Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for October 2016

weird sounds and feelings

hi first time posting on this site but I end up hear when I want to find out if others are having the same body issues as me so hear it goes. back when I was...

hi first time posting on this site but I end up hear when I want to find out if ...

luther4ever

•8 years ago

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Weird denial phase..

Hi, I've been feeling unwell for 16yrs and diagnosed with lupus and aps. My ana weakly positive and lupus anticoagulant positive and anticardiolipin...

Hi, I've been feeling unwell for 16yrs and diagnosed with lupus and aps. My ana ...

Sara_A

•8 years ago

3 Replies

Worried

I had Tuesday off work as i was feeling ill. Think it was because on the road side for 2 hours in the cold on Saturday. I had today off as i needed to go for...

I had Tuesday off work as i was feeling ill. Think it was because on the road si...

LouLamb

•8 years ago

7 Replies

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Lupus Fatigue

Hi I have had Lupus for many years and always been tired, but recently the tiredness is a constant awful fatigue which is debilitating. I am so reluctant and...

Hi I have had Lupus for many years and always been tired, but recently the tired...

fifi6

•8 years ago

28 Replies

Feeling sorry for myself....

Roughly two years ago I was a relatively healthy man, who enjoyed fitness. Now I can barely move without pain and the list of conditions I'm suffering from...

Roughly two years ago I was a relatively healthy man, who enjoyed fitness. Now I...

Dan30cr

•8 years ago

20 Replies

Flu jab ..?

Hi folks I've been quiet for a while ... concentrating on trying to get back into work (yay!). It's as hard as I thought it would be but I'm up to four days a...

Hi folks I've been quiet for a while ... concentrating on trying to get back int...

Polly2Cats

•8 years ago

4 Replies

Update cellcept v myfenax

I had a review with my rheumatologist this week, and after several months of feeling pretty awful, at last I'm feeling a bit better. We agreed that this could...

I had a review with my rheumatologist this week, and after several months of fee...

creaky

•8 years ago

20 Replies

Mycophenolate fail???

I am wondering if anyone here has started mycophenolate (MMF) but had to abandon due to side effects? I started about 3 weeks ago, but after a few days, grew...

I am wondering if anyone here has started mycophenolate (MMF) but had to abandon...

whisperit

•8 years ago

10 Replies

BullCrap

So I went to ER this morning, cuz I was in pain in belly button. I had a surgery done for unbelilcal hernia about 4 yrs ago. Today they told me I have another...

So I went to ER this morning, cuz I was in pain in belly button. I had a surgery...

Jo_25

•8 years ago

2 Replies

Trying to figure it out!!!

Sooooo.... I take all kinds of meds to help with Lupus, on top of that I still get aches n pains. Different places sometimes. I take IB n Tylenol to help with...

Sooooo.... I take all kinds of meds to help with Lupus, on top of that I still g...

Jo_25

•8 years ago

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Painful Vasculitis emissions - anybody to share the experience - how you managed it

On steroids and MMF for PAN since 2000. Azathioprine or Cyclophosphamide also replaced MMF during the last 16 years treatment. Now having severe painful...

On steroids and MMF for PAN since 2000. Azathioprine or Cyclophosphamide also re...

MVJohn62

•8 years ago

1 Reply

What next...

My dr put a portable ECG monitor on me to wear bc I've been having chest pains and shortness of breath. Fatigue has hit me harder these past few months and...

My dr put a portable ECG monitor on me to wear bc I've been having chest pains a...

Ratana21

•8 years ago

11 Replies

👣👣👣👣👣👣👣👣👣👣👣👣👣Pedicure to go barefoot👣👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi everyone; I had a little time for me today, at the lupus research center they gave me a voucher for a free spa pedicure....

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi everyone; I had a little time for me toda...

Tiras

•8 years ago

28 Replies

Has anyone gone back to work after claiming ESA?

I have been on long term sick leave from my job of 20 years and I was put in the support group esa. After 9 months or so my employer was putting pressure on me...

I have been on long term sick leave from my job of 20 years and I was put in the...

Shann07

•8 years ago

7 Replies

Lab results positive and negative???

Hey guys and gals. Wanted to know if anyone knows why I have a positive Ana,lupus anticoagulant,and elevated sed rate but the doc says I don't have lupus. I've...

Hey guys and gals. Wanted to know if anyone knows why I have a positive Ana,lupu...

Lexielu

•8 years ago

2 Replies

0 Points at Work Capability Assessment

Thanks DWP. I had a call this morning informing me that I scored no points at my work capability assessment, and from today my ESA will cease. I have been...

Thanks DWP. I had a call this morning informing me that I scored no points at my...

lupie46

•8 years ago

26 Replies

My brain is not well. What is wrong with me?

Hello everyone, I'm not feeling well today. I feel very light and with straing muscular feeling in my arms and taights. My vision is slightely blure and I see...

Hello everyone, I'm not feeling well today. I feel very light and with straing m...

Biskuitka

•8 years ago

17 Replies

Sorry to bother you...

Hello I wonder if anyone could give me some advice. Since March my CRP has been raised. It was 20 (the range goes up to 5) and last week it has come down to...

Hello I wonder if anyone could give me some advice. Since March my CRP has been ...

Hidden

•8 years ago

6 Replies

Needing help sometimes

Hi there I know this is a funny one but I have lupus and fibro and have flares a lot at the moment for both. I live in Swindon and I have no family here but...

Hi there I know this is a funny one but I have lupus and fibro and have flares a...

jacclaire

•8 years ago

4 Replies

Advice requested regarding foot surgery

Hi folks! Does anyone have helpful advice for surviving corrective foot surgery? Mine is scheduled for next Tuesday. I have a "bunion" caused by hypermobility...

Hi folks! Does anyone have helpful advice for surviving corrective foot surgery?...

shareasmile

•8 years ago

14 Replies

Sick notes the rules ?

Hi does anyone know the rules about sick notes when you are on job seekers allowance. I gave the job centre a 3 month sick note but I still have to go and sign...

Hi does anyone know the rules about sick notes when you are on job seekers allow...

Buffy14

•8 years ago

3 Replies

Advice?

Hi, I have had lupus for over 20 years and never really had bad joint problems until this year where I have had difficulty with my knees and generally...

Hi, I have had lupus for over 20 years and never really had bad joint problems u...

estpem

•8 years ago

1 Reply

Acceptance and pain

Hi, I'm new here... I was diagnosed with lupus in March after almost 8 months of prodding and poking and test after test. I really struggled with coming to...

Hi, I'm new here... I was diagnosed with lupus in March after almost 8 months of...

Hidden

•8 years ago

2 Replies

Don't use benefit answers warnings online

My brother text me yesterday saying he had heard on the radio about a free benefits advice website called benefit answers.i told someone on here about it who...

My brother text me yesterday saying he had heard on the radio about a free bene...

Buffy14

•8 years ago

3 Replies

Lupus/Sjogren's diagnosed last week

Hello everyone! I'm Jen, newly diagnosed and I live in the United States, in California. This is one of the only support groups that I could find so I hope...

Hello everyone! I'm Jen, newly diagnosed and I live in the United States, in Cal...

Jenbo41

•8 years ago

13 Replies

New to community - malar flush

Hello. I am new to this community and wanted to say thank you for all your informative posts. I, at this point, have not been diagnosed with Lupus. However, I...

Hello. I am new to this community and wanted to say thank you for all your infor...

Goldyukr

•8 years ago

10 Replies

Hi gang. Had a problem with computer, but its me Footygirl

Hi me in disguise as footygirlagain. Technology is great when it works... or Im just too thick to use it! Hope you are all having an ok day Love Footygirl

Hi me in disguise as footygirlagain. Technology is great when it works... or Im ...

Hidden

•8 years ago

2 Replies

Feeling let down, frustrated, angry, scared....Anyone else battled to get a referral outside their area health board?

I'm going to try to keep this concise and not go over too much of my history with SCLE. I think those that come here regularly will know that I have struggled...

I'm going to try to keep this concise and not go over too much of my history wit...

Wendy39

•8 years ago

18 Replies

This year's flu vaccine

Anyone else have a bad reaction to flu shot this year?I woke up in the night with shakes and seriously. bad pain.

Anyone else have a bad reaction to flu shot this year?I woke up in the night wit...

lupie46

•8 years ago

13 Replies

Woke up at 4am with splitting headache

I've had a cold since Thursday. I barely slept that night due to my violent sneezes and nose running like a tap. I spent 2 days in bed and just rested. Rest,...

I've had a cold since Thursday. I barely slept that night due to my violent snee...

Wendy39

•8 years ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2016

weird sounds and feelings

Weird denial phase..

Worried

Lupus Fatigue

Feeling sorry for myself....

Flu jab ..?

Update cellcept v myfenax

Mycophenolate fail???

BullCrap

Trying to figure it out!!!

Painful Vasculitis emissions - anybody to share the experience - how you managed it

What next...

👣👣👣👣👣👣👣👣👣👣👣👣👣Pedicure to go barefoot👣👣👣👣👣👣👣👣👣👣👣👣👣

Has anyone gone back to work after claiming ESA?

Lab results positive and negative???

0 Points at Work Capability Assessment

My brain is not well. What is wrong with me?

Sorry to bother you...

Needing help sometimes

Advice requested regarding foot surgery

Sick notes the rules ?

Advice?

Acceptance and pain

Don't use benefit answers warnings online

Lupus/Sjogren's diagnosed last week

New to community - malar flush

Hi gang. Had a problem with computer, but its me Footygirl

Feeling let down, frustrated, angry, scared....Anyone else battled to get a referral outside their area health board?

This year's flu vaccine

Woke up at 4am with splitting headache

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