Lupus : Does anyone experience some shakiness, is... - LUPUS UK

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jensen_lynne profile image
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Does anyone experience some shakiness, is it a symptom of lupus? In your arms when your in bed and your laying on your stomach and you're arms are holding you up a little bit, its wierd, it doesn't do that when I lay on my back

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jensen_lynne profile image
jensen_lynne
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katidid profile image
katidid

This did happen to me when I was in the throws of a bad flare. I finally figured out that the fatigue was simply wiping out my muscle strength and my upper body, particularly my arms, were the first to go.

Still have weakness, but it seems to get better when the fatigue lets up.

MandaM profile image
MandaM

Yes I have hand tremors and apparently is from immune suppresants. Mine are Prograf and MMF (Mycophenalate Mofetil). My tremors were awful when I was in a right health state late last year but are minor again now.

jensen_lynne profile image
jensen_lynne in reply to MandaM

What are tremors?

MandaM profile image
MandaM in reply to jensen_lynne

Tremors are where parts of your body have little shakey movements. I get tremors in my hands. If I hold my arms out in front of me when the consultants ask my hands are not still. When I'm poorly these tremours are more exaggerated. Interesting with a full cup or glass with fluids in lol when it's bad.

Freckle1000 profile image
Freckle1000

Hi.

I'm not saying anything scary is going on. It does sound like fatigue. But if you have SLE Lupus, it never hurts to bring up these things with your Doctors/specialists and perhaps see a neurologist who knows about Lupus. This is just a - 'just in case' - preventative medicine step.

Tell your Doc.

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