Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,246 members • 4,330 posts

All posts for November 2018

2 headache free days

2 headache free days! still awake at 8pm this has been great! Not going to push it to much further but when it’s good it’s hard not to. Hope everyone is having...

2 headache free days! still awake at 8pm this has been great! Not going to push ...

Bachetsrabbithole

•5 years ago

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Infliximab

Hi everyone Been to see Gastro specialist today and they're going to start me on Infliximab infusions Was just wondering if anyone is also on this drug, and...

Hi everyone Been to see Gastro specialist today and they're going to start me on...

•5 years ago

Bloating

Hi Quick one here. I look 9 months pregnant which as a guy isn’t great - does anyone else get bloating? If so how do you deal with it? Thanks C

Hi Quick one here. I look 9 months pregnant which as a guy isn’t great - does...

•5 years ago

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Constant lower gut pain.

I ignored the pain for over a month but can't any longer. My lower gut is hurting. I had a flare of mouth ulcers and around the same time every time I eat,...

I ignored the pain for over a month but can't any longer. My lower gut is hurti...

•5 years ago

Ulcers ulcers ulcers

Bloody ulcers. Back of my nose, back of my mouth and in my throat. So sore, so painful. Tried difflam already and now some throat lozenges. Still sore....

Bloody ulcers. Back of my nose, back of my mouth and in my throat. So sore, so ...

•5 years ago

SI Joint Pain/Buttocks Pain

Hi all. I had an SI steroid injection about 2.5 months ago and it helped a GREAT deal. It's already worn off though!!! Does anyone else experience deep SI...

Hi all. I had an SI steroid injection about 2.5 months ago and it helped a GREAT...

•5 years ago

Vaginal and rectal issues?

Hope everyone understands and appreciates that I am not trying to be too graphic or crude but have nowhere else to turn. I have a history of endometriosis...

Hope everyone understands and appreciates that I am not trying to be too graphic...

•5 years ago

Headaches

Headaches coming up strong every few days!!! Nothing is bringing them down to a manageable pain level. Not wanting to go in to the MD for them. I have 3...

Headaches coming up strong every few days!!! Nothing is bringing them down to a ...

Bachetsrabbithole

•5 years ago

SSDI hearing coming up. Really scared

After two years of waiting my hearing is coming up. I am really scared im gonna get denied even though everyone including my lawyer says I have a really good...

After two years of waiting my hearing is coming up. I am really scared im gonna...

•5 years ago

Face ache

Morning all. Have had a really good run this last couple of weeks feeling stronger and becoming more resilient. TN appears under control, my moods are more...

Morning all. Have had a really good run this last couple of weeks feeling stro...

•5 years ago

So tired...

I’m 21, and exhausted I work 8 hour days (somehow) and even while doing tasks I find I close my eyes for too long sometimes..... when I get home I need to nap,...

I’m 21, and exhausted I work 8 hour days (somehow) and even while doing tasks I ...

•5 years ago

Positive notes?

Curious to learn about some positive stories of long periods of remission, disease being under control and allowing productive lives.

Curious to learn about some positive stories of long periods of remission, disea...

•5 years ago

Pain

Anyone else up at night with joint pain?? Soooo fed up with being in pain and keeping me up at night😡. My knees, elbows, shoulder, toes and fingers but not...

Anyone else up at night with joint pain?? Soooo fed up with being in pain and ke...

•5 years ago

Anyone tried baking soda mouth rinse to relieve pain from BD mouth ulcer flares?

I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat,...

I've heard of rinsing with baking soda before but never used it. I get particula...

•5 years ago

I click - literally

Morning all, Woken up this morning with swollen joints and clicking whenever I move. Has anyone else had this? My joint sometimes swell but I have never had...

Morning all, Woken up this morning with swollen joints and clicking whenever I ...

•5 years ago

Lesson learnt

Ok So we all live a cheeky Nando’s right?? Went last night with Mrs papa pickle and had a great time before watching bohemian rhapsody. My point is that I...

Ok So we all live a cheeky Nando’s right?? Went last night with Mrs papa pickl...

•5 years ago

The gift that keeps on giving

Hi folks . I was diagnosed 2 years ago and have been on fortnightly Humira injections for a year or so. My uveitis is much improved but I'm currently suffering...

Hi folks . I was diagnosed 2 years ago and have been on fortnightly Humira injec...

•5 years ago

Support

I am so very grateful for the support I have found on this site. You have helped me to get my thoughts in order and made me realise I am not alone in all of...

I am so very grateful for the support I have found on this site. You have helpe...

•5 years ago

New rheumatologist

Saw new rheumatologist today. Really like him a lot. Isn't sure if I truly have Lupus or Fibromyalgia along with the Bechet's or not but as he said, if what...

Saw new rheumatologist today. Really like him a lot. Isn't sure if I truly hav...

•5 years ago

Help me

Hello all friends I have behcets Dessie's, could you help me how to provent to boost from this problem or treatment Dia,thanks

Hello all friends I have behcets Dessie's, could you help me how to provent to ...

•5 years ago

Am I allowing myself to be a victim of this?

Hi So here it is. I am back to work - it’s not been bad, with full support being offered and a phased return. My thoughts at the moment are steady, my mood...

Hi So here it is. I am back to work - it’s not been bad, with full support bein...

•5 years ago

Bartonella Henselae with Bachet’s?

Anyone also test positive for Bartonella Henselae? My titer came back 1:124 which some considered board line infection or past infection. No symptoms of...

Anyone also test positive for Bartonella Henselae? My titer came back 1:124 whic...

Bachetsrabbithole

•5 years ago

Question re. Before a flare

Hi all hope your day is not too bad today. If it is sending🤗 to you. I have noticed that before a bad flare that I am constantly urinating, maybe a day or so...

Hi all hope your day is not too bad today. If it is sending🤗 to you. I have not...

•5 years ago

Legs locking up

Does anyone have problems with their limbs locking up so they are totally immobile? Happened quite a few times over the last fortnight and again today at...

Does anyone have problems with their limbs locking up so they are totally immobi...

•5 years ago

Seen the Rheumatologist

Hey everyone! I went and saw the rheumatologist yesterday, he was great. He listened to me and really thought it could be behcets. However, I don’t have any...

Hey everyone! I went and saw the rheumatologist yesterday, he was great. He list...

•5 years ago

I am an expert in wound management now

Nasty lesions when Drs made me lower drug dosages. I suffered and made everyone around me miserable too.

Nasty lesions when Drs made me lower drug dosages. I suffered and made everyone ...

•5 years ago

The curse of the mouth ulcer!

Woke up this morning with this little beauty! I find warm salt water helps relieve the discomfort and numb the area until it heals, and the odd bag of salt...

Woke up this morning with this little beauty! I find warm salt water helps reli...

•5 years ago

Lightning

Watched the most amazing electrical storm last night in the bay of menorca where we currently are. Reminded me very much of the TN that I have & am currently...

Watched the most amazing electrical storm last night in the bay of menorca where...

•5 years ago

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