Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for July 2013

I have painful cracks at the side of my mouth it looks like an ulcer and has been there for 2 weeks. All nasty in the morning. taking vit B

Sorry not sure how to do this? Has anyone else had sore ulcers on the side of the mouth

Sorry not sure how to do this? Has anyone else had sore ulcers on the side of t...

Hidden

•11 years ago

10 Replies

My relief in finally being diagnosed

This is my first time posting like this so I'm a little out of my depth but i felt a need to do it for all you sufferers out there that have probable/suspected...

This is my first time posting like this so I'm a little out of my depth but i fe...

Hidden

•11 years ago

7 Replies

Doctors have suggested I may have BD but are unsure,I have inflammation behind my eye eye in both and have been given prendisolone for 1year

I am putting weight on and it is affecting my confidence. What other treatments are available without these side effects ?

I am putting weight on and it is affecting my confidence. What other treatments ...

Hidden

•11 years ago

4 Replies

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Accidents do happen

Hi All, Thursday 25 July started off really well. Up early, put on my best togs and excited as it was my youngest sons Graduation Ceremony. I drove and...

Hi All, Thursday 25 July started off really well. Up early, put on my best tog...

billi

•11 years ago

4 Replies

infliximab flare blood boiling sensation in my veins

hi all i was due an infliximab infusion my fourth one two weeks ago but after bout of shingles it was put off for two weeks,i met another rheumy last tuesday...

hi all i was due an infliximab infusion my fourth one two weeks ago but after b...

scruffy1

•11 years ago

10 Replies

Blue badge

Hi all Roxy may I ask whereabouts in the country you live as we have been turned down for a blue badge twice now. My husband is 72 he has had 2 new knees and...

Hi all Roxy may I ask whereabouts in the country you live as we have been turned...

billi

•11 years ago

4 Replies

Back to front

Just spotted your post Anrea. Yes it is upsidedown if you like and also the dates are month, day year. Obviously following our cousins in America as they do...

Just spotted your post Anrea. Yes it is upsidedown if you like and also the dat...

billi

•11 years ago

3 Replies

Site probs

To let you all know I still have not ahead a reply to my complaint but........I am now receiving notifications and although I still think the old site was more...

To let you all know I still have not ahead a reply to my complaint but........I ...

billi

•11 years ago

2 Replies

More advice for using new website

You may have noticed that the replies to questions or posts are in reverse order. This means you see the last reply first and the first reply last on the...

You may have noticed that the replies to questions or posts are in reverse order...

andreafm

•11 years ago

1 Reply

Any more misdiagnosis statements would be very much appreciated

Well, I am still making slow progress and my MP is taking a more solid interest now. I was recently sent a link to a Multiple Sclerosis forum about the...

Well, I am still making slow progress and my MP is taking a more solid interest ...

Herbiv4

•11 years ago

Be the first to reply

Has anyone new here suffered a clinical misdiagnosis involving CFS or ME prior to being diagnosed as having Behçet's disease?

My MP who is Sandra Osborne (Lab) is taking this clinical misdiagnosis issue very seriously. She has offered to put all of our anonymous statements to Norman...

My MP who is Sandra Osborne (Lab) is taking this clinical misdiagnosis issue ver...

Herbiv4

•11 years ago

Be the first to reply

Does anyone have problems with lymph gland on face infections. My daughter had what looked like a cyst that burst oozing puss down her face.

Disgusting but after antibiotics she still has the problem, not as big but still painful. The rheumatologist said being on azathioprine won't be helping. She...

Disgusting but after antibiotics she still has the problem, not as big but still...

Michja

•11 years ago

3 Replies

Site probs

Just to let you all know I have sent an email to the site managers stating our probs and that the site is supposed to be for us, and dealing with an illness is...

Just to let you all know I have sent an email to the site managers stating our p...

billi

•11 years ago

4 Replies

New website advice

Just wanted to let people know that the front page Activity Sheet [the little House on the red menu's above] does not update very quickly at all....which means...

Just wanted to let people know that the front page Activity Sheet [the little Ho...

andreafm

•11 years ago

5 Replies

All clear with MRI

Hello everyone , you may not remember but I put a post on a few weeks back about my memory n stuff..... good news is I had my results back from my MRI which...

Hello everyone , you may not remember but I put a post on a few weeks back about...

mybehcetsxx

•11 years ago

5 Replies

Can we talk about brain fog again?

Since we can't search easily, I would like some more debate around brain fog. I've had the week from brain fog hell.... I know beau recently discussed...

Since we can't search easily, I would like some more debate around brain fog. I'...

goodlife

•11 years ago

33 Replies

i have behcet ,for 5 wks now have not been hungry and have lost about 20lbs. Has anyone else suffered this, i think this could be a flare up

cazzzz

•11 years ago

7 Replies

Should i be rushing to A&E?

Hi everyone!! 2 nights ago, i woke up (not weird.) I was completely blind (Pretty weird.. but im getting used to that..) And i could feel one side of my...

Hi everyone!! 2 nights ago, i woke up (not weird.) I was completely blind (P...

MusicFreak2396

•11 years ago

4 Replies

Fibromyalgia

Had anyone else with BD been diagnosed with Fibromyalgia too?

Roxybaby

•11 years ago

1 Reply

Anyone else have a Behcet's body that attacks everything it comes into contact with, besides just itself?

Hi everyone, I sort of started discussing some of this in another post, so sorry if it sounds familiar Lol. I'm just wondering if its a normal occurrence...

Hi everyone, I sort of started discussing some of this in another post, so so...

behcetshurtsbeyondwords

•11 years ago

3 Replies

Any advice for freezing cold legs and feet?

Hi, Has anyone got any advice as this is driving me mad? I have always had bad circulation in my legs and hands but the past couple of years my legs and...

Hi, Has anyone got any advice as this is driving me mad? I have always had ...

Wellington

•11 years ago

10 Replies

Is there anyone in Jersey CI with Behcets that would like to chat?

I am looking to maybe start a support group if there is interest in Jersey.

smitten500

•11 years ago

2 Replies

Tat

Tat1

Rlopeznyc

•11 years ago

Be the first to reply

Thoughts?

Check out the new photos I'm about to post. I'm telling you this disease is messing with the wrong person. I have taken photos of every lesion that appears on...

Check out the new photos I'm about to post. I'm telling you this disease is mess...

Rlopeznyc

•11 years ago

1 Reply

Forum Site Down Time !!

I’m pleased to announce that the new HealthUnlocked platform will officially launch on Tuesday July 9th, bringing many features we believe will improve your...

I’m pleased to announce that the new HealthUnlocked platform will officially lau...

UKADMIN

Partner•11 years ago

3 Replies

Has anyone made a link with HPV vaccine and the onset of Behcet's symptoms? My daughter had first ulcers appear 3 wks after last injection.

blueskythink

•11 years ago

4 Replies

Putting the ç into Behçets

Anyone out there curious to know how a keyboard can spell Behcet's as Behçet's - look no further than here (hopefully)..... I have 2 computers - one is an...

Anyone out there curious to know how a keyboard can spell Behcet's as Behçet's -...

Herbiv4

•11 years ago

7 Replies

Behcets awareness day

Since being diagnosed with Behcets in 2010 I find that medical and other people do not know enough of this. When I was diagosed with fibromyalgia and chronic...

Since being diagnosed with Behcets in 2010 I find that medical and other people ...

smitten500

•11 years ago

9 Replies

Mis-diagnosis

Hi there I was given a diagnosis of fibromyalgia before I was diagnosed with Behcet's. I was seen by a dental specialist who thought that a painful mouth...

Hi there I was given a diagnosis of fibromyalgia before I was diagnosed with Be...

fortunate

•11 years ago

4 Replies

Could it be?

Hi everyone, I have just stumbled across this site whilst trying to find out more information about possible conditions. I was diagnosed last year with...

Hi everyone, I have just stumbled across this site whilst trying to find out mor...

Hidden

•11 years ago

4 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for July 2013

I have painful cracks at the side of my mouth it looks like an ulcer and has been there for 2 weeks. All nasty in the morning. taking vit B

My relief in finally being diagnosed

Doctors have suggested I may have BD but are unsure,I have inflammation behind my eye eye in both and have been given prendisolone for 1year

Accidents do happen

infliximab flare blood boiling sensation in my veins

Blue badge

Back to front

Site probs

More advice for using new website

Any more misdiagnosis statements would be very much appreciated

Has anyone new here suffered a clinical misdiagnosis involving CFS or ME prior to being diagnosed as having Behçet's disease?

Does anyone have problems with lymph gland on face infections. My daughter had what looked like a cyst that burst oozing puss down her face.

Site probs

New website advice

All clear with MRI

Can we talk about brain fog again?

i have behcet ,for 5 wks now have not been hungry and have lost about 20lbs. Has anyone else suffered this, i think this could be a flare up

Should i be rushing to A&E?

Fibromyalgia

Anyone else have a Behcet's body that attacks everything it comes into contact with, besides just itself?

Any advice for freezing cold legs and feet?

Is there anyone in Jersey CI with Behcets that would like to chat?

Tat

Thoughts?

Forum Site Down Time !!

Has anyone made a link with HPV vaccine and the onset of Behcet's symptoms? My daughter had first ulcers appear 3 wks after last injection.

Putting the ç into Behçets

Behcets awareness day

Mis-diagnosis

Could it be?

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