Trying out 'rivaroxaban'. Very worried. - LUPUS UK

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Trying out 'rivaroxaban'. Very worried.

addai profile image
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Hi all, please could anybody ease my worry, I have been injecting tinzaparin for the last 2.1/2months, but now about to change to' rivaroxaban' and abit worried as there is no antidote for this, is anyone else on this and how you getting on with it?

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addai
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Hi - I presume you are taking this because you have anitphospholipid antibodies as well as lupus?

You might want to ask this question in the Hughes Syndrome community as I know some people with Hughes syndrome/APS are taking it already. It is being trialed in London over the next year or so, and the results should be available next year.

healthunlocked.com/hughes-s...

addai profile image
addai

Yes I had a pulmonary embolism about 16yrs ago, shortly after treatment I started to suffer shortness of breath which was passed off as, lungs sensitive to the cold air. As I used to drive it didn't worry me too much, only since walking for public transport it has become an issue. Plus I am now under a much better consultant, they suspect that there may have been remnants of the clot causing me chest pains. I am under 'lung function' and rheumatology. Thanks for your responce, I will ask the question though.

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