Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for July 2018

CofE London referral made

Hello, I posted a few weeks ago having suffered with the terrible Meningitis type headache that can be experienced with this condition. I had Viral Meningitis...

Hello, I posted a few weeks ago having suffered with the terrible Meningitis typ...

EmmieJayne

•6 years ago

3 Replies

Suffering with BD

Hi, I was diagnosed 3 yearsago and today in on home injections of humira. It seems to be working well.... but I get headaches.... boy... do they hit home. I'm...

Hi, I was diagnosed 3 yearsago and today in on home injections of humira. It see...

Irish-gal

•6 years ago

6 Replies

Help

If anyone lives in wales and suffers with same as me, message me please !!!

_lisetaylorx

•6 years ago

9 Replies

Want to take advantage of all our features? Just log in!

IVIG

I just wanted to mention this for patients who may have GI and/or neurological involvement, that we’ve been doing IVIG and it’s been helping me improve...

I just wanted to mention this for patients who may have GI and/or neurological i...

NerdyChristina

•6 years ago

7 Replies

Schedule

VickiOliver it won’t let me attach a photo in dm. Oh well. But this was my past wkd. All of these days started around 11am with the exception of flying in. I...

VickiOliver it won’t let me attach a photo in dm. Oh well. But this was my past ...

rooser1

•6 years ago

1 Reply

Food intolerance and Behcets

Just posting this - it may help someone else. I found out I was lactose intolerant a while back - high chance I now have gluten intolerance too - see the......

Just posting this - it may help someone else. I found out I was lactose intolera...

sam0511

•6 years ago

6 Replies

Genital Ulcers with Yeast Infection, When Should I Worry

I’m used to mouth and rectal ulcers but I’ve thankfully only been graced with a couple genital ulcers. Now, two months without an infusion, my whole body is a...

I’m used to mouth and rectal ulcers but I’ve thankfully only been graced with a ...

NerdyChristina

•6 years ago

6 Replies

Too many Drs not enough answers

Good day hope flares are at a low for everyone. I'm now 30 years old female been coping without diagnoses since I was 7 started with fevers throat...

Good day hope flares are at a low for everyone. I'm now 30 years old female been...

Frank22222

•6 years ago

1 Reply

Spots....

Hello, Today I returned to work for a few hours after 2 weeks off following Neurological symptoms of Behçet’s. The headache seems on it’s way out (for now) and...

Hello, Today I returned to work for a few hours after 2 weeks off following Neur...

EmmieJayne

•6 years ago

17 Replies

Behcet's and acupuncture

Just wondering what people's experiences with acupuncture are. I had my first session a week ago and have mixed feelings about it. Not sure if I should give it...

Just wondering what people's experiences with acupuncture are. I had my first se...

Lara1

•6 years ago

7 Replies

Plaquenil???

Hi everyone, i have been on Plaquenil 200mg twice a day past 1 and half years and doesn't seem to help much, I have been reading that Plaquenil is only for...

Hi everyone, i have been on Plaquenil 200mg twice a day past 1 and half years an...

Chaitali11

•6 years ago

17 Replies

Bechets diagnosis

I'm in my 60s and have had vaginal and mouth ulcers of and on since i was in my 20s with flare-ups about every spring through summer. I often get sorted in...

I'm in my 60s and have had vaginal and mouth ulcers of and on since i was in my ...

Kdmel

•6 years ago

9 Replies

Help

I'm looking for any advice anyone could give. I'm 17 years old and I've just been told I have Behçet's syndrome. I have a lot of ulcers and spots over my back...

I'm looking for any advice anyone could give. I'm 17 years old and I've just bee...

_lisetaylorx

•6 years ago

5 Replies

All advice welcome and needed!

Hi my name's laura, I stumbled across this forum endlessly scrolling the net for answers! My 3rd daughter is only 11 months old but has been recently been put...

Hi my name's laura, I stumbled across this forum endlessly scrolling the net for...

Levs06

•6 years ago

13 Replies

Help

Hi , looking for some advice have been having a really bad flare for the past three weeks , doctors have put me on 60 mg of predisilone which normally works ,...

Hi , looking for some advice have been having a really bad flare for the past th...

Hidden

•6 years ago

12 Replies

Relocating and looking for drs. with Behcets experience

Can anyone recommend physicians in the Baltimore Maryland area?

aquanette

•6 years ago

2 Replies

Medicine

Good afternoon! Could someone give me a list of medicines they are currently taking for BD or medicine that have taken that seemed to work? I’m currently on...

Good afternoon! Could someone give me a list of medicines they are currently tak...

Kbethea04

•6 years ago

6 Replies

Feeling Emotionally Drained

I feel like I have been on a rollercoaster ride since March last year,with my health issues coming to a head in November when I crashed and had to admit to...

I feel like I have been on a rollercoaster ride since March last year,with my he...

Megsoph

•6 years ago

12 Replies

Vile tasting yellow fluid

I’ve been reading the posts and saw one on seizures which bought another issue to mind. I’ve probably had about three occasions where I have had some fluid...

I’ve been reading the posts and saw one on seizures which bought another issue t...

lesleyg

•6 years ago

5 Replies

Behcets and Pregnancy?

I’ve recently found out that I’m pregnant, has anyone experienced there condition getting worse or better during pregnancy? Advice would be great! TIA Sophie

I’ve recently found out that I’m pregnant, has anyone experienced there conditio...

Soph19

•6 years ago

4 Replies

An update from me

Hi Everyone, I saw a Rheumatologist yesterday as I’ve been having a flare up of symptoms recently as per my last post. I was a little worried as hadn’t seen...

Hi Everyone, I saw a Rheumatologist yesterday as I’ve been having a flare up of ...

EmmieJayne

•6 years ago

17 Replies

Recently diagnosed

Hi all I was diagnosed 6 months ago with behcet s after severe eye involvement. The amazing consultant ophthalmologist at Leicester was on it and recognised it...

Hi all I was diagnosed 6 months ago with behcet s after severe eye involvement. ...

Megsoph

•6 years ago

Be the first to reply

My partners Bechets, my Depression & anxiety mix

Hi all, Thank you for all your posts so far they really help. My partner has Bechet’s and generally fights it really well (in my opinion) but gets flare ups...

Hi all, Thank you for all your posts so far they really help. My partner has B...

Leola

•6 years ago

4 Replies

New to Behcets

I see everyone mentioning flare ups, but I have chronic pain. My left hip/ lateral thigh are always hurting. What exactly are the flare ups referring to? I...

I see everyone mentioning flare ups, but I have chronic pain. My left hip/ late...

Katgandy27

•6 years ago

1 Reply

Could periods be triggering my flares?

Hi all, I’m 34. I’ve had Behçet’s symptoms for a few years now. Things started with my diagnosis of Intermediate Uveitis 10 years ago. I had the genital ulcers...

Hi all, I’m 34. I’ve had Behçet’s symptoms for a few years now. Things started w...

EmmieJayne

•6 years ago

15 Replies

#spoonieproblems

Hi all I’m currently in the process of beginning an Instagram hashtag called #spooniesolutions. It enables people on Instagram to find posts with that tag....

Hi all I’m currently in the process of beginning an Instagram hashtag called #s...

VickiOliver

•6 years ago

Be the first to reply

Can you help with a survey?

During the past decade, Behçet’s disease (BD) has received focused attention from the biomedical and health sciences; however, the psychological aspects of...

During the past decade, Behçet’s disease (BD) has received focused attention fro...

UKADMIN

Partner•6 years ago

5 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for July 2018

CofE London referral made

Suffering with BD

Help

IVIG

Schedule

Food intolerance and Behcets

Genital Ulcers with Yeast Infection, When Should I Worry

Too many Drs not enough answers

Spots....

Behcet's and acupuncture

Plaquenil???

Bechets diagnosis

Help

All advice welcome and needed!

Help

Relocating and looking for drs. with Behcets experience

Medicine

Feeling Emotionally Drained

Vile tasting yellow fluid

Behcets and Pregnancy?

An update from me

Recently diagnosed

My partners Bechets, my Depression & anxiety mix

New to Behcets

Could periods be triggering my flares?

#spoonieproblems

Can you help with a survey?

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive