Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,252 members • 4,332 posts

All posts for January 2019

Disability Blue Badge Uk (car parking)

Hi all, I hope you are all doing the best you can right now and send you all🤗. I just wanted to know if anyone in the UK has applied and succeeded in getting...

Hi all, I hope you are all doing the best you can right now and send you all🤗. ...

Benne09

•5 years ago

6 Replies

Restless leg syndrome

Hi there Just wanted to ask if any of you guys suffer with restless legs and is it related to Behcets syndrome. What are you taking for the restless legs

Hi there Just wanted to ask if any of you guys suffer with restless legs and is ...

AIN46

•5 years ago

5 Replies

Visual impairment? New app can help!

This is such a genius idea. A free app where volunteers can help you out with the everyday issues people face when their vision is impaired. May be useful for...

This is such a genius idea. A free app where volunteers can help you out with th...

Legomum

•5 years ago

1 Reply

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Anyone have issues with lower gut?

I had a colonoscopy today( prep is brutal) that showed very little but Dr. took a biopsy just to be safe. Have to wait a week for results. Couldn't reach...

I had a colonoscopy today( prep is brutal) that showed very little but Dr. took ...

Brichel

•5 years ago

15 Replies

Do you recognize this?

Pardon my bathtub photo shoot (the warm water works wonders for my pain so I tend to practically live here) but I’m curious to see if anyone recognizes this...

Pardon my bathtub photo shoot (the warm water works wonders for my pain so I ten...

Stin4

•5 years ago

14 Replies

Just wondering if there's Anyone in U.S. that has BD?

Hi, I was curious if anyone is in U.S. I would like to connect in regards to treatment. I feel there is so little info Dr.s here have ..I wish they fully...

Hi, I was curious if anyone is in U.S. I would like to connect in regards to tre...

Ang4upmich

•5 years ago

16 Replies

Feeling trapped behind Behcet's

Good day everyone, I have been very quietly observing this forum since my diagnosis of (HLA-B51) Behcet's around two and a half years ago at Addenbrookes...

Good day everyone, I have been very quietly observing this forum since my diagno...

Eaf1

•5 years ago

16 Replies

Behcet’s and balance

Hello. I’m 38 and I experience balance issues when I stand or walk, especially in the morning. I recently noticed that my balance improved while taking...

Hello. I’m 38 and I experience balance issues when I stand or walk, especially i...

BFalls

•5 years ago

14 Replies

Actemra new drug treatment for Behcet Vasculitis

Has anyone taken Actemra infusions for Behcet Vasculitis? If yes how did it help

Has anyone taken Actemra infusions for Behcet Vasculitis? If yes how did it hel...

ksidhu79

•5 years ago

1 Reply

Thankful

I'm so happy to have found a group (even though I live in the US). I was diagnosed this past week after suffering from mono symptoms for the past 4 months. I...

I'm so happy to have found a group (even though I live in the US). I was diagnos...

MellyA

•5 years ago

2 Replies

Twitching/ pulsating

Does anyone else have issues with “twitching”? Sometimes it’s my fingers sometimes it feels like something on the inside of my leg, sometimes my eyes. Even my...

Does anyone else have issues with “twitching”? Sometimes it’s my fingers sometim...

Lucets

•5 years ago

17 Replies

Potential Bechet's?

I am plagued by a plethora of various health issues and have had several diagnoses over the years but recently out of curiosity i had my DNA sequenced, this...

I am plagued by a plethora of various health issues and have had several diagnos...

MegaNeko

•5 years ago

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Laser Hair Removal/Hollywood 😳

Hi, really struggling with Vag Ulcers and struggling with hygiene there (hair) I can only shave as creams bring out boils & ulcers a lot quicker & painful. I...

Hi, really struggling with Vag Ulcers and struggling with hygiene there (hair) I...

Ann1-74

•5 years ago

4 Replies

Topamax withdrawal night sweats

I am withdrawing from Topamax, 100mg, have been on it for a few years. I have been off it completely for two and a half weeks. The last 10 days or so I have...

I am withdrawing from Topamax, 100mg, have been on it for a few years. I have be...

Tigerlily2

•5 years ago

5 Replies

Too much again

I write this while at work. Here’s the thing. I have accepted that I cannot do all the things that I used to, that things are different now. That’s ok - I...

I write this while at work. Here’s the thing. I have accepted that I cannot do...

Papapickle

•5 years ago

10 Replies

Sitz Bath ingredients

Does anyone have a favourite oil or ingredient to add into their sitz bath? I looked it up on Google and there was a long list from Epsom salts to witch...

Does anyone have a favourite oil or ingredient to add into their sitz bath? I l...

lesleyg

•5 years ago

4 Replies

Likelihood of developing eye problems

Hi everyone I’m really new to this forum but I am so grateful to all the people who post questions, and to those that reply! I was diagnosed with BD a month...

Hi everyone I’m really new to this forum but I am so grateful to all the people ...

LisaNZ

•5 years ago

17 Replies

Joint pain?

Hi everyone! I’m currently experiencing a lot ( a lot, a lot) of pain in my heels, knees, hips, wrists, lower back and head. The thing is I’ve never...

Hi everyone! I’m currently experiencing a lot ( a lot, a lot) of pain in my heel...

Stin4

•5 years ago

10 Replies

Effective pain relief for genital ulcers

Has anyone found an effective pain relief for female genital ulcers please? This symptom started about a year ago and I am currently experiencing a severe...

Has anyone found an effective pain relief for female genital ulcers please? Thi...

Vanblitzen

•5 years ago

31 Replies

Tips and tricks / Stopping symptoms

Is there anything that anyone notices that helps? I’m looking for help with getting rid of vaginal ulcers and keeping them gone. I am noticing a pattern...

Is there anything that anyone notices that helps? I’m looking for help with gett...

Lucets

•5 years ago

9 Replies

Back to that place again

Ran out of acetazolomide on Friday. Thought I had some ‘in stock’ but no. Went without the whole weekend and this morning I was sick, vision started to go and...

Ran out of acetazolomide on Friday. Thought I had some ‘in stock’ but no. Went w...

Papapickle

•5 years ago

3 Replies

Joint pain

I have Behçet’s Disease and I am experiencing ankle and wrist pain and it hurts every time I walk or but pressure on my wrist or ankles. I am also experiencing...

I have Behçet’s Disease and I am experiencing ankle and wrist pain and it hurts ...

Cool_blue

•5 years ago

4 Replies

life with seizers garden1

does anyone elseout there suffer with seizes since they have been troubled with betchets i stillhave found no help or answers with the medical profesion as...

does anyone elseout there suffer with seizes since they have been troubled with ...

garden1

•5 years ago

3 Replies

Australian patients ?

Just wondering how many of this Behçet’s community are in Australia? I have a good doctor friend (we grew up as neighbours) who has moved to work in...

Just wondering how many of this Behçet’s community are in Australia? I have a go...

Legomum

•5 years ago

3 Replies

I made a chart to document my BD involvement

So I'm quite nerdy and love organizing things. I have some good news, I'm on Cellcept 1500mg /day which to me has always seemed high but the DR I saw at Mayo...

So I'm quite nerdy and love organizing things. I have some good news, I'm on Cel...

Miataman

•5 years ago

6 Replies

Happy new year evryone

Happy new year everyone. You have all made my year better just being there and sharing your stories. Here’s to a new year filled with hope and less pain!! C

Happy new year everyone. You have all made my year better just being there and s...

Papapickle

•5 years ago

2 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for January 2019

Disability Blue Badge Uk (car parking)

Restless leg syndrome

Visual impairment? New app can help!

Anyone have issues with lower gut?

Do you recognize this?

Just wondering if there's Anyone in U.S. that has BD?

Feeling trapped behind Behcet's

Behcet’s and balance

Actemra new drug treatment for Behcet Vasculitis

Thankful

Twitching/ pulsating

Potential Bechet's?

Laser Hair Removal/Hollywood 😳

Topamax withdrawal night sweats

Too much again

Sitz Bath ingredients

Likelihood of developing eye problems

Joint pain?

Effective pain relief for genital ulcers

Tips and tricks / Stopping symptoms

Back to that place again

Joint pain

life with seizers garden1

Australian patients ?

I made a chart to document my BD involvement

Happy new year evryone

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

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