Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2017

Possible Strep Throat and Depression

Hey all I've been really ill for past 4 weeks especially with my throat and voice! I have had a high course of penicillin and it's still no better....I have...

Hey all I've been really ill for past 4 weeks especially with my throat and voic...

LSurtees

•7 years ago

15 Replies

Lupus and hairloss please help

Hi. I've had lupus since I was 14. Now I'm 24. The first symptom that I got was hairloss. After doctor found out it was lupus and gave the medications, the...

Hi. I've had lupus since I was 14. Now I'm 24. The first symptom that I got was ...

Babymilo

•7 years ago

66 Replies

Follow up on anaemia

I waited a week to see my gp following breathlessness, fainting etc.I went up the stairs to ikea , into the toilet and fainted (arm down the loo). GP said that...

I waited a week to see my gp following breathlessness, fainting etc.I went up th...

johare

•7 years ago

10 Replies

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Crossover symptoms

I have been diagnosed and treated for sle for over 18 yrs now. On my last clinic appointment, having become very down about sores on my face, I asked to see...

I have been diagnosed and treated for sle for over 18 yrs now. On my last clini...

peppa

•7 years ago

5 Replies

Waiting........

I've had my home assessment nearly 2 weeks ago, I think it went ok, the person who came was very knowledgeable about lupus, fibro etc, she said I have nothing...

I've had my home assessment nearly 2 weeks ago, I think it went ok, the person w...

loober

•7 years ago

11 Replies

Feeling overwhelmed

Hi I'm Tracey, 18 months in and waiting for a firm diagnosis, everything including blood results and symptoms is confirming lupus. Feeling a little overwhelmed...

Hi I'm Tracey, 18 months in and waiting for a firm diagnosis, everything includi...

Tracey1978

•7 years ago

3 Replies

Across the Pond

I got Lupus at age 19 (1987)while in Service for the Army. It was never identified until recently, but my first indications was mouth blisters, blood...

I got Lupus at age 19 (1987)while in Service for the Army. It was never identi...

Hidden

•7 years ago

7 Replies

Malar Rash

Here's a question, is it true that a malar rash should not come and go but rather stays on your face for a certain length of time; weeks? I keep getting this...

Here's a question, is it true that a malar rash should not come and go but rathe...

Bajalala

•7 years ago

38 Replies

Has anyone had specialist orthotics made using NHS?

As I've mentioned on here before I have had a lot of problems with my hips which have had a huge affect on my walking. However I just came back from a trip to...

As I've mentioned on here before I have had a lot of problems with my hips which...

Mifford

•7 years ago

19 Replies

ANOTHER QUESTION ON KEFIR

Is it s.afe to have kefir drink when on immune suppressors as it contains live bacteria and yeast? I am on mycophenolate, prednisolone and Hydroxychloroquine....

Is it s.afe to have kefir drink when on immune suppressors as it contains live b...

field

•7 years ago

13 Replies

Probiotics

I've just had my order of VSL#3 delivered. There were a couple of long discussions here about probiotics, and I decided to give this a try. It's rather...

I've just had my order of VSL#3 delivered. There were a couple of long discussio...

Lupiknits

•7 years ago

4 Replies

Good Result from recent Meds

Day 7 of taking Hydroxichoriquine for my DLE lupus and no side effects. Also been using Protopic cream on my face for the red marks and they are fading...

Day 7 of taking Hydroxichoriquine for my DLE lupus and no side effects. Also be...

0105luppyabby

•7 years ago

1 Reply

Immunology

So I went for an appointment and it was confrmed I had dust mite allergy and a low allergy to cat hair. So why have I had just one appointment and then been...

So I went for an appointment and it was confrmed I had dust mite allergy and a l...

jan85uk

•7 years ago

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Breathlessnes

I have just spent three weeks in two different hospitals because of breathlessness. My heart and lungs are ok but I do have very mild angina. I was signed of...

I have just spent three weeks in two different hospitals because of breathlessne...

DormantTeresa

•7 years ago

11 Replies

Muscle inflammation

Does anyone have inflammation in their muscles & if so what type of treatment do you take?

Does anyone have inflammation in their muscles & if so what type of treatment do...

Cal66

•7 years ago

17 Replies

Aspirin

HI folks. I have been worried about new pain in hips for last 6 months during which have had a flare. While waiting for an opinion on it I read a bit and...

HI folks. I have been worried about new pain in hips for last 6 months during wh...

driven

•7 years ago

3 Replies

KEFIR milk- made with organic milk

Hi every, I thought I would give you an update on this very interesting subject. I said I would update you if found a producer of Kefir made with organic...

Hi every, I thought I would give you an update on this very interesting subject....

field

•7 years ago

16 Replies

Bellaflowe's facebook group

Hello all :) On a different Lupus support forum that seems to have become un-active there was a wonderful lady who decided to set up a lupus group on facebook...

Hello all :) On a different Lupus support forum that seems to have become un-act...

Penguintaz

•7 years ago

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First Rheumatologist appt done and dusted

I've been there, done that and now waiting to get the t-shirt ;) I think it went OK - I feel the real test will be my next appt in 3 months... She did listen...

I've been there, done that and now waiting to get the t-shirt ;) I think it went...

Hidden

•7 years ago

2 Replies

Brain Fog

Who says short term memory loss isn't funny? Got to laugh or you'd cry! 😅😅

Alison-Brown

•7 years ago

2 Replies

Facial bleach

Hi everyone About 3 months ago I was diagnosed with SLE.. I'm doing much better now. I used to bleach my face before but I was wondering if I could use...

Hi everyone About 3 months ago I was diagnosed with SLE.. I'm doing much bette...

Nas0702

•7 years ago

5 Replies

First GP Appt at New GP Practice

I found the GP Practice I had been with for nearly 25yrs becoming more amd more disorganised, so I registered with another in January. I had my first appt...

I found the GP Practice I had been with for nearly 25yrs becoming more amd more ...

Lupiknits

•7 years ago

2 Replies

High blood pressure

Hi . I had my check up for my my bp and it was high,I have been on lisinopril for years,so they upped my dosage about 2 weeks ago ,but when district nurse...

Hi . I had my check up for my my bp and it was high,I have been on lisinopril fo...

mousey1

•7 years ago

3 Replies

St George's, London

Hi everyone. Is anyone here under rheumatology at St George's in Tooting and can you recommend a rheumatologist from the team? Thank you in advance.

Hi everyone. Is anyone here under rheumatology at St George's in Tooting and can...

Hidden

•7 years ago

3 Replies

QUINORIC hydroxychloroquine Reaction

After my severe negative reaction to the one dose of Quinoric, does anyone know how long this pill takes to leave the system as I still feel such negative...

After my severe negative reaction to the one dose of Quinoric, does anyone know ...

riannabri

•7 years ago

12 Replies

February's Topic of the Month - Lupus & Relationships

Our blog article for February about lupus and relationships has now been published. http://www.lupusuk.org.uk/lupus-and-relationships/ Thank you so much to...

Our blog article for February about lupus and relationships has now been publish...

Paul_Howard

Partner•7 years ago

2 Replies

👣👣👣👣👣👣👣👣👣👣👣👣World Lupus Day👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hello everyone; This may be a little early but, World Lupus Day is May 10th. As most of you know I have to go barefoot...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hello everyone; This may be a little early but...

Tiras

•7 years ago

Be the first to reply

Chronic illness. Fantasy v reality

I don't know if I can post this, but it is a great video! https://www.facebook.com/ChronicIllnessOnThemighty/videos/1374582545896823/ x

I don't know if I can post this, but it is a great video! https://www.facebook.c...

whisperit

•7 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2017

Possible Strep Throat and Depression

Lupus and hairloss please help

Follow up on anaemia

Crossover symptoms

Waiting........

Feeling overwhelmed

Across the Pond

Malar Rash

Has anyone had specialist orthotics made using NHS?

ANOTHER QUESTION ON KEFIR

Probiotics

Good Result from recent Meds

Immunology

Breathlessnes

Muscle inflammation

Aspirin

KEFIR milk- made with organic milk

Bellaflowe's facebook group

First Rheumatologist appt done and dusted

Brain Fog

Facial bleach

First GP Appt at New GP Practice

High blood pressure

St George's, London

QUINORIC hydroxychloroquine Reaction

February's Topic of the Month - Lupus & Relationships

👣👣👣👣👣👣👣👣👣👣👣👣World Lupus Day👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣

Chronic illness. Fantasy v reality

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