Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,246 members • 4,330 posts

All posts for June 2015

Behcet's how do you cope

Good evening I have suffered from Behcet's for the last 39 years. I was diagnosed in the last 5 years. I am on no medication and I try hard to eat organic...

Good evening I have suffered from Behcet's for the last 39 years. I was diagno...

2106

•9 years ago

5 Replies

Awaiting BS diagnosis

Hi guys I am going back to see consultant on Tuesday advised high probability of diagnosis been a helll of a long time coming,not really sure what to expect...

Hi guys I am going back to see consultant on Tuesday advised high probability of...

nearysandra

•9 years ago

4 Replies

Does anyone take Methotrexate for their Behcets?

I have been asked a few times to take this medicine but I have read such conflicting reports about the drug, so not sure whether to try it or not. Just...

I have been asked a few times to take this medicine but I have read such conflic...

SusM

•9 years ago

6 Replies

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Ulcers

Hi guys I am suffering from a flare up! Ulceration at back of throat, ear canal and bleeding from the ulcers at back of throat!! What concerns me is the roof...

Hi guys I am suffering from a flare up! Ulceration at back of throat, ear canal ...

don5766

•9 years ago

11 Replies

Research into funding expensive drugs

Hi all, there's a PhD student, Siobhan Bourke, from Bangor University who is researching the funding of expensive drugs for patients with rare diseases. She is...

Hi all, there's a PhD student, Siobhan Bourke, from Bangor University who is res...

lilaraquel

•9 years ago

8 Replies

possible eye involvement advice wanted

I am a 41 yr old male with behcets, I have had gastro intestinal problems and external ulcerations. I recently self-started prednisone due to what I perceived...

I am a 41 yr old male with behcets, I have had gastro intestinal problems and ex...

andesign

•9 years ago

6 Replies

Who else gets meningitis?

Just wondering, I realized that I don't see many people mention it... Would love to hear about your experience with it, severity, duration, frequency, etc....

Just wondering, I realized that I don't see many people mention it... Would love...

rooser1

•9 years ago

3 Replies

Worried

I was dignosed with BS about 4 yrs ago but have had symptoms for 15 yrs and never knew what BS was I have mouth ulcers vaginal ulcers body pain stiffness aches...

I was dignosed with BS about 4 yrs ago but have had symptoms for 15 yrs and neve...

Dannitune74

•9 years ago

6 Replies

Help me bechet's mouth sores

My mouth hurts so bad... I can't even open it enough to talk. I can't stop getting upset.. Fear that my being upset will worsen it... Please someone put me...

My mouth hurts so bad... I can't even open it enough to talk. I can't stop gett...

Meschell

•9 years ago

17 Replies

Anyone experienced a flare with normal crp/esr?

So I was left feeling confident last week that my specialist had a diagnosis of bechets.i had a massive crash this week,joints swollen,bruises,mouth...

So I was left feeling confident last week that my specialist had a diagnosis of ...

Mrsfh

•9 years ago

10 Replies

Extreme Hair fall/loss

Hello, I was recently diagnosed with Behcet and am currently taking plaquinil, colchicine & immuran. I now have extreme hair fall/loss and I consulted my...

Hello, I was recently diagnosed with Behcet and am currently taking plaquinil, c...

Pinkydxb

•9 years ago

5 Replies

Behcet Community in UAE

Hello, I was recently diagnosed with behcet syndrome and on one hand I am feeling relieved cause now I know what's wrong, but I am confused cause I haven't...

Hello, I was recently diagnosed with behcet syndrome and on one hand I am feeli...

Pinkydxb

•9 years ago

2 Replies

Hi everyone....I'm sorry, but I got in here by mistake. Now I can't get out. I click on unfollow, but nothing happens. Can someone help me ?

Hi Everyone! I'm sorry, but I got in here by mistake. Now, I can't get out. I click on "unfollow" but nothing happens. Can someone please help me?

Hi Everyone! I'm sorry, but I got in here by mistake. Now, I can't get out. I cl...

London37

•9 years ago

1 Reply

Itching

Hi Does anyone suffer from itching? I have a really sore and itchy chest I've been given creams but nothing works. There are so many symptoms crawling out of...

Hi Does anyone suffer from itching? I have a really sore and itchy chest I've ...

Ailsam

•9 years ago

7 Replies

Support Group in Jersey

Hi, Recently our local paper the Jersey Evening Post published a small article. This was about Behcet's Awareness Day. This included my website and...

Hi, Recently our local paper the Jersey Evening Post published a small article....

smitten500

•9 years ago

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Behcet's Leukemia

I would like to know if any one with Behcet's has ever developed T-cell Leukemia. My son who was diagnosed with Behcet's at about six months old has now...

I would like to know if any one with Behcet's has ever developed T-cell Leukemia...

Hidden

•9 years ago

7 Replies

Questions as new user but suffered alone questioning.

Hi I am new on here. I've had bechets since I was 11. Now 33. Reading these posts are interesting re assuring and worrying. Will I suffer new symptoms as I...

Hi I am new on here. I've had bechets since I was 11. Now 33. Reading these pos...

Lojo12316

•9 years ago

4 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for June 2015

Behcet's how do you cope

Awaiting BS diagnosis

Does anyone take Methotrexate for their Behcets?

Ulcers

Research into funding expensive drugs

possible eye involvement advice wanted

More questions from a newbie-this time about ulcers downstairs

Who else gets meningitis?

Worried

Help me bechet's mouth sores

Anyone experienced a flare with normal crp/esr?

Extreme Hair fall/loss

Behcet Community in UAE

Hi everyone....I'm sorry, but I got in here by mistake. Now I can't get out. I click on unfollow, but nothing happens. Can someone help me ?

Itching

Support Group in Jersey

Behcet's Leukemia

Questions as new user but suffered alone questioning.

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive