Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for September 2018

Eye Floaters - Worry?

I’ve had uveitis a few times now, without any permanent damage as far as I know. (The last round I never had a follow up for due to other symptoms taking...

I’ve had uveitis a few times now, without any permanent damage as far as I know....

•6 years ago

Interstitial Cystitis

Has anyone experienced this? Any tips or pointers? It's pretty terrible and I am struggling to get it under control. They feel it's obviously a secondary...

Has anyone experienced this? Any tips or pointers? It's pretty terrible and I am...

•6 years ago

Bechets and nuva ring

Hi, Anyone have experience with bechets and using the nuva ring? Thanks

Hi, Anyone have experience with bechets and using the nuva ring? Thanks

•6 years ago

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Pip

Hi I was just wondering if anyone receives the enhanced mobility on the pip scheme ? X

Hi I was just wondering if anyone receives the enhanced mobility on the pip sche...

•6 years ago

trigeminal neuralgia

Does anyone have trigeminal neuralgia? I woke up with the classic symptoms 2 days ago and it is not going away, it is so painful. I'm reading that it is...

Does anyone have trigeminal neuralgia? I woke up with the classic symptoms 2 da...

•6 years ago

Abstracts from e-posters at 2018 Behcet's Intl Conference

From Sept2018 #Behcets 18th international conference in Rotterdam: Here are two lists of e-poster presentation titles & their abstracts here: Index of...

From Sept2018 #Behcets 18th international conference in Rotterdam: Here are two...

•6 years ago

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Medical Marijuana

Is anyone using medical marijuana for BD? How might it help? If so, which strains are most helpful? Thanks!

Is anyone using medical marijuana for BD? How might it help? If so, which stra...

•6 years ago

Help

Does anyone know of a reliable online pharmacy in Canada I can order my medications from? I am in the doughnut hole of Medicare and the cost here is awful....

Does anyone know of a reliable online pharmacy in Canada I can order my medicati...

•6 years ago

The Annual Flu Jab, is it good for Behcets?

So, I received a letter from my local surgery about the categories that are entitled to the annual free flu jab in the UK. I was obviously being offered one as...

So, I received a letter from my local surgery about the categories that are enti...

•6 years ago

Bechet’ s and leg/foot pain

I have just been in the hospital with bad left leg and foot pain which I have had for a while. My Dr wanted me to go into rehab which I didn’t think was the...

I have just been in the hospital with bad left leg and foot pain which I have ha...

•6 years ago

Suspected Behçet

Hi everyone, I am from Turkey, the land where Behçet Syndrome is frequently seen. It’s not a rare disease here and therefore a lot of people are labelled as...

Hi everyone, I am from Turkey, the land where Behçet Syndrome is frequently se...

•6 years ago

What the Heck?

Woke up yesterday with a bruise on my shoulder. Have no idea how it got there. Right at the area where socket would be. Really hurts. Hemotologist also...

Woke up yesterday with a bruise on my shoulder. Have no idea how it got there. ...

•6 years ago

Probable Scam

I’ve just had a disturbing message sent from a person calling themselves suesuool52 which has all the hallmarks of a scam ie wanting to make me beneficiary of...

I’ve just had a disturbing message sent from a person calling themselves suesuoo...

•6 years ago

BD and chronic pancreatitis

Has anyone been diagnosed with chronic pancreatitis due to BD? If yes what test was done to get the diagnosis? Thanks!

Has anyone been diagnosed with chronic pancreatitis due to BD? If yes what test ...

•6 years ago

Round red circles all over body?

So I have gotten these weird things going all over my neck and chest. Only new change beside joint and liver pain is a really stiff neck. Is this a ER visit...

So I have gotten these weird things going all over my neck and chest. Only new ...

•6 years ago

Ulcer Preventing Drugs?

So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers,...

So I’m getting IVIG over two days each month. This has been enormously beneficia...

•6 years ago

Learning to take Life one moment at a time.

Hello. I am grateful for all here, because many times it feels I was dropped on a giant puzzle board with so many missing pieces. Last month Diagnosed...

Hello. I am grateful for all here, because many times it feels I was dropped on ...

•6 years ago

Behcet's resources from Joanne Zeis

I've had Behcet's for almost 40 years and have been helping other BDers since 1996 through online support groups, websites, books, and other resources. Here...

I've had Behcet's for almost 40 years and have been helping other BDers since 19...

•6 years ago

Help

I have been diagnosed with behçets syndrome a few months back and got a hospital appointment on the 5th of October but I've been experiencing a sharp pain in...

I have been diagnosed with behçets syndrome a few months back and got a hospital...

•6 years ago

Hi, I Need Ur HELP!!!! Lets Beat This Beast Together!!!!

Hi all I am a 40 yr old AA female in the U.S. I have neuro behcet's first symptom 19 yr ago but not dx till 10 yr later. So official dx hss been 9 yrs. I am...

Hi all I am a 40 yr old AA female in the U.S. I have neuro behcet's first sympt...

•6 years ago

Behçets and trigeminal Neuralgia

Hi all, I have suffered with behcets for several years now and recently been diagnosed as having trigemin all neuralgia, ms hug too. Just wondered if...

Hi all, I have suffered with behcets for several years now and recently been d...

•6 years ago

Do anyone else have multiple auto-immune issues?

Hi all this is my first post, ao please be nice...lol.🤗😉 But to the point, i have hyporthyroidism post treatment for Grave's Disease, Diabetes Insipadous...

Hi all this is my first post, ao please be nice...lol.🤗😉 But to the point, i h...

•6 years ago

Muscle Issues

Good day all. Does anyone get severe muscle pain in the legs primarily upper thighs? They ache, cramp and also harden. I am having a very hard time managing...

Good day all. Does anyone get severe muscle pain in the legs primarily upper thi...

•6 years ago

Ethnicity and Behcet's

Hi everyone, I have researched and researched this disease. What I have found is that it mainly affects people of Mediterranean descent or Asian descent and...

Hi everyone, I have researched and researched this disease. What I have found ...

•6 years ago