she said I can't crush or break...

Julie9627

•7 years ago

2 Replies

I guess it dles mean lupus is progressing

Went to Dr yesterday, Dr came in with a face that you know is not good. Lupus is rightly positive duh! And levels are rising , liver N blood high and I'm...

Went to Dr yesterday, Dr came in with a face that you know is not good. Lupus ...

Lilrosie1

•7 years ago

14 Replies

Advice on possible Lupus

Hi everyone, I'm new here. Feeling a bit lost and hoping someone can help. I'm wondering if I might have Lupus. My current symptoms are face rash (along cheeks...

Hi everyone, I'm new here. Feeling a bit lost and hoping someone can help. I'm w...

tinkerbell22

•7 years ago

4 Replies

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Painful feet- SLE

Hi, Hoping I am not the only person experiencing this, but I have pain in my feet, particularly soles but overall, when walking. It's like my bones in my feet...

Hi, Hoping I am not the only person experiencing this, but I have pain in my fee...

Hidden

•7 years ago

22 Replies

I'm new!

Hello, I'm new and thought I would introduce myself. I'm Donna. I live in the US. I stumbled across this page and I'm happy I did. I was diagnosed with SLE/RA...

Hello, I'm new and thought I would introduce myself. I'm Donna. I live in the US...

Hidden

•7 years ago

3 Replies

Poorly ankle

Has anyone else experienced thrombophlebitis as a problem with lupus? I know it is common in the general population but are you more prone having lupus? My...

Has anyone else experienced thrombophlebitis as a problem with lupus? I know it ...

Rubylu

•7 years ago

9 Replies

Optic nerve

My lupus may be causing damaged to my optic nerve. I had an eye test this morning and the opticians done a picture of the back of my eye and he saw that the...

My lupus may be causing damaged to my optic nerve. I had an eye test this morni...

Tulipano

•7 years ago

8 Replies

Rashes/blotches appearing on neck and stomach?

I wasn't sure which forum to post this to but anyways, At the back of my neck I have always spotted this sort of issue, it smells really foul - as in very...

I wasn't sure which forum to post this to but anyways, At the back of my neck I...

aaa28mg

•7 years ago

3 Replies

Steroid Hip Injections - Medical Update

My arthritis medication remains the same, Hydroxychloroquine 400 mg daily. However the pain in my hips has increased and I've had to take stronger...

My arthritis medication remains the same, Hydroxychloroquine 400 mg daily. Howev...

InnerBeauty

•7 years ago

9 Replies

Rash

Anyone have any thoughts on this rash? It's on my arm, but also on my side and my thigh, although a bit less severe. The itch is driving me mad and...

Anyone have any thoughts on this rash? It's on my arm, but also on my side and m...

kazmac45

•7 years ago

23 Replies

Steroids Damage

Hi all Sincere apologies for not posting or replying for a while. I've been in and out of hospital and attending numerous appointments over the past few...

Hi all Sincere apologies for not posting or replying for a while. I've been in ...

LSurtees

•7 years ago

3 Replies

Mixed connective tissue disease ?

Hi all sorry to bore you with another post .I was on the phone to my rheumatologists secretary today ahead of my first appointment at the end of this month ....

Hi all sorry to bore you with another post .I was on the phone to my rheumatolog...

Ryanmac84

•7 years ago

14 Replies

Brand new and still dont understand the results..help?

Upon a recent blood test, due to achy joints sore muscles extreme exhaustion breathlessness and unexplained fevers. The dr discovered ANA. 1:320, he referred...

Upon a recent blood test, due to achy joints sore muscles extreme exhaustion bre...

Sarahsmile

•7 years ago

8 Replies

27th driving lesson

Had my lesson this morning . First time driving in the rain , wasn't to bad . Lots of traffic so stop starting . My left reverse today was good . Parallel...

Had my lesson this morning . First time driving in the rain , wasn't to bad . Lo...

LouLamb

•7 years ago

15 Replies

Don't forget to add your tips and experience for the Blog

I hope it's OK I just thought I'd "bump" this post to get it back into peoples minds .... It would be great to have your tips for the next blog ......

I hope it's OK I just thought I'd "bump" this post to get it back into peoples m...

fabwheelie

•7 years ago

1 Reply

Lupus and cosmetic facial fillers

Hello , I have been diagnosed with lupus and take hydroxychlorichine tablets daily , it's mild lupus so far ...I got Juvederma Voluma fillers in my cheeks 1...

Hello , I have been diagnosed with lupus and take hydroxychlorichine tablets d...

hopeagain2015

•7 years ago

10 Replies

Ammonia smell

Hi all, recently I have been experiencing a strong smell of ammonia but no one else seems to smell it. It happens at different times of the day and in various...

Hi all, recently I have been experiencing a strong smell of ammonia but no one e...

Queencara78

•7 years ago

2 Replies

Breathlessness ?

Does anyone have breathlessness and a heavy tight feeling around the lung with pain ? What could be cause ? What helps medications etc My wife has all the...

Does anyone have breathlessness and a heavy tight feeling around the lung with p...

jimbo1605

•7 years ago

18 Replies

Chest pain

Hi, I've been having this pain on my right upper Breast bone and the pain seems to travel to my back and I don't know what this could be. I haven't been to a...

Hi, I've been having this pain on my right upper Breast bone and the pain seems ...

Asiyah_custard11

•7 years ago

3 Replies

MENSTRUAL ISSUES - HYDROXYCHLOROQUINE

A BIG HELLO to all you lovely people. I have been a member here for a while but have not posted until now. I was diagnosed with SLE in June and was initially...

A BIG HELLO to all you lovely people. I have been a member here for a while but ...

llewelyn2405

•7 years ago

17 Replies

Rheumy

Hi. Not posted for a while. Just come home from an appointment with my rheumy and I have damage to my liver and kidneys. Is this due to lupus or the medication...

Hi. Not posted for a while. Just come home from an appointment with my rheumy an...

Lancslass1962

•7 years ago

4 Replies

Insomnia and mycophenalate/ immunosuppressants? Anything anyone's had to help?

Hi, Wondering if anyone is on mycophenalate (cellcept) and has had problems with insomnia from it and if so what helps please? I'm just upping my dosage...

Hi, Wondering if anyone is on mycophenalate (cellcept) and has had problems wit...

Melba1

•7 years ago

6 Replies

Gastroscopy Under General Anaesthetic

Hey all. So here's a update from Tuesday 5th Sept Gastroscopy. The procedure went well, I loved being under General Anaesthetic!! I knew nothing about...

Hey all. So here's a update from Tuesday 5th Sept Gastroscopy. The procedure...

LauraMk30

•7 years ago

21 Replies

lupus help

does anyone know if lupus gives you pip and whether it entitles u to a blue badge ? at the moment I am waiting to find out what docs think lupus or...

does anyone know if lupus gives you pip and whether it entitles u to a blue badg...

amandafeelsrough

•7 years ago

6 Replies

first proper chat to a new gp

hi all . I feel 90 percent sure I have lupus. can I ask the gp to do an ana or dna test thing or do I need to just go in and ask to see a rheumatologist. I...

hi all . I feel 90 percent sure I have lupus. can I ask the gp to do an ana or d...

amandafeelsrough

•7 years ago

3 Replies

I'm new here, hello

Just received my first appointment to see a Rheumatologist following positive blood tests for Double Stranded DNA etc and I am trying to understand all that...

Just received my first appointment to see a Rheumatologist following positive bl...

netherthong

•7 years ago

3 Replies

steroid injection and hydroxycloroquine

hi, could anyone tell me how long a steroid injection lasts and what time span have people had in the medication working.

hi, could anyone tell me how long a steroid injection lasts and what time span h...

Mandypandy1969

•7 years ago

4 Replies

T my white end

Hi I have just found this site and feel like it's going to be such a relief to know I'm not alone. I have been suffering for about 6_7 years my GP firmly...

Hi I have just found this site and feel like it's going to be such a relief to k...

Aysheawatthey

•7 years ago

4 Replies

Methotrexate

So Tuesday was the first day for me having the Methotrexate injection instead of the tablets. Not going to lie, I was absolutely terrified but I put on a brave...

So Tuesday was the first day for me having the Methotrexate injection instead of...

Athens94

•7 years ago

15 Replies

Heart and SLE

I recently having heart issues, shortness of breath, liver issues and so many other little symptoms. Having heart catheterization next week. Diagnosed with...

I recently having heart issues, shortness of breath, liver issues and so many ot...

Jojo070674

•7 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2017

Aralen

I guess it dles mean lupus is progressing

Advice on possible Lupus

Painful feet- SLE

I'm new!

Poorly ankle

Optic nerve

Rashes/blotches appearing on neck and stomach?

Steroid Hip Injections - Medical Update

Rash

Steroids Damage

Mixed connective tissue disease ?

Brand new and still dont understand the results..help?

27th driving lesson

Don't forget to add your tips and experience for the Blog

Lupus and cosmetic facial fillers

Ammonia smell

Breathlessness ?

Chest pain

MENSTRUAL ISSUES - HYDROXYCHLOROQUINE

Rheumy

Insomnia and mycophenalate/ immunosuppressants? Anything anyone's had to help?

Gastroscopy Under General Anaesthetic

lupus help

first proper chat to a new gp

I'm new here, hello

steroid injection and hydroxycloroquine

T my white end

Methotrexate

Heart and SLE

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