Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,243 members • 4,329 posts

All posts for March 2015

Symptoms, medication advice and heart pain/palpitations.

Hi, Help please - tablet advice and heart symptoms. I have been told I may have Behcet's I am under the clinic at Addenbrooke's. I have tried to take...

Hi, Help please - tablet advice and heart symptoms. I have been told I may h...

kezzle

•9 years ago

8 Replies

Sjogren's and orange fingernails

Hi everyone! I have two questions. Does anyone suffer from Sjogren's syndrome along with your Behcet's? Here is a good one......do any of you have orange...

Hi everyone! I have two questions. Does anyone suffer from Sjogren's syndrome ...

northof54

•9 years ago

7 Replies

Bullous pemphigiod

Hi I have a condition called Bullous pemphigiod , and I'm wondering how often I should get my urine , blood and blood pressure checked ?

Hi I have a condition called Bullous pemphigiod , and I'm wondering how often I ...

Hidden

•9 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Roferon/Rituximab/Campath anyone?

Looking for info about these drugs in the managment of systemic Behcet's with particular flaring of uveitis in eyes. Anyone had any joy with them? I have...

Looking for info about these drugs in the managment of systemic Behcet's with pa...

GUEVARA

•9 years ago

1 Reply

Intrevenal Ozurdex Implant anyone?

Getting a capsule of slow release steroid into my eye in two weeks. I was wondering if anyone else had had any joy with this in managing uveitis? Thanks, Tim

Getting a capsule of slow release steroid into my eye in two weeks. I was wonder...

GUEVARA

•9 years ago

1 Reply

Krill oil for arthralgia

My 20 yr old daughter is about to be put on Methotrexate. However a friend of mine recommended taking Krill oil for arthritis (although my daughter only has...

My 20 yr old daughter is about to be put on Methotrexate. However a friend of mi...

s10d7

•9 years ago

Be the first to reply

update daughter aged 11

where do I start my daughter's eyes hasn't got better or worse but her optic nerve as fluid around it . I'm feeling confused on what's going to happen next...

where do I start my daughter's eyes hasn't got better or worse but her optic ne...

shine78

•9 years ago

5 Replies

Behcet's in a Day - Cardiff

Hi all Welsh patients, and their families! Registration for the first Behcet's in a Day in Wales is now LIVE! Arghh! I've been busy this afternoon emailing...

Hi all Welsh patients, and their families! Registration for the first Behcet's ...

lilaraquel

•9 years ago

3 Replies

Pain clinic

I think this is the first time I've written although I follow the posts daily. I have Behcets and hereditary sensory neuropathy (Charcot Marie Tooth disease)....

I think this is the first time I've written although I follow the posts daily. I...

Rachel-Grace

•9 years ago

11 Replies

Gluten free diet?

Has anyone tried a gluten free diet which I have been advised may help with the severity of the behcet flares, especially joint pain.

Has anyone tried a gluten free diet which I have been advised may help with the ...

s10d7

•9 years ago

4 Replies

Itchy Feet

Hi, Not sure quite what to do, I have had very itchy feet but not sure what is causing this. I have Behcets / Addisons and Dercums. I have tried...

Hi, Not sure quite what to do, I have had very itchy feet but not sure what is c...

smitten500

•9 years ago

1 Reply

Gastric Ulcers

Hello Fello Suffers, I have recently had a colonoscopy that showed ulcers, inflammation and odeama in and around the ileum valve and ascending colon. I...

Hello Fello Suffers, I have recently had a colonoscopy that showed ulcers, infl...

Bethb

•9 years ago

6 Replies

Weekend away

URGENT -LAST CALL for the WEEKEND AWAY Of you are 25 or under - or know some one who is please please come to the first weekend away for young sufferers. We...

URGENT -LAST CALL for the WEEKEND AWAY Of you are 25 or under - or know some one...

AmandaMoseley

•9 years ago

1 Reply

Vasculitis Patient Symposium - London - April 2015

Hope you do not mind me sharing this post but Vasculitis UK are hosting a Vasculitis Patient Symposium in London in April 2015, to coincide with the...

Hope you do not mind me sharing this post but Vasculitis UK are hosting a Vascul...

John_Mills

•9 years ago

2 Replies

Diverticulitis

Hello to everyone, this is my first post although i have been reading healthunlocked since my BD diagnosis last year. It is comforting to know that I am not...

Hello to everyone, this is my first post although i have been reading healthunlo...

Zoie

•9 years ago

6 Replies

Infliximab or Humira

It's probably 6 months since my last post. I'd like to thank everyone who replied. I initially asked if anyone was still being prescribed Thalidomide and where...

It's probably 6 months since my last post. I'd like to thank everyone who replie...

Meggy7791

•9 years ago

9 Replies

My 12 year old has BD as people on here know but now has OCD in her elbow joints.

Has anyone with children about 12 to 15 with BD also had Osteochrondritis Dissecans and Cartilage injuries? I'm so confused, is this another branch to my...

Has anyone with children about 12 to 15 with BD also had Osteochrondritis Dissec...

Michja

•9 years ago

2 Replies

Hip trouble

Hi all I have a painful groin , I have had inflation in both my shoulders and wondered if anyone had any of this

Hi all I have a painful groin , I have had inflation in both my shoulders and wo...

samhawks

•9 years ago

3 Replies

Wales Support Group

Hi all, I'm looking to arrange the next Support Group for patients in Wales! I have Saturday 9th or Sunday 10th May as possible dates to arrange it for, so...

Hi all, I'm looking to arrange the next Support Group for patients in Wales! I h...

lilaraquel

•9 years ago

4 Replies

genital ulcer and yeast infection??

Okay, so I have suffered from genital ulcers due to my Behcets for a while (currently on treatment for a flare), but now I have a yeast infection to add insult...

Okay, so I have suffered from genital ulcers due to my Behcets for a while (curr...

nkendrick611

•9 years ago

8 Replies

Anyone else have this problem?

The current issue I'm having right now is I strained my back a year ago and I can't seem to get it well

The current issue I'm having right now is I strained my back a year ago and I ca...

star5555

•9 years ago

2 Replies

Hi everyone

I'm new to this group I have had issues since I was in my twenties However was diagnosed with mild case of behcets five yrs ago. It is very frustrating and...

I'm new to this group I have had issues since I was in my twenties However was d...

star5555

•9 years ago

1 Reply

Search posts

Pinned Posts

See all

Online Behçet's Support Group Meetings

Last call for Secukinumab in Behçet’s trial

Latest poll

See all polls

How long ago were you diagnosed with Behcet's Syndrome?

Vote

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for March 2015

Symptoms, medication advice and heart pain/palpitations.

Sjogren's and orange fingernails

Bullous pemphigiod

Roferon/Rituximab/Campath anyone?

Intrevenal Ozurdex Implant anyone?

Krill oil for arthralgia

update daughter aged 11

Behcet's in a Day - Cardiff

Pain clinic

Gluten free diet?

Itchy Feet

Gastric Ulcers

Weekend away

Vasculitis Patient Symposium - London - April 2015

Diverticulitis

Infliximab or Humira

My 12 year old has BD as people on here know but now has OCD in her elbow joints.

Hip trouble

Wales Support Group

genital ulcer and yeast infection??

Anyone else have this problem?

Hi everyone

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive