lupus: evening all am new to this site and wanted... - LUPUS UK

LUPUS UK

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debilou profile image
6 Replies

evening all am new to this site and wanted to say hello to all :) iv had a really bad flare and am hopefully over the worse but having a difficult time coping with the pain in my joints :( tomorrow another day

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debilou profile image
debilou
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6 Replies
Purpletop profile image
Purpletop

Hiya, welcome to the forum. It is great that you're getting better, hopefully your joints will settle down soon too. You probably have a wealth of experience to share with us, I see you've been suffering with this for some time. I look forward to your sharing that experience with everyone here. X

brave profile image
brave

Hi ,keep resting as much as possible ,yes its BORING ,but way worth it ,wishing you well ,brave.

Silvermyst profile image
Silvermyst

Hi there and welcome to the site. Glad you are improving and hope you find relief from your joint pain too. Really hope you get as much from this site as I, and I know many others, have :)

debilou profile image
debilou

Thank you for your lovely welcome comments so nice to be able to talk to other lupus sufferers and its nice to no I'm not alone ...had a restful day and managed to even get a nap in this afternoon :) the pain in my knees can be so unbearable at times but I don't think this cold weather helps much any way my fellow luppies have a relaxing friday evening :)

river profile image
river

Suffering from this wretched Lupus as you all are, just hope the warmer weather so due to us will help us. I have had one really good day this week but back to pain once again. It is helpful to hear that others have the same symptoms as I do and know that these are the norm. I am giving myself a lovely lazy day sewing today with my cuddle blanket over my lap, selfish or what!!! Best wishes to all.

diane1428 profile image
diane1428

Hi Everybody lovely to hear someone else is joining the forum. It has been my life saver. I have given the site to my docs and rheumatologist and told them to look on it and read what my fellow sufferers have to say. My GP has been on and he is amazed at all of us and what we are going through at any given time.

Im passing the word to everyone I can think of that may be of some help to us all. I went for my PIPs interview a couple of weeks ago and even told the doctor who interviewed me there. She seemed very interested and dont know whether she went on the site but all I know that within 10 days I had a letter from them telling my I was acceptable. After being told it would take upto 16 weeks I call that a result.

If we keep plugging hopefully one day doctors will be able to treat us much quicker than they are at present and definitely listening more.

Just a quickie does anyone have the same problem as me. If I bruise the bruise doesnt go. My legs are black and blue also my stomache where 10 months ago I had to give myself heparin injections. I go to the Rheumy on 9th April, im going to tell him then. Find it very odd.

Best of luck to you all and Summer is coming.

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