My appointment went WELL, I know I did say WELL...the Consultants Registrar was from Iran and guess what? he knew what I was talking about because this insidious disease is more prevalent in middle eastern countries. He spent an hour and half with me. taking notes and LISTENING to me. That in itself was novel!!
I now have to wait for another MRI and a Lumber puncture!!!! If I had the cash I could have an MRI in a week but as I do not I will have to wait approximately 6-9 months. The lumbar puncture will be done sooner..Will let you all know when I get appointment!!
Thanks to everyone for all your kind wishes and support. xx