Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for November 2012

New to this

Hello everyone, I was just diagnosed in October. I have been quite sick for the last few months and was so happy to find this blog and read through the...

Hello everyone, I was just diagnosed in October. I have been quite sick for ...

Hidden

•12 years ago

18 Replies

Mattresses......

Hi all Just wanted to ask your opinion on bed mattresses. I have been having lots of back pain and wondered if anyone has a memory foam mattress and are...

Hi all Just wanted to ask your opinion on bed mattresses. I have been having...

bailey23

•12 years ago

17 Replies

Update

Hi everyone Still hanging in there - this has been my worst flare to date. Have had two doses of chemotherapy - cyclophosphamide plus three other bags...

Hi everyone Still hanging in there - this has been my worst flare to date. ...

lesleyg

•12 years ago

8 Replies

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Wind and more rain!

Hi all Well my lovely planned weekend of relaxation didnt quite go to plan. I live in Wiltshire so as you have seen on the news all our local villages have...

Hi all Well my lovely planned weekend of relaxation didnt quite go to plan. ...

bailey23

•12 years ago

5 Replies

Breathless?

Does anyone else get breathless? I am writing this on the Behcets forum AND the Thyroid forum because I have Behcets and an underactive thyroid and am trying...

Does anyone else get breathless? I am writing this on the Behcets forum AND the ...

Denise--

•12 years ago

10 Replies

Does anyone else suffer with low platelets, if so do you know why? Mine have been low for 6 weeks..not sure why? maybe the Infliximab ?

snugglebum

•12 years ago

3 Replies

Bad day off!!!

Hi all Well so much for a day in my bed on my day off. Ended up in A and E as the pain in my back and neck got so bad and couldnt bear it. Anyway after...

Hi all Well so much for a day in my bed on my day off. Ended up in A and E a...

bailey23

•12 years ago

8 Replies

lumbar puncture

got my appointment next Monday...I know I have through far worse but I am scared witless..it will be ok!

got my appointment next Monday...I know I have through far worse but I am scared...

ruthbalbirnie

•12 years ago

4 Replies

problem with one eye

eyes not happy...last night my left eye was wierd..when looking at the tv..peoples faces had bits missing! it was like the screen was in small boxes in places...

eyes not happy...last night my left eye was wierd..when looking at the tv..peopl...

ruthbalbirnie

•12 years ago

10 Replies

Am I likely to get funding for infliximab?

I started to get ill in January this year with a persistent cough and lack of breath. After 4 months of visiting the doctor I was finally referred to the...

I started to get ill in January this year with a persistent cough and lack of br...

Tobygosden

•12 years ago

7 Replies

Grrrrrr...............

Hi all All I seem to do is moan, but feel awful today. Have got a sore throat and chest infection and am generally feeling very sorry for myself. I have...

Hi all All I seem to do is moan, but feel awful today. Have got a sore throa...

bailey23

•12 years ago

5 Replies

Feeling down today myself :{

Morning, just need somebody to brighten my day, i`m feeling quite low, i seem to get to a point of where everything catches up on me and i just want to crawl...

Morning, just need somebody to brighten my day, i`m feeling quite low, i seem to...

tamirra

•12 years ago

6 Replies

Best help in scotland

I live near Edinburgh in Scotland and my rheumatologist is good but I never really get all my answers, answered and wondered if anyone else was in Scotland or...

I live near Edinburgh in Scotland and my rheumatologist is good but I never real...

kjalex

•12 years ago

4 Replies

Tingle prior to ulcers appearing??

Just before I get a bad flare up of a genital ulcer I've started getting a tingly pain down my leg and buttocks it feels really like a nerve pain, very similar...

Just before I get a bad flare up of a genital ulcer I've started getting a tingl...

kjalex

•12 years ago

6 Replies

Catching colds/bugs and having symptoms ten times worse than 'normal' people?

Does anybody feel like if they catch a cold or a bug off someone, you get it but ten times worse? I got a sickness (upset tummy etc) off my little brother and...

Does anybody feel like if they catch a cold or a bug off someone, you get it but...

Denise--

•12 years ago

10 Replies

Down days...

I had a really good week last week, was bliss, I remembered how nice it was go be half human again. Then Saturday, slump exhausted dizzy can't see straight,...

I had a really good week last week, was bliss, I remembered how nice it was go b...

frisky

•12 years ago

10 Replies

Hi everyone, was wondering if anyone can help? I'm experiencing real bad pains in chest when I eat or after eating like indigestion ......

Hi everyone, was wondering if anyone can help? I'm experiencing real bad pains in chest when I eat or after eating like indigestion but indigestion tables...

Hi everyone, was wondering if anyone can help? I'm experiencing real bad pains i...

Kerry1

•12 years ago

4 Replies

Sunday Morning

Well its Sunday morning and the house is quiet for a change, and more to the point I can get on the lap top!! What a week, pain in every joint, ulcers...

Well its Sunday morning and the house is quiet for a change, and more to the poi...

ruthbalbirnie

•12 years ago

3 Replies

were do i begin..... ouch could be a start tears another

had the vomiting bug last weekend... made me flare loads. I cant get around the house without my stick and anything outside requires the wheelchair....

had the vomiting bug last weekend... made me flare loads. I cant get around the ...

lizzykarma

•12 years ago

6 Replies

LDN

I saw a friend today with ms,.She told me about this wonder drug called LDN. I've looked it up and says it can be used go treat behcets. The problem is...

I saw a friend today with ms,.She told me about this wonder drug called LDN. I...

frisky

•12 years ago

12 Replies

Does anyone get a sore tongue?

Does anyone have a sore tongue? Get ulcers on my tongue but sometimes it just feels sore all over. And does anyone have permanent sore patches? feels like an...

Does anyone have a sore tongue? Get ulcers on my tongue but sometimes it just fe...

joannebond360

•12 years ago

38 Replies

Buritis and Behcets

Hi guys I've been diagnosed with having Buritis (sp) in my hips... Does anyone else have this and is it most probably caused by Behcets... My GP didn't...

Hi guys I've been diagnosed with having Buritis (sp) in my hips... Does anyo...

Hidden

•12 years ago

29 Replies

Face Pain - can anyone advise?

I'm in limbo, with behcets suspected. I'm having face pain, my face is sore to the touch and I feel crap to say the least. I'm having a bit of a relapse,...

I'm in limbo, with behcets suspected. I'm having face pain, my face is sore to...

goodlife

•12 years ago

11 Replies

Damp Weather = Achy Bones

Hi all Just wanted a moan. I am having a week of really aching bones and joints and am putting it down to the damp weather we have here at the moment....

Hi all Just wanted a moan. I am having a week of really aching bones and joi...

bailey23

•12 years ago

33 Replies

Can anyone offer advise on what cosmetics and make up remover to use?

Hi all... I'm really struggling to find cosmetics and make up remover that works with my skin. Everything I use seems to aggravate my already very delicate...

Hi all... I'm really struggling to find cosmetics and make up remover that wo...

Turkish2006

•12 years ago

15 Replies

Hi, my daughter has woken up today with a white tongue?

She was in hospital nearly 2 weeks ago on iv steroids, she is on antibiotics for an infection in her vein on her arm where the cannula was put, could it be...

She was in hospital nearly 2 weeks ago on iv steroids, she is on antibiotics for...

tamirra

•12 years ago

11 Replies

Newby

Hi. I have been very unwell for two years. After many different hospitals and doctors i have been diagnosed with Behcets. I have all the symptoms that i have...

Hi. I have been very unwell for two years. After many different hospitals and do...

joannebond360

•12 years ago

30 Replies

Low Oxygen and Vision Loss ??

Hi there I have ben having problems with blurred and double vision and loss and also field vision problems, that the Eye department cannot diagnose and they...

Hi there I have ben having problems with blurred and double vision and loss a...

andreafm

•12 years ago

15 Replies

NEUROLOGY APPOINTMENT - HOPE ITS STILL OUT THERE!

My appointment went WELL, I know I did say WELL...the Consultants Registrar was from Iran and guess what? he knew what I was talking about because this...

My appointment went WELL, I know I did say WELL...the Consultants Registrar was ...

ruthbalbirnie

•12 years ago

6 Replies

A waiting game

Hi all,I've been under the hospital for 5months as I had really bad mouth and genital ulcers which were so bad I was hospitalised for 4days. I was referred to...

Hi all,I've been under the hospital for 5months as I had really bad mouth and ge...

evo74

•12 years ago

3 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for November 2012

New to this

Mattresses......

Update

Wind and more rain!

Breathless?

Does anyone else suffer with low platelets, if so do you know why? Mine have been low for 6 weeks..not sure why? maybe the Infliximab ?

Bad day off!!!

lumbar puncture

problem with one eye

Am I likely to get funding for infliximab?

Grrrrrr...............

Feeling down today myself :{

Best help in scotland

Tingle prior to ulcers appearing??

Catching colds/bugs and having symptoms ten times worse than 'normal' people?

Down days...

Hi everyone, was wondering if anyone can help? I'm experiencing real bad pains in chest when I eat or after eating like indigestion ......

Sunday Morning

were do i begin..... ouch could be a start tears another

LDN

Does anyone get a sore tongue?

Buritis and Behcets

Face Pain - can anyone advise?

Damp Weather = Achy Bones

Can anyone offer advise on what cosmetics and make up remover to use?

Hi, my daughter has woken up today with a white tongue?

Newby

Low Oxygen and Vision Loss ??

NEUROLOGY APPOINTMENT - HOPE ITS STILL OUT THERE!

A waiting game

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