Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,244 members • 4,329 posts

All posts for October 2013

Retention..

Hi,I'm wondering if anyone else has suffered from this.This is the third time now (in less than 6 months) I've had urine retention & catheter :( I have been in...

Hi,I'm wondering if anyone else has suffered from this.This is the third time no...

missrosiex

•10 years ago

9 Replies

SLEEPING SECRETS?

anyone have general help with insomnia/sleeping. I think a lot has to do for me is the pain. I got a new bed to help, harder bed because the tempurpedic top...

anyone have general help with insomnia/sleeping. I think a lot has to do for me ...

Dmartin138

•10 years ago

7 Replies

For anyone who has BD and has had uveitis, are there usually continuing issues or is remission common?

Rose138

•10 years ago

21 Replies

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A letter to the Royal College of General Practitioners

Hello there everyone, I am making slow progress with my misdiagnosis project. This evening I have written a letter to the Royal College of General...

Hello there everyone, I am making slow progress with my misdiagnosis project. T...

Herbiv4

•11 years ago

6 Replies

PAIN MEDICATION

i have tried to avoid the narcotics, but I do work with a pain specialist. I was wondering if you guys feel your better without the medications or that they...

i have tried to avoid the narcotics, but I do work with a pain specialist. I was...

Dmartin138

•11 years ago

12 Replies

PREDNISONE TAPERING

Do to a recent flare up after a Remicade treatment, roughly a week later, not because the Remicade. I had to increase my prednisone up to 32 mgs from 29 to...

Do to a recent flare up after a Remicade treatment, roughly a week later, not be...

Dmartin138

•11 years ago

9 Replies

Possible Behcets diagnosis

I have just returned from my doctors who said there is every possibility I have this Behcets. After trying to find out for 4 years what is wrong with me it...

I have just returned from my doctors who said there is every possibility I have ...

juliet5427

•11 years ago

10 Replies

The real reason why sleep deprivation can destroy you

This isn't a hopeful study paper but for anyone suffering sleep deprivation due to I'll health it at least provides some supporting evidence....

This isn't a hopeful study paper but for anyone suffering sleep deprivation due ...

Herbiv4

•11 years ago

Be the first to reply

Newly Diagnosed with Neuro-Behcets

anyone have any advice? What this really entails? Does it just mean to expect the same flare ups but on my brain? Or can i expect motor skills and other...

anyone have any advice? What this really entails? Does it just mean to expect th...

Dmartin138

•11 years ago

6 Replies

I have pain in my right eye (newly diagnosed) and saw a neuro ophth. doc today. Everything looked fine during the extensive examination

and my fluorescein angiogram came back looking normal, along with a b-scan test from two weeks ago. She thinks it's pain related to vasospasm that wouldn't...

and my fluorescein angiogram came back looking normal, along with a b-scan test ...

Rose138

•11 years ago

11 Replies

I'm newly diagnosed with Behcet's and am wondering what your doctors say about exercising during a mild flare. Advisable?

For those who attempt/do work out, does it make matters worse or do you find it helps your health/symptoms?

For those who attempt/do work out, does it make matters worse or do you find it ...

Rose138

•11 years ago

16 Replies

Have been taking prednisolone for over 30 years and am going to try thalomide is anyone on thalomide?

wende42

•11 years ago

4 Replies

Hi everyone started new meds today I'm very scared bout it? Anyone on Methortrexate? If so did you get side effects and how soon? Thanks

Kerry1

•11 years ago

5 Replies

Vitamin B12

Hi, has anybody got good results from taking any supplements? I've heard about vitamin B12. What and why would that be good with BD? Thanks Josa

Hi, has anybody got good results from taking any supplements? I've heard about v...

josa

•11 years ago

8 Replies

Azathioprine

If everything went well with blood test I shall be starting this treatment on Thursday , Not sure I've got my head round it , Any views on this drug please ?

If everything went well with blood test I shall be starting this treatment on Th...

samhawks

•11 years ago

12 Replies

Bad tummy

Hi does anyone else get a bloating feeling ? Then a hungry feeling at times when you have eaten not long before , I get cramps that can wake me and sometimes I...

Hi does anyone else get a bloating feeling ? Then a hungry feeling at times when...

samhawks

•11 years ago

6 Replies

I am new here. I do not have this disease but my sister does and she is dying right now. I have a better understanding of this disease! Rae

sunrae

•11 years ago

4 Replies

Gloucester Support Group Meeting

Hi All I have arranged a venue and date for a behcets support group meeting in Gloucester. The meeting will be held 2 weeks today and the details are as...

Hi All I have arranged a venue and date for a behcets support group meeting in ...

swb1

•11 years ago

3 Replies

Looking back, I'm wondering if my placental abruption and preterm labor were related to Behcet's? Sound familiar to anyone?

Rose138

•11 years ago

8 Replies

More support from the UK Behcet's Syndrome Society on facebook!

Hi. We've never really advertised our official facebook site on this forum, but if you would like to get in touch with more people who are affected by Behcet's...

Hi. We've never really advertised our official facebook site on this forum, but ...

BSSAdmin

•11 years ago

Be the first to reply

Has anyone tried and had luck with an anti-inflammatory diet or a gluten-free diet?

Rose138

•11 years ago

12 Replies

What is the difference in Behcets and lupus other than being autoimmune diseases and with Behcets the mouth and genetial sores?

Gheeghee1945

•11 years ago

4 Replies

Help... my skin is prickly/itchy especially on arms...newly diagnosed...has anybody else had this?

Oceanna

•11 years ago

24 Replies

Are you interested in a Kent Bechet's Support Group??

Hi there, Now that we have had a good running with the London Support Group, and I will have some volunteer coordinators to maintain it, I am looking to start...

Hi there, Now that we have had a good running with the London Support Group, and...

Hidden

•11 years ago

9 Replies

'Belinda & Behcet's Disease'

http://youtu.be/XuXgBBRjS2c

AusBehcets

•11 years ago

3 Replies

hello :) I just wonder has anyone else had vasculitis on scalp?

I had my diagnosis back in 1997. Its been mostly affecting my bowel/joints/mouth but about 2 years ago it started on my head. Its currently under control with...

I had my diagnosis back in 1997. Its been mostly affecting my bowel/joints/mouth...

Hidden

•11 years ago

20 Replies

help?

My doctor just called to tell me that the HLA ABC sequencing test he ran came back with markers for Behcet's, but he doesn't feel ready to diagnose me. He...

My doctor just called to tell me that the HLA ABC sequencing test he ran came ba...

freckles66

•11 years ago

6 Replies

breathing difficulties, tight chest

HI there, I was just wondering is tight chest/breathing difficulties associated with Behcets? Anyone else get this?

HI there, I was just wondering is tight chest/breathing difficulties associated ...

starteacher

•11 years ago

6 Replies

An alternative to Pizotifen

Hello there everyone, A while back someone here mentioned that a side effect of Pizotifen is depression.and that rang bells for me. I was wondering what the...

Hello there everyone, A while back someone here mentioned that a side effect of...

Herbiv4

•11 years ago

4 Replies

Hi I'm Dee Dee I have Behcet's. Not shared before, does anyone in or around Newquay have the same?

DeeDeeNewquay

•11 years ago

6 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for October 2013

Retention..

SLEEPING SECRETS?

For anyone who has BD and has had uveitis, are there usually continuing issues or is remission common?

A letter to the Royal College of General Practitioners

PAIN MEDICATION

PREDNISONE TAPERING

Possible Behcets diagnosis

The real reason why sleep deprivation can destroy you

Newly Diagnosed with Neuro-Behcets

I have pain in my right eye (newly diagnosed) and saw a neuro ophth. doc today. Everything looked fine during the extensive examination

I'm newly diagnosed with Behcet's and am wondering what your doctors say about exercising during a mild flare. Advisable?

Have been taking prednisolone for over 30 years and am going to try thalomide is anyone on thalomide?

Hi everyone started new meds today I'm very scared bout it? Anyone on Methortrexate? If so did you get side effects and how soon? Thanks

Vitamin B12

Azathioprine

Bad tummy

I am new here. I do not have this disease but my sister does and she is dying right now. I have a better understanding of this disease! Rae

Gloucester Support Group Meeting

Looking back, I'm wondering if my placental abruption and preterm labor were related to Behcet's? Sound familiar to anyone?

More support from the UK Behcet's Syndrome Society on facebook!

Has anyone tried and had luck with an anti-inflammatory diet or a gluten-free diet?

What is the difference in Behcets and lupus other than being autoimmune diseases and with Behcets the mouth and genetial sores?

Help... my skin is prickly/itchy especially on arms...newly diagnosed...has anybody else had this?

Are you interested in a Kent Bechet's Support Group??

'Belinda & Behcet's Disease'

hello :) I just wonder has anyone else had vasculitis on scalp?

help?

breathing difficulties, tight chest

An alternative to Pizotifen

Hi I'm Dee Dee I have Behcet's. Not shared before, does anyone in or around Newquay have the same?

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive