Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,234 members • 4,325 posts

All posts for May 2013

Weight Loss

Hi all Haven't been on for a while as had another flare but feeling better now. I started Slimming World 2 weeks ago as I was so desparate to lose some of...

Hi all Haven't been on for a while as had another flare but feeling better no...

•11 years ago

Finally got a really good consultant after complaining, she was lovely and did what a doctor should do. I've got the option on two drugs now

Azathrioprine or Methortrexate. Can anyone advise me on their experiences on these drugs??? I know we will react differently etc but I would love to hear your...

Azathrioprine or Methortrexate. Can anyone advise me on their experiences on the...

•11 years ago

London Support Group Confirmed

Hello everyone! I am so pleased that we have finally booked the venue for our first official London Support Group in July. Location: Pyschosynthesis...

Hello everyone! I am so pleased that we have finally booked the venue for our...

•11 years ago

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TNF

Hi, my daughter has been asked if you wants to try TNF as the other meds she has tried have not helped her, she is very worried about the side effects etc, can...

Hi, my daughter has been asked if you wants to try TNF as the other meds she has...

•11 years ago

THANKYOU!!!

I felt that after reading so many funny and helpful blogs by people such as: Devonshiredumpling - Andrea - Tigerfeet - behcetsandbeond and to everyone else...

I felt that after reading so many funny and helpful blogs by people such as: De...

•11 years ago

very strange feeling

Hi again guys i had two good days and now back down hill again ive had a really bad head for about 5 days non stop but ive just got used to it being there and...

Hi again guys i had two good days and now back down hill again ive had a really ...

•11 years ago

My experience with Colchisine

I have been diagnosed with BD 3 months ago after 7 months of search. I started taking colchicine and together with a balanced diet and moderate excercise BD is...

I have been diagnosed with BD 3 months ago after 7 months of search. I started t...

•11 years ago

Hi I was diagnosed with behcets disease last September after been admitted to hospital.

Ive been on different tablets since then and none of them seem to be giving me any relief. I have constant flares and fell exhausted most of the time, no one...

Ive been on different tablets since then and none of them seem to be giving me a...

•11 years ago

Diet and Behcets

I just thought I would post this if anyone is interested. I notice that a lot of BD sufferers on here use things like ice cream and soda to 'feel better'...

I just thought I would post this if anyone is interested. I notice that a lot...

•11 years ago

ADVICE PLEASE MY 4 YEAR OLD DAUGHTER

my daughter is 4 years old and has been suffering for headaches for bout 6months recently however she has had terrible fatigue and sleeps all the time and has...

my daughter is 4 years old and has been suffering for headaches for bout 6months...

•11 years ago

advice if possible

My daughter is struggling at the moment with mouth , throat and ear's, she has always coped before but this flare seems worse than usual, she isnt sleeping...

My daughter is struggling at the moment with mouth , throat and ear's, she has...

•11 years ago

An article I wrote...

Hello there everyone, For some years now I have been involved in campaigning - raising awareness for a condition called Myalgic Encephalomyelitis or (ME)...

Hello there everyone, For some years now I have been involved in campaigning ...

•11 years ago

Urinary incontinence

My gp thinks I have behcets and just waiting for bloods to come back ( to rule out other stuff) since I've been I'll I've been experiencing much more than the...

My gp thinks I have behcets and just waiting for bloods to come back ( to rule ...

•11 years ago

Pressure on the brain relieved by a really bad nosebleed?? HELP.

Hi all! Have had a severe headache for the last two weeks that has got progressively worse (it felt like a building up of pressure) anyway, I had a really bad...

Hi all! Have had a severe headache for the last two weeks that has got progress...

•11 years ago

Spoke too soon!!!

Well my last post was full of hope and I knew I had spoken too soon!!!! What a week or two I have had.....ulcers back with a vengence both oral and genital...

Well my last post was full of hope and I knew I had spoken too soon!!!! What...

•11 years ago

Are there any good Behçet specialists in Scotland?

A while ago I wrote to the Scottish Government about a centre of excellence but all the could say was "ask the BSS". So I asked the BSS but didn't get a reply....

A while ago I wrote to the Scottish Government about a centre of excellence but ...

•11 years ago

Ps- someone's finally listening x

Hello lovlies! I appreciate all of your replies in the last week...x I realise some of them where a little bit worrying x I went to my doctor today after last...

Hello lovlies! I appreciate all of your replies in the last week...x I realise ...

•11 years ago

My 1st Behcets Suppourt meeting in the Wirral :-)

I'd just like to thank the Fantastic hosts ( Yvonne & Paul ) and Carol - Liverpool suppourt worker for a really great evening in the Wirral last night - made...

I'd just like to thank the Fantastic hosts ( Yvonne & Paul ) and Carol - Liverpo...

•11 years ago

Severe Headache, shallow breathlessness, vision loss and loss of balance.

Hi guys! Been having a seriously bad day with my headache!! Been on the sofa all day, and my new stronger painkillers aren't touching it. Been in tears a...

Hi guys! Been having a seriously bad day with my headache!! Been on the sofa al...

•11 years ago

Looking for patient support outside of London

Hello, I have recently met two patients in our London clinic who live too considerably far away to be able to attend our London Support Group. Both, are...

Hello, I have recently met two patients in our London clinic who live too consi...

•11 years ago

Slowly loosing my eye sight and worrying...

Hi everyone! I've been suffering with severe headaches and loss of vision (& red bloodshot painful eyes). However, I have been thinking about whether an...

Hi everyone! I've been suffering with severe headaches and loss of vision (& re...

•11 years ago

Do you ALWAYS get ulcers with every flare? Awaiting diagnoses,,,,,

I've read that the diagnoses criteria requires at least 3 ulcers in 12 months, well I have definately had more than 3, I have a history of very nasty ulcers,...

I've read that the diagnoses criteria requires at least 3 ulcers in 12 months, w...

•11 years ago

London Support Group

Hi again, I think I've found a great venue for our first official London Support Group. It's very near to London Bridge station and we are thinking about...

Hi again, I think I've found a great venue for our first official London Supp...

•11 years ago

Help and advice needed

I'm so glad I found a forum that has real live people with Bechets! Argh! I'm at my wits end, so I'm hoping some of you guys can help me out please. Please...

I'm so glad I found a forum that has real live people with Bechets! Argh! I'm at...

•11 years ago

Treatments when finally diagnosed?

Ive been considering asking the doctors if it would be possible to get an NG tube once im finally diagnosed.. I barely eat at all anymore from the stomach pain...

Ive been considering asking the doctors if it would be possible to get an NG tub...

•11 years ago

Being referred but terrified to be ignored and dismissed again. I know something's wrong with me. Any hints and tips?

Hi everyone! I'm really new to all of this so if I get it wrong, it's totally fine. I'm currently being referred to Birmingham COE after being very sick for 3...

Hi everyone! I'm really new to all of this so if I get it wrong, it's totally fi...

•11 years ago

good news..

Hi everyone, so went the hospital Friday, my first time at the centre of excellence as its fairly new to Birmingham. ive told the doctors about my memory loss,...

Hi everyone, so went the hospital Friday, my first time at the centre of excelle...

•11 years ago

SWOLLEN FACE

I have woken up this morning and my face is swollen. My mouth is very puffy and my tongue is swollen. I'm pretty much freaking out here. I don't know if this...

I have woken up this morning and my face is swollen. My mouth is very puffy and ...

•11 years ago

Something new...bloating anyone??

Not too sure if this is Behcet's related or not, but I have had severe abdominal bloating for the last few days. Like, to the point it looks like I'm about six...

Not too sure if this is Behcet's related or not, but I have had severe abdominal...

•11 years ago

Something cool to wear when I feel frumpy !

I am a big Lass and I vary with the weather (literally at times) in how much weight I hold and lose depending on how much water I am retaining and can vary...

I am a big Lass and I vary with the weather (literally at times) in how much wei...

•11 years ago

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