Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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All posts for December 2013

Experiences of Plaquinel please. I started taking it 2 months ago,

but my symptoms are getting worst apart from the Sjogren type symptoms of my eyes which seemed to get worst but then alot better. I do not have a diagnoses yet...

but my symptoms are getting worst apart from the Sjogren type symptoms of my eye...

timmysmom

•11 years ago

5 Replies

rash

hi has anyone with discoid lupus had a rash on there leg. got a couple spots with it so go doctors to check what it is.

hi has anyone with discoid lupus had a rash on there leg. got a couple spots wit...

tracyxx

•11 years ago

3 Replies

Neck pain and heavy arms

My neck is throbbing and hurts when I move it, and even my arms feel heavy and achy has anyone else had this ? I have been taking pain killers but don't seem...

My neck is throbbing and hurts when I move it, and even my arms feel heavy and a...

lennox

•11 years ago

6 Replies

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Why am I constantly tired all the time?

I wonder if any one can help by giving advice and sharing your thoughts and experiences with tiredness. Im a 19 year old girl with lupus and APS and am in...

I wonder if any one can help by giving advice and sharing your thoughts and expe...

Danielle2419

•11 years ago

3 Replies

Unhappy with my gastroenterologist attitude.

Hi all, just want to discuss my appointment I had with the Gastro consultant I had last week. This consultant was very rude, and I hope this doesn't sound...

Hi all, just want to discuss my appointment I had with the Gastro consultant I h...

Eatpower

•11 years ago

6 Replies

Dry skin even after E45 cream just on arms legs eyes watering all the time under active thyriod stiff fingers and toes, joints hurt in legs,

sasha12345

•11 years ago

4 Replies

Has anyone got constant "baseline" lupus problems? People often talk about flares and remission but I seem to have a constant level of pain?

I seem to have a constant level of aches, pains and fatigue which gets worse at certain times but never have what I would call a "remission" as such? I've been...

I seem to have a constant level of aches, pains and fatigue which gets worse at ...

Rockhopper

•11 years ago

19 Replies

Has any one got any experience or knowledge of the rhumy consultants at llandudno general hospital?

Ive asked for a referal to Dr. Amend at llandudno for a scond opinion. Im currently under Dr. Lim at wrexham but do not yet have a diagnosis, although she has...

Ive asked for a referal to Dr. Amend at llandudno for a scond opinion. Im curren...

timmysmom

•11 years ago

2 Replies

Thank you to everyone who responded to my question asking if anyone has joint/muscle pain mainly on one side of the body.

The answers were usefull and interesting. They showed that pain is not always symmetrical or the same on each side as some symptom lists for lupus state. I...

The answers were usefull and interesting. They showed that pain is not always sy...

timmysmom

•11 years ago

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Connective tissue disease , sticky blood, raynauds in fingers and tongue, prescription for hydroxychloroquine? What does this all mean?

I've had enough , the nurse wasn't very helpful I feel totally confused and down in the dumps,just had such a bad flare on sat I had to take steroids , that...

I've had enough , the nurse wasn't very helpful I feel totally confused and down...

Lupdaloop

•11 years ago

4 Replies

Hi had my pip assessment on the 11th decemebr, not sure what happens next ?

The lady I had at my pip assessment was really nice, she made me feel at ease and did not make me feel uncomfortable in any way she was lovelly. She asked how...

The lady I had at my pip assessment was really nice, she made me feel at ease an...

jeevan05

•11 years ago

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Rant about judgemental medical staff!

Went for an ultrasound this morning - due to azathioprine causing a massive increase in my liver enzymes the GP referred me. The radiographer more or less...

Went for an ultrasound this morning - due to azathioprine causing a massive incr...

Slowmo

•11 years ago

6 Replies

Does lupus cause very dry skin?

hello - I have APS and pernicious anaemia. I have a positive ANA and St T's say I have lupus like symptoms associated with the APS but full blown lupus is not...

hello - I have APS and pernicious anaemia. I have a positive ANA and St T's say...

stillwaiting

•11 years ago

4 Replies

Happy Christmas!!!!

To all you lovely people out there, hope you manage to enjoy the festive season without too much pain.

To all you lovely people out there, hope you manage to enjoy the festive season ...

Hidden

•11 years ago

10 Replies

SOS BRACELET, does anyone know of an INTERNATIONALLY recognised form of this?

I travel on my own and on my bucket list is to drive east to west coast of the USA next year. For safety's sake it would, I feel be advisable to note that I...

I travel on my own and on my bucket list is to drive east to west coast of the U...

KathinAyrshire

•11 years ago

6 Replies

Effectiveness of Hydroxichloraquine?

Hi. I have a diagnosis of RA that I often query because many of my symptoms appear to tie in more with Lupus - from non erosive joint pain with marginal...

Hi. I have a diagnosis of RA that I often query because many of my symptoms appe...

Hidden

•11 years ago

2 Replies

Mycophenolate and migraine/headaches?

Since I've upped my mycophenolate (CellCept) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have...

Since I've upped my mycophenolate (CellCept) to 1.5g per day few weeks back, I'v...

Purpletop

•11 years ago

3 Replies

Just reading on on the t'interweb and my mouth ulcers could very well be 'Trench mouth'!

I had a really bad flare last weekend. New symptoms including swelling, hot to touch elbows and knees but I developed a mouth full of ulcers and over my front...

I had a really bad flare last weekend. New symptoms including swelling, hot to t...

Houghton73shaw

•11 years ago

2 Replies

Right shoulder pain breast bone pain and sometimes under right rib cage pain

I'm suffering severe pain In between shoulder blades almost as if I've drank something and it's gone down wrong way, pain sometimes in chest bone and can b...

I'm suffering severe pain In between shoulder blades almost as if I've drank som...

Skabud10

•11 years ago

2 Replies

Has anyone been treated with harzol (a phytotherapy)? Apparently there has been 'some' positive response in RA patients.

EOLHPC

•11 years ago

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aps

what is this ?have seen it mentioned a couple of times

anbuma

•11 years ago

3 Replies

Where exactly is kidney pain

clova

•11 years ago

4 Replies

THE LONELINESS OF LUPUS

I'm fed up with friends and acquaintances taking one glance at me and coming out with the phrase "You look well, how are you feeling?" So I bite my tongue and...

I'm fed up with friends and acquaintances taking one glance at me and coming out...

KathinAyrshire

•11 years ago

43 Replies

Menopause does anyone have experience with Livial (tiboton) 2,5mg

Been having really bad day and night sweats, tried various hth meds with all sorts of side effects, bleeding non stop etc. Havn't had period for 4 months so...

Been having really bad day and night sweats, tried various hth meds with all sor...

ftjftj63

•11 years ago

3 Replies

Anyone have Psoriasis ?

I think I am having a flare of psoriasis on my scalp. Several years ago I was having issues with what I thought was bad dandruff and my doctor at the time...

I think I am having a flare of psoriasis on my scalp. Several years ago I was h...

Chapter

•11 years ago

9 Replies

Tingling in lung area?

Hi, this started yesterday - i'm getting a strange tingling feeling that is painful (but more unnerving than painful) in my back around the area of my right...

Hi, this started yesterday - i'm getting a strange tingling feeling that is pain...

Slowmo

•11 years ago

3 Replies

Has anyone else heard that lupus is becoming a specified illness, & know what this means?

My rheumy told me this on Monday, & it sounds like it will give us greater choice as to who we can be referred to for treatment. I couldn't find a lot of info...

My rheumy told me this on Monday, & it sounds like it will give us greater choic...

roobarb

•11 years ago

19 Replies

Trying out 'rivaroxaban'. Very worried.

Hi all, please could anybody ease my worry, I have been injecting tinzaparin for the last 2.1/2months, but now about to change to' rivaroxaban' and abit...

Hi all, please could anybody ease my worry, I have been injecting tinzaparin for...

addai

•11 years ago

2 Replies

I have had many symptoms for some years now recently a high titre 2560 after vB12 was low waiting 4 rheumatologist app tired and achy

Especially feet and legs back ache head aches bloating pain under right rib cage many other symptoms . I was going to doctors for years saying I didn't feel...

Especially feet and legs back ache head aches bloating pain under right rib cage...

Hidden

•11 years ago

4 Replies

Has anyone found an alternative to NSAID (non-steroidal anti-inflammatory drugs)

I am in difficulties with NSAID's I cannot live without them, the pain is too great and taking a combination of three different pain killers only takes the...

I am in difficulties with NSAID's I cannot live without them, the pain is too g...

KathinAyrshire

•11 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2013

Experiences of Plaquinel please. I started taking it 2 months ago,

rash

Neck pain and heavy arms

Why am I constantly tired all the time?

Unhappy with my gastroenterologist attitude.

Dry skin even after E45 cream just on arms legs eyes watering all the time under active thyriod stiff fingers and toes, joints hurt in legs,

Has anyone got constant "baseline" lupus problems? People often talk about flares and remission but I seem to have a constant level of pain?

Has any one got any experience or knowledge of the rhumy consultants at llandudno general hospital?

Thank you to everyone who responded to my question asking if anyone has joint/muscle pain mainly on one side of the body.

Connective tissue disease , sticky blood, raynauds in fingers and tongue, prescription for hydroxychloroquine? What does this all mean?

Hi had my pip assessment on the 11th decemebr, not sure what happens next ?

Rant about judgemental medical staff!

Does lupus cause very dry skin?

Happy Christmas!!!!

SOS BRACELET, does anyone know of an INTERNATIONALLY recognised form of this?

Effectiveness of Hydroxichloraquine?

Mycophenolate and migraine/headaches?

Just reading on on the t'interweb and my mouth ulcers could very well be 'Trench mouth'!

Right shoulder pain breast bone pain and sometimes under right rib cage pain

Has anyone been treated with harzol (a phytotherapy)? Apparently there has been 'some' positive response in RA patients.

aps

Where exactly is kidney pain

THE LONELINESS OF LUPUS

Menopause does anyone have experience with Livial (tiboton) 2,5mg

Anyone have Psoriasis ?

Tingling in lung area?

Has anyone else heard that lupus is becoming a specified illness, & know what this means?

Trying out 'rivaroxaban'. Very worried.

I have had many symptoms for some years now recently a high titre 2560 after vB12 was low waiting 4 rheumatologist app tired and achy

Has anyone found an alternative to NSAID (non-steroidal anti-inflammatory drugs)

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