Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,245 members • 4,330 posts

All posts for February 2018

Gluten-Free is Good!

I have noticed that many of us are on Gluten-Free diets. Are there any other big food item monsters out there that aggravate Behçet’s inflammation? Going...

I have noticed that many of us are on Gluten-Free diets. Are there any other bi...

•6 years ago

Photosensitivity

Are other folks photosensitive? How do you manage it if you want to travel and be out with your family?

Are other folks photosensitive? How do you manage it if you want to travel and b...

•6 years ago

Diet support?

Hi everyone. So as I mentioned in my most recent and last post they thought I had lupus so I started the autoimmune paleo diet. Apparently this is supposed to...

Hi everyone. So as I mentioned in my most recent and last post they thought I ha...

•6 years ago

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Cholchine and joint pain

Hi everyone. I have had a rough go for awhile and I recently met a new doctor who thinks I have Bechets. I was originally diagnosed with Lupus but he doesn't...

Hi everyone. I have had a rough go for awhile and I recently met a new doctor wh...

•6 years ago

Third set of oral ulcers and can’t stop coughing for 3+’ months now

So after waiting to see if my 1st apthous oral ulcer would be followed by anymore after suffering from retinal vasculitis and BRAO OF RIGHT EYE , I’ve now had...

So after waiting to see if my 1st apthous oral ulcer would be followed by anymor...

•6 years ago

Doctors

Hi guys hope your all well or as well as we can get. I have had a very interesting day today at hospital. I went to see my consultant at local hospital which I...

Hi guys hope your all well or as well as we can get. I have had a very interesti...

•6 years ago

Behcet's resources for new members

BEHCET'S RESOURCES from Joanne Zeis I've had Behcet's for 35+ years and have been helping other BDers since 1996 through online support groups, websites,...

BEHCET'S RESOURCES from Joanne Zeis I've had Behcet's for 35+ years and have bee...

•6 years ago

How you deal with Behcet's

Hi I joined on here the other day I got diagnosed last year in October I am 17, (really lucky to be diagnosed at this age). Just wondering if any had been...

Hi I joined on here the other day I got diagnosed last year in October I am 17, ...

•6 years ago

Behcet's

Hi - I'm 17 and I was diagnosed with Behçet's Diseases last year in October I have been on prednisolone for 7 months now. I am constantly suffering with back...

Hi - I'm 17 and I was diagnosed with Behçet's Diseases last year in October I h...

•6 years ago

Joint pain

Hi,was diagnosed with Behcets 2 years ago but I don't have mouth ulcers or any rashes anywhere but i am suffering pain in my right hand from elbow to my...

Hi,was diagnosed with Behcets 2 years ago but I don't have mouth ulcers or any ...

•6 years ago

Heart issues - Pacemaker ? endocarditis

I was diagnosed with Behcet's last year. The most significant features has been the ulcers, red rashes in the mouth and a sore tongue and lips which did not...

I was diagnosed with Behcet's last year. The most significant features has been ...

•6 years ago

Keratosis pillaris

anyone suffering from this? It's really irritating. i almost tried everyting, it never go away. I would love to hear any information from you guys on how you...

anyone suffering from this? It's really irritating. i almost tried everyting, it...

•6 years ago

Be the first to reply

Hello

Hi! I am new here. I was diagnosed with behcets last November 2017. I have been taking methylprednisolone since then and now it has been tapered to 8mg medrol...

Hi! I am new here. I was diagnosed with behcets last November 2017. I have been ...

•6 years ago

Sore tongue and Behçets disease

Hello I was diagnosed with behcets 2 years ago and after my initial 3 months of symptoms I have not had any for nearly two years. I think I am currently in a...

Hello I was diagnosed with behcets 2 years ago and after my initial 3 months of...

•6 years ago

Would someone have a glance at my symptoms and see if it is possible Behcet's please?

Hi - I am now 56 and have been suffering now since 1998 as a result of a series of surgeries (21 anaesthetics since then!) to repair a Recto-Vaginal Fistula of...

Hi - I am now 56 and have been suffering now since 1998 as a result of a series ...

•6 years ago

Bladder Issues

Hi All, Was wondering if anyone has ever had bladder issues with Bahcets. I feel constant pressure, the urge to pee but not necessarily have to and throbbing....

Hi All, Was wondering if anyone has ever had bladder issues with Bahcets. I fee...

•6 years ago

New and curious

I've just been diagnosed with BD just wanting to know if anyone has taken the all natural route and had good results? I really don't like to be on prescription...

I've just been diagnosed with BD just wanting to know if anyone has taken the al...

•6 years ago

Behcet's disease

I have just been diagnosed with BD and really do not want to be on doctor prescribed medications. Is there any diet, supplement and all natural way to keep the...

I have just been diagnosed with BD and really do not want to be on doctor prescr...

•6 years ago

Nasal problems

Does anyone have any issues with their nasal passages? Mine feel like they are completely blocked at the top of my nose as if the veins inside are swollen. I...

Does anyone have any issues with their nasal passages? Mine feel like they are c...

•6 years ago

My new life

My name is Jennifer, I’m married with no kids. I work as a bank manager. It’s been a rough couple of years dealing and learning about Behçet’s. I have been on...

My name is Jennifer, I’m married with no kids. I work as a bank manager. It’s be...

•6 years ago

2nd mouth ulcer now. Started w retinal vasculitis and BRAO 1&1/2 years ago

I’m still struggling and waiting on symptoms so I can get a diagnosis. I have my second large ulcer on the roof of my mouth now. This one hurts and looks like...

I’m still struggling and waiting on symptoms so I can get a diagnosis. I have my...

•6 years ago

Behcets and pregnancy

I'd be very grateful for any thoughts and advice on Behcets and pregnancy. I've heard that pregnancy reduces Behcets symptoms for the 9 months - is there any...

I'd be very grateful for any thoughts and advice on Behcets and pregnancy. I've ...

•6 years ago

Flank pain bilateral

Hi everyone! Last week I was hosptialized for pneumonia, was given antibiotics and predinosne 50 mg everyday for 5 days. I was discharged home and felt so...

Hi everyone! Last week I was hosptialized for pneumonia, was given antibiotics ...

•6 years ago

Anyone getting chicken pox-like rashes?

Has anyone else gotten a chicken pox-like rash from their Behcets? I’ve had 3 rashes over the last 14 mos, in varying severity, one which left me hospitalized...

Has anyone else gotten a chicken pox-like rash from their Behcets? I’ve had 3 ra...

•6 years ago

What to expect at my first rheum appt.

I have my first appt with a rheumatod doctor on Thursday. I have a nurologist and a gum specialist who both refer me a rheumatod for suspension of Behcets. My...

I have my first appt with a rheumatod doctor on Thursday. I have a nurologist an...

•6 years ago

What do the gential sores/lesions feel/look like (female)?

My symptoms all flared up hard core 3 months ago, at first they thought I had trench mouth so I was prescribed antibotics...i then developed what i thought was...

My symptoms all flared up hard core 3 months ago, at first they thought I had tr...

•6 years ago

Does pain medication make neuro symptoms worse?

I still haven't got an official diagnosis but 2 specialist suspect it. I was prescribed hydrocodone for the mouth pain so I make sure I am eating enough but I...

I still haven't got an official diagnosis but 2 specialist suspect it. I was pre...

•6 years ago

If swellling of the mouth common with mouth sores/ulcers?

Does anyone have swelling with their mouth sores? I havent got an official diagnoses but 2 specialist suspect BD. Even when the sores are tiny my lips are...

Does anyone have swelling with their mouth sores? I havent got an official diagn...

•6 years ago

Finally diagnosed

After 9 years of waiting I’ve finally been diagnosed with behcets. I found a doctor I’m really comfortable with and I’m confident that he can help me. I’ve had...

After 9 years of waiting I’ve finally been diagnosed with behcets. I found a doc...

•6 years ago

Recent diagnosis

Hi. I'm new here. My wife was recently diagnosed with Behcets having suffered from ulcers most of her life. In some ways its a relief that we now have a...

Hi. I'm new here. My wife was recently diagnosed with Behcets having suffered fr...

•6 years ago

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