A very brisk young lady saw me. Unfortunately there was a long wait, so son had to get back to wotk before I was seen. I was asked why I had made the appointment. Through gritted teeth I said it was my GP, then she asked what was wrong. We went through various things, she cheerfully said the Raynaud's would be so much better now the sun is coming out, so I showed her my butterfly rash selfies. I was asked sternly if I had SP50 on my face at the moment (yes). Some muttering from her about lupus. I enquired about the hydroxy and was told I couldn't increase it because of my low body weight. I asked why they put me on hydroxy in the first place as I haven't had a follow up. Explanations of how safe it was, but have an eye check every year. I pressed that I knew it was quite safe, but why, in her opinion was I taking it? She confirmed that blood tests show I am ANA, RNP (and something else) positive, though lots of people have those results and are not ill. Hydroxy to be on the "safe side".
So, another armful of blood tests, with anything problematic, I'll be contacted immediately, otherwise another appointment in four months. I did query their waiting lists, as politely as I could, and apologised if I was appearing offensive. Reassured they are rapidly getting on with sorting that problem out.
I simply have no idea if I'm being treated like a nuisance, worried well, or being patronised. I suppose I should be assured that they are doing the tests, and that I have meds.
One last thing: the Raynaud's in my hands are "OK" as long as I don't get pitting in my fingertips, but I may not be responsible for my actions if one more person advises me to wear gloves and socks as if I've never heard of them 😱
Crawling off to lie down now. Getting up in good time and enduring shower horror before going out is quite enough for one day x