Just received the letter telling me that have been refused DLA. I have SLE and Fibromyalgia, I have been off work since November as I can't move far, don't feel safe out on my own as balance is dodgy, get dizzy spells and sometimes can hardly get across a room. Washing and dressing is the highlight of my day as it takes a while and is exhausting. My house is filthy as I can't clean it, I buy ready meals as cooking is too exhausting.
I am still waiting for an appointment with the nurse to show me how to inject Methotrexate as tablets make me feel very sick. I have had enough, am not sure just how ill you have to be for someone somewhere to recognise that fundamentally your life is over. Feel very let down by the whole system and cannot see it getting any better. I feel I am being punished for something that I have had no control over.