Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,394 posts

All posts for March 2013

Low lymph nodes

Hi everyone I've been having a flare for what seems like forever, my WBC have finally come up but only to 2.8, my lymph nodes are at 1.6. I keep panicking...

Hi everyone I've been having a flare for what seems like forever, my WBC have...

Stacy2310

•11 years ago

1 Reply

PIP - working age

The latest Lupus magazine has a very useful piece on PIP (provided by Disability Rights Norfolk). It talks about the benefit being for people 'of working...

The latest Lupus magazine has a very useful piece on PIP (provided by Disability...

Coppernob

•11 years ago

2 Replies

Reality check

I have just recently been diagnosed with CNS Lupus after years of MCTD being controlled to a large extent by hydroxychloriquine. At first I was relieved I had...

I have just recently been diagnosed with CNS Lupus after years of MCTD being con...

DaleDiva

•11 years ago

4 Replies

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Lupus Family

From what I'm reading on this forum and other literature regarding lupus, it seems that it is predominantly followed, or accompanied by other autoimmune...

From what I'm reading on this forum and other literature regarding lupus, it see...

Purpletop

•11 years ago

5 Replies

Anxiety

Hi all hope you are all coping with this cold weather? I was just wondering if anyone has suffered with anxiety? I've had a very stressful 6-9,I was seen...

Hi all hope you are all coping with this cold weather? I was just wondering...

Hidden

•11 years ago

10 Replies

Does anyone have vasculitis (blood vessel damage) as complication of lupus? Been told I have it recently. Its rare but real!

I was told my lupus was stable. Suddenely I caught a cold from the kids, got a chest infection and sore blisters over hands and feet. I was very poorly and...

I was told my lupus was stable. Suddenely I caught a cold from the kids, got a ...

Renu

•11 years ago

18 Replies

Got my DLA :)

Hi all, I just thought I would share, as some time ago I posted to ask how long it usually takes for a decision! Anyway, the good news is I have been awarded...

Hi all, I just thought I would share, as some time ago I posted to ask how long ...

pollyanna

•11 years ago

39 Replies

Support ?

How are you just supposed to ring someone and tell them that your hurting feel utterly rubbish totally unmotivated and depressed because the brave face you...

How are you just supposed to ring someone and tell them that your hurting feel u...

Briggsy

•11 years ago

7 Replies

Weird sensations

I feel a bit silly asking this I've not mentioned it to my rhematologist for the same reason. I use one of those personal cd players with relaxing cds when...

I feel a bit silly asking this I've not mentioned it to my rhematologist for the...

copdber

•11 years ago

6 Replies

painful knee again :(

evening fellow loopies, as some of you know i have "knackered knees" (the technical term used by my lupus nurse!) caused by being a sporty girl at...

evening fellow loopies, as some of you know i have "knackered knees" (the...

caninecrazy

•11 years ago

1 Reply

An update for you all................. Saw rheumy on weds and after several blood tests over several months been diagnosied!!!!!!!!!

After having most of the Lupus symptons 5+ of them now been told that my rheumy is 90% sure that I have SLE, on steriods for 6 weeks then further bloods then...

After having most of the Lupus symptons 5+ of them now been told that my rheumy ...

beckybooboo

•11 years ago

2 Replies

Did I see a Lupus meeting being held in Oldham in April on here? Can't find it - wondering if I made it up.

JudeeB

•11 years ago

1 Reply

Can lupus go from remitting to a slow progressive pattern?

Can i ask if the long term lupies out there have noticed a change in pattern and severity of symptoms over the years?Although i was only diagnosed 12 months...

Can i ask if the long term lupies out there have noticed a change in pattern and...

brave

•11 years ago

14 Replies

Facial rash or not?

Hi, I have not had a diagnoses of lupus, but am going slowly through different testing with my GP, to find out what is going on. My question is about a...

Hi, I have not had a diagnoses of lupus, but am going slowly through different t...

Hidden

•11 years ago

10 Replies

Knock,knock......is there any brain there ?

I've read a few blogs on here about brain fog and even though I could relate to some things I never for a minute I could have it ,not so sure now.yesterday was...

I've read a few blogs on here about brain fog and even though I could relate to ...

letslaugh63

•11 years ago

31 Replies

Newly diagnosed

I'm very new to this site but have found it very useful so far. I was diagnosed in January this year after around 18 months of just getting worse and worse in...

I'm very new to this site but have found it very useful so far. I was diagnosed ...

lanie2013

•11 years ago

8 Replies

* Sheffield Lupus Group Meeting Postponed*

It is with much disappointment that we have decided to postpone tomorrow's meeting due to the dreadful weather conditions in the area. As people are traveling...

It is with much disappointment that we have decided to postpone tomorrow's meeti...

Silvermyst

•11 years ago

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Diagnosis

I went to st thomas today and saw dr Senna. I have Fibromyalgia and UCTD and some of you may remember, that i have always searched for as much info/answers as...

I went to st thomas today and saw dr Senna. I have Fibromyalgia and UCTD and so...

larissa

•11 years ago

12 Replies

Relaxing

Good eveing.. hope you all have a relaxing friday :)

debilou

•11 years ago

3 Replies

Listen to your body and trust your instincts! Ring your rheumy nurse.

I have asked a few questions recently about mycophenolate and how I was still struggling with my Lupus symptoms and that even though I am supposed to have...

I have asked a few questions recently about mycophenolate and how I was still st...

tiredmum

•11 years ago

3 Replies

Do really have Lupus?

Hi, newbie here, in bed , depressed, isolated,can't decide what to do , haven't got a current gp,I know I have all the symptoms of autoimmune or lupus or both...

Hi, newbie here, in bed , depressed, isolated,can't decide what to do , haven't ...

Lupdaloop

•11 years ago

7 Replies

March's Guest Blog - Yvonne Norton (Chair of West Midlands Lupus Group, Vice Chair & Trustee of LUPUS UK)

This month's article has been written by Yvonne Norton. Yvonne is the Chair of the West Midlands lupus support group as well as being the Vice Chair and a...

This month's article has been written by Yvonne Norton. Yvonne is the Chair of t...

Paul_Howard

Partner•11 years ago

10 Replies

ESA Advice!

Hello all :) im in need of some advice regarding ESA! its for my mum who i care for full time & i really dont know much in the way of the benefits system! so...

Hello all :) im in need of some advice regarding ESA! its for my mum who i care ...

dottydingo

•11 years ago

3 Replies

Concerned about artificial sweetners (Aspartame etc) and their effects on Lupus ?

My aunt sent me an artical from America about artificial sweetners and their impact on Lupus suffers. It said that they had found a link between it and...

My aunt sent me an artical from America about artificial sweetners and their imp...

EllieB4

•11 years ago

9 Replies

Insomnia :(

It is 4:41 am and after a truely exhausting day @ hospital I had expected to be sleeping soundly when my head hit the pillow! Instead I lie here fretful about...

It is 4:41 am and after a truely exhausting day @ hospital I had expected to be ...

EllieB4

•11 years ago

8 Replies

lupus

evening all am new to this site and wanted to say hello to all :) iv had a really bad flare and am hopefully over the worse but having a difficult time coping...

evening all am new to this site and wanted to say hello to all :) iv had a reall...

debilou

•11 years ago

6 Replies

Lupus/ brain scan

Hi New to the site so a little nervous, does anyone suffer from confusion and anxiety I have also suffered from bouts of so the psychiatrist told me...

Hi New to the site so a little nervous, does anyone suffer from confusion...

Mandshere2012

•11 years ago

10 Replies

Patient Compliance

Many of my blogs are inspired by comments I read on lupus sites. This blog is one of those. As is usually the case, I copied this post from my own website:...

Many of my blogs are inspired by comments I read on lupus sites. This blog is o...

lupuswriter

•11 years ago

11 Replies

I am wondering if Mycophenolate is making my acid reflux worse.

I have been taking Mycophenolate 1500 mg a day for nearly 2 years. But recently I find that the meds I have taken for ages to control my gut problems (acid...

I have been taking Mycophenolate 1500 mg a day for nearly 2 years. But recently ...

Jude65

•11 years ago

6 Replies

What is the difference between Fibro & Lupus? Many thanks

Whatamess2

•11 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2013

Low lymph nodes

PIP - working age

Reality check

Lupus Family

Anxiety

Does anyone have vasculitis (blood vessel damage) as complication of lupus? Been told I have it recently. Its rare but real!

Got my DLA :)

Support ?

Weird sensations

painful knee again :(

An update for you all................. Saw rheumy on weds and after several blood tests over several months been diagnosied!!!!!!!!!

Did I see a Lupus meeting being held in Oldham in April on here? Can't find it - wondering if I made it up.

Can lupus go from remitting to a slow progressive pattern?

Facial rash or not?

Knock,knock......is there any brain there ?

Newly diagnosed

* Sheffield Lupus Group Meeting Postponed*

Diagnosis

Relaxing

Listen to your body and trust your instincts! Ring your rheumy nurse.

Do really have Lupus?

March's Guest Blog - Yvonne Norton (Chair of West Midlands Lupus Group, Vice Chair & Trustee of LUPUS UK)

ESA Advice!

Concerned about artificial sweetners (Aspartame etc) and their effects on Lupus ?

Insomnia :(

lupus

Lupus/ brain scan

Patient Compliance

I am wondering if Mycophenolate is making my acid reflux worse.

What is the difference between Fibro & Lupus? Many thanks

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2013

Low lymph nodes

PIP - working age

Reality check

Lupus Family

Anxiety

Does anyone have vasculitis (blood vessel damage) as complication of lupus? Been told I have it recently. Its rare but real!

Got my DLA :)

Support ?

Weird sensations

painful knee again :(

An update for you all................. Saw rheumy on weds and after several blood tests over several months been diagnosied!!!!!!!!!

Did I see a Lupus meeting being held in Oldham in April on here? Can't find it - wondering if I made it up.

Can lupus go from remitting to a slow progressive pattern?

Facial rash or not?

Knock,knock......is there any brain there ?

Newly diagnosed

*** Sheffield Lupus Group Meeting Postponed***

Diagnosis

Relaxing

Listen to your body and trust your instincts! Ring your rheumy nurse.

Do really have Lupus?

March's Guest Blog - Yvonne Norton (Chair of West Midlands Lupus Group, Vice Chair & Trustee of LUPUS UK)

ESA Advice!

Concerned about artificial sweetners (Aspartame etc) and their effects on Lupus ?

Insomnia :(

lupus

Lupus/ brain scan

Patient Compliance

I am wondering if Mycophenolate is making my acid reflux worse.

What is the difference between Fibro & Lupus? Many thanks

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

* Sheffield Lupus Group Meeting Postponed*