Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,478 members•4,420 posts

All posts for April 2013

"spoons"

Can anyone tell me where to find the spoon theory, I have forgotten where I've seen it and would like to show other people as I found it interesting and a very...

Can anyone tell me where to find the spoon theory, I have forgotten where I've s...

kenjay

•12 years ago

2 Replies

When will the fevers stop?

I am from Destin, Florida, USA, I hope you don't mind that I am asking a question on your UK website? I do find BehcetsUK very informative and I visit nearly...

I am from Destin, Florida, USA, I hope you don't mind that I am asking a questio...

Bobsbetty

•12 years ago

13 Replies

Interesting Treatments

I have been on this forum for a couple of months, and learned quickly that this is based in the UK. I'm over here in the States and can't help but notice all...

I have been on this forum for a couple of months, and learned quickly that this ...

spirojo

•12 years ago

14 Replies

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Has anyone stayed at the James hora home before an appointment?

Hi, I was wondering if anyone had stayed or asked to stay at the James hora house? Thanks

Hi, I was wondering if anyone had stayed or asked to stay at the James hora hous...

flutterbykisses

•12 years ago

1 Reply

High LDH and Behcet's?

I am wondering if anyone else has been told they have high LDH levels? I was at the clinic yesterday having my Remicade infusion and my nurse told me that my...

I am wondering if anyone else has been told they have high LDH levels? I was a...

behcetshurtsbeyondwords

•12 years ago

6 Replies

Eyes!!! have been getting tiny 'ulcers' on the whites of my eyes..

hi ladies and gents... This is my second time getting these wee ulcers on the whites of my eye,, the right one to be specific.. Not so much painful, but...

hi ladies and gents... This is my second time getting these wee ulcers on the...

dawnie2750

•12 years ago

7 Replies

Menstrual issues?

Just curious if any of you ladies have issues with your cycles since you've gotten ill? I feel like my cycles are getting worse every month. Such a pain. It...

Just curious if any of you ladies have issues with your cycles since you've gott...

wendya432

•12 years ago

14 Replies

Stem cell treatment in Germany

I have been meaning to call a friend who has just got back from Germany after her second stem cell treatment. She has a condition of the eye at the age of 40...

I have been meaning to call a friend who has just got back from Germany after he...

Michja

•12 years ago

4 Replies

What kind of benifts can you claim on bechets

TinkerErbell

•12 years ago

1 Reply

Hi, does anyone have any experience of young children with Behcet's?

J3nny

•12 years ago

5 Replies

does anyone know if BD patients from wales can be refered to the centres of excellence at antre

having moved last year to Aglesey, I already travel 2.5 hours to wrexham so i can still see the rheumatologist who has been treating me for sojgrens for the...

having moved last year to Aglesey, I already travel 2.5 hours to wrexham so i ca...

cfuins

•12 years ago

2 Replies

coke for mouth ulcers!!

hi everyone just thought id share this for anyone unfortunate enough to suffer with mouth ulcers . i constantly have them and found that at that worse i could...

hi everyone just thought id share this for anyone unfortunate enough to suffer w...

mybehcetsxx

•12 years ago

21 Replies

Feeling like pooh!!!

Hi all Just on here for a whinge and moan again! I have done a lot of that lately. I am in a relatively average flare at the moment, ulcers on head, chest...

Hi all Just on here for a whinge and moan again! I have done a lot of that l...

bailey23

•12 years ago

5 Replies

STILL GOT CHEST INFECTION

Hi all, I posted on here bout a week ago. Had a chest infection, finding it difficult to breathe. Thanks for all the kind replys. Had an xray and all clear...

Hi all, I posted on here bout a week ago. Had a chest infection, finding it diff...

pheobe67

•12 years ago

8 Replies

What's my future? Only been diagnosed 4weeks, Trying to get my head round beschets and the future. Would like to say hi.

coach76

•12 years ago

18 Replies

How have people coped with Behcets flare ups and working?

Hi everyone. Iv had behcets for ten years, I'm finding it extremely hard to work full time or part time as i constantly get flare up and struggling with...

Hi everyone. Iv had behcets for ten years, I'm finding it extremely hard to work...

Dezie

•12 years ago

19 Replies

what is the difference between oral steroids and a steroid injection?

I had an intramuscular depo medrone injection but didn't seem to get the same result as when I get oral steroids. Does anyone know what the difference is...

I had an intramuscular depo medrone injection but didn't seem to get the same re...

goodlife

•12 years ago

6 Replies

does anyone have nausea after eating? it has now become a regular thing now and it dont matter how much or little or what food i eat ??

mybehcetsxx

•12 years ago

5 Replies

Food allergy

Hi can i ask if anybody with Behcets suffer with food allergies, as my daughter has tried on a few occasions to eat a chinese take out and everytime she eats...

Hi can i ask if anybody with Behcets suffer with food allergies, as my daughter ...

tamirra

•12 years ago

9 Replies

New Scooter has arrived

Hi everyone Took possession of my new Luggie Monday. Very nippy little thing. Mum, Dad and I went out for lunch yesterday (funny thing was we got Dad to...

Hi everyone Took possession of my new Luggie Monday. Very nippy little thing...

lesleyg

•12 years ago

20 Replies

I have written a long question and didn't realise that the it was too long question. Has it been lost completely? I tried to cut/paste but

Hidden

•12 years ago

2 Replies

Body's recovery after discontinuing steroids

I am wondering if it is possible for the body to recover and return to normal after discontinuation of steroids. I don't mean recovering from Behcet;s itself,...

I am wondering if it is possible for the body to recover and return to normal af...

behcetshurtsbeyondwords

•12 years ago

18 Replies

Insurance denied Infliximab - $28k bill

I live in the US - I have Aetna for health insurance. We specifically chose the highest plan my husbands employer offers, paying $800 a month (company matches...

I live in the US - I have Aetna for health insurance. We specifically chose the ...

Kayhold

•12 years ago

8 Replies

Drs. Hasan & Yusuf Yazici @ colchicine (Colcrys)

A few months ago, rheumatologists Dr. Hasan Yazici (in Turkey, considered the world's expert in Behcet's) and his son Dr. Yusuf Yazici (runs the Behcet's...

A few months ago, rheumatologists Dr. Hasan Yazici (in Turkey, considered the wo...

amietamant

•12 years ago

16 Replies

Another Question - Struggling Mentally?

Sorry another question... Everything seems to take longer for me to process mentally at the moment. (Currently experiencing a big flare up). If someone asks me...

Sorry another question... Everything seems to take longer for me to process ment...

lovenothate

•12 years ago

14 Replies

To Introduce Myself and Ask A Question :)

Hello everyone. My name is Will. I've just been diagnosed (March 2013) with Behcets after weeks of severe symptoms and years of intermittent health problems....

Hello everyone. My name is Will. I've just been diagnosed (March 2013) with Behc...

lovenothate

•12 years ago

13 Replies

not such an excellent centre

It's good news in a way. About two years ago my wife started getting mouth, genital and other ulcers,amonst other symptoms.18 months ago she was referred to...

It's good news in a way. About two years ago my wife started getting mouth, geni...

peteleblanc

•12 years ago

9 Replies

we are wondering if a visit to a centre of excellence would do us any good, has anyone got any experience or views on theses centres?

darlotyke

•12 years ago

9 Replies

weird skin issues?

Does anyone else get any odd skin issues? Not sure if they are ulcers or just a result of the vasculitis aspect of behcet's. First I get what I believe...

Does anyone else get any odd skin issues? Not sure if they are ulcers or just a...

wendya432

•12 years ago

6 Replies

Hi I am new to this, I have just received an appointment to attend a clinic not sure what to expect. And to be honest quite worried.

Cherryann

•12 years ago

6 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for April 2013

"spoons"

When will the fevers stop?

Interesting Treatments

Has anyone stayed at the James hora home before an appointment?

High LDH and Behcet's?

Eyes!!! have been getting tiny 'ulcers' on the whites of my eyes..

Menstrual issues?

Stem cell treatment in Germany

What kind of benifts can you claim on bechets

Hi, does anyone have any experience of young children with Behcet's?

does anyone know if BD patients from wales can be refered to the centres of excellence at antre

coke for mouth ulcers!!

Feeling like pooh!!!

STILL GOT CHEST INFECTION

What's my future? Only been diagnosed 4weeks, Trying to get my head round beschets and the future. Would like to say hi.

How have people coped with Behcets flare ups and working?

what is the difference between oral steroids and a steroid injection?

does anyone have nausea after eating? it has now become a regular thing now and it dont matter how much or little or what food i eat ??

Food allergy

New Scooter has arrived

I have written a long question and didn't realise that the it was too long question. Has it been lost completely? I tried to cut/paste but

Body's recovery after discontinuing steroids

Insurance denied Infliximab - $28k bill

Drs. Hasan & Yusuf Yazici @ colchicine (Colcrys)

Another Question - Struggling Mentally?

To Introduce Myself and Ask A Question :)

not such an excellent centre

we are wondering if a visit to a centre of excellence would do us any good, has anyone got any experience or views on theses centres?

weird skin issues?

Hi I am new to this, I have just received an appointment to attend a clinic not sure what to expect. And to be honest quite worried.

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